I was found to have endometriomas on both of my ovaries with a history of stage 4 endometriosis. My doctor advised me to have hysterectomy & remove my ovaries, but if one of my ovaries looks okay, he will leave it. I initially preferred to take everything out, not only because of endometriosis, but also due to the risk of cancer (family history of uterine & breast cancer), but my doctor said there's more side effect of having surgical menopause (like cardiovascular disease, osteoporosis, breast… read more
So, there's lots of things that go into that. For me, I have a long family history of heart disease and osteoporosis, but no ovarian cancer. So when I had my excision surgery with hysterectomy for adenomyosis, we left my ovaries. My surgeon, Dr. Mosbrucker, advised that she would take the tubes. Apparently 35% of ovarian cancers start in tubes, so by those being gone, it reduced the risk of ovarian cancer significantly.
Another thing to consider; you will still have pain if all they do is remove the uterus and ovaries. Removing these organs does NOT cure endo. Removing the uterus will cure adenomyosis, as it did in my case. If the surgeon does not excise (completely remove) all the endo at the same time as the surgery, you will still have all the issues you do.
Ablation is the most common form of endo surgery and unfortunately, it doesn't work. It burns the top of the endo but leaves it there. The endo still causes damage and more scar tissue forms, which worsens everything. So the gold standard of endo treatment is excision, but only a few hundred docs globally have the skill and training to do so.
I'll leave a link here to a resource list I keep. There's info on how to find excision surgeons and check out the link on the difference between excision and ablation. I would consider all of this before you proceed with this doctor, if they are not an excision surgeon.
https://www.myendometriosisteam.com/users/5d1ab...
You're welcome. Let me know if I can do anything else.
Thank you for all of your input. Appreciate it!
I would see if you can find out more information on your family history. If you have a very strong history of breast cancer on one side of the family, especially early onset of breast cancer. It might be worth talking to your doctor about if testing for the BRCA genes is indicated. If you don’t have that gene though I don’t think your risk for ovarian cancer is increased compared to the general population, and personally I would not want all the health risks of early menopause.
One other thing to think about is I’d assume your surgeon would remove your tubes as well. This helps prevent ovarian cancer even if an ovary is still there.
I would go with what your doctor is suggesting. Yes there is a chance of ovarian cancer still but the side effects of surgical menopause is not good either. I dont have the chance for ovarian cancer but my doctor did say going into menopause to soon can harm you if not careful. He was able to leave both of mine at the time and had to go back agter a year and half for one as it was campus and a compact assist the size of a grapefruit. I dont regret leaving the one as i need my hormones. But you also have to do what is best for you. Talk more in depth with your doctor and do research on it. It helps to have all the facts