My doctor is really pushing me to keep trying to stick to meds (Lupron-depot) over getting surgery... like until I need a hysterectomy after I’ve had kids... wayyyy in the future... but I am in excruciating pain and keep asking about excision surgery and she never answers if she even does it, she just says ‘meds are better than scar tissue’ is it time for a second opinion?
Absolutely. Drugs & hysterectomies do not stop progression of endo
You're welcome. Hope it helps and let me know if I can do anything.
I posted my answer on your other thread, but will leave it here in case. Will likely be repetitive 🤣🤣 but sometimes I forget something and so can't hurt!
With all due respect, she is not knowledgeable enough about endo. Surgery when done by a doctor who doesn't know what they are doing, which I think she is, is bad and leads to tons of scar tissue. Excision surgeon leads to way less, as I'm sure you know since you keep asking her about it! Which is awesome; way to advocate for yourself. Sucks that we have to but that's reality.
The gold standard of endo treatment is absolutely excision surgery. I'm sure you know, but that's different than ablation, which is most commonly done. Ablation means they burn endo and leave it there. That's what makes more scar tissue and can increase pain and decrease fertility.
Excision surgery, on the other hand, is when a specially trained surgeon recognizes and removes all the endo. There's only a few hundred surgeons globally who do it, but it's worth it. The majority of people who have it have less pain and increased fertility.
Excision vs. Ablation Surgery. WARNING graphic surgical photos. https://www.endometriosisaustralia.org/post/201...
Nancy's Nook on Facebook (https://www.facebook.com/groups/NancysNookEndoEd/) is a good resource & a good place to start. Lots of articles and a list of excision surgeons.
I’m 97% pain free since my two excision surgeries, so I’m a huge fan. I’m not saying it’s a cure, but it is the gold standard of treatment and helps the majority of EndoWarriors who have it. I also needed lots of pelvic floor physical therapy and diet changes. Many of us need multiple therapies for healing. I’ll leave a resource list here of stuff about endo I've found helpful over the years. Other users have said it helped too. Let me know if I can do anything.
https://www.myendometriosisteam.com/users/5d1ab...
KatherineB thanks for the info I’m going to look up that fb group ASAP