If you have a large endometrioma, that could be the source of lots of the problem. Also, if you never had excision surgery, which I am guessing you didn't, then you probably have endo implants and adhesions affecting your organs. Also, Pelvic Floor Dysfunction can play a part. That's where the pelvic floor muscles spasm and it can cause the urinary symptoms. You could also have Painful Bladder Syndrome ('old' name is Interstitial Cystitis), which is "endo's evil cousin"

I would strongly suggest you seek out an excision surgeon. They are the most qualified to find and remove all endo implants and endometriomas. Don't know where you're located, but Nancy's Nook on Facebook (https://www.facebook.com/groups/NancysNookEndoEd/) is a good place to start. Lots of articles and a list of excision surgeons. Some folks say the admins are bullies. I haven't had that experience, but I literally only go there for the list of surgeons.

I’m 97% pain free since my two excision surgeries, so I’m a huge fan. I’m not saying it’s a cure, but it is the gold standard of treatment and helps the majority of EndoWarriors who have it. I also needed lots of pelvic floor physical therapy and diet changes. Many of us need multiple therapies for healing. I’ll leave a resource list here of stuff about endo I've found helpful over the years. Other users have said it helped too. Let me know if I can do anything.

https://www.myendometriosisteam.com/users/5d1ab...

Only you can fight for you! But I will have your backs

Here's a honest truth, I am learning the more people with Endometriosis, also have lupus symptoms, the "researchers" are finding this connection, and trying to find out if Endometriosis is actually another form of lupus..wait for a flare up, see a arthritis, autoimmune doc, get a standing order to walk in for blood work, get your inflammation markers checked. Go from there, once you know you can fight it, or figure out what else may be going on with your body, cycst that have continued to grow, maybe become hard, anything is a possibility, the point to all is to rule out..go down the list..find out, get to the root of your illness, so you can get better, and have a more " Normal" life..that you shoukd be able to have.

Thank you, Katherine. I'm new to this platform and am really l💝ving all the stories, support, +resource info.

Ill try make this long story short, basically i have a large endometrioma on my left ovarie an plenty of tissue growth in the reproductive area and also my bowels. From the age of 23-25 i was not sexually active atall because of the pain. I now have a partner an have been sexually active an i sometimes get slight discomfort but its nothing to complain about. My issue is i have the marina coil fitted and i also have the nexplanon rod in my arm. These past few weeks, maybe just over a month i have all the symptoms of coming on my period ive had mild to severe cramps and dysomenorhea but nothing is showing, my abdomen is slightly swollen an it has veins showing, im sleeping alot, i have my bladder has been odd aswell. Ill have no feeling of needing to pee then out of nowhere im absolutly busting an have to run to the toilet! Im just curious because all this is new and different