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A MyEndometriosisTeam Member asked a question 💭

I am scheduled for surgery to find out if i have endometriosis. I wonder if it is what i have or something else. I feel just nausea right now and about a week and half away from getting my cycle. Occasional pain in lower stomach that is like sharp, and will get sharp pain through pelvic area also. All around just feel crappy. Anyone have that and its endo?

posted June 7, 2020
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A MyEndometriosisTeam Member

Yes, have to echo this strongly. The gold standard of endo treatment is excision surgery. That's different than ablation, which is most commonly done. Ablation means they burn endo and leave it there. It makes more scar tissue and can increase pain and decrease fertility.

Excision surgery, on the other hand, is when a specially trained surgeon recognizes and removes all the endo. There's only a few hundred surgeons globally who do it, but it's worth it. The majority of people who have it have less pain and increased fertility.

Excision vs. Ablation Surgery. WARNING graphic surgical photos. https://www.endometriosisaustralia.org/post/201...

I’m 97% pain free since my two excision surgeries, so I’m a huge fan. I’m not saying it’s a cure, but it is the gold standard of treatment and helps the majority of EndoWarriors who have it. I also needed lots of pelvic floor physical therapy and diet changes. Many of us need multiple therapies for healing. I’ll leave a resource list here of stuff about endo I've found helpful over the years. Other users have said it helped too. Let me know if I can do anything. Happy to help however I can.

https://www.myendometriosisteam.com/users/5d1ab...

posted June 8, 2020
A MyEndometriosisTeam Member

Yes I agree with these ladies. I regret having not researched things before my surgery. I highly suggest seeing if there is an excision specialist near you. It's really sad because we have to be the one's to educate ourselves on this disease and learn right from wrong. You will find many OBGYN's that will feed you misinformation and wrongly treat this disease. I don't want to worry you. I was fine from my surgery, but burning endometriosis is not the way to go. I will be having my second lap soon by a specialist this time. I am glad you have found this website. There are some very nice and wise people here. I hope we can help. I wish you the best.

posted June 7, 2020
A MyEndometriosisTeam Member

Hello love!! Glad you are here but there might be some important info regarding ablation that you might want to consider before undergoing surgery. It only burns off endo superficially. There are some wonderful women with info and resources on ablation (burning off tissue) vs. excision (surgical removal). It is a complex topic but we are here to help you understand and make the best decision. But it appears ablation might put you at higher risk for complications and the need for continued surgery than excision with a specialist. There are no easy answers but let us help you make the best decision for your health based on evidence and research💛💛

posted June 7, 2020
A MyEndometriosisTeam Member

Yes! I hope and pray your surgeon knows what he/she is looking for and sends biopsies. AND do not agree to Lupron or Orilissa or Synarel.

I suggest joining Nancy's Nook Endometriosis Education on FB. There is SO much information on that site. Do not post for the first week. Just read and READ!!

I am here if you need me!

posted June 7, 2020
A MyEndometriosisTeam Member

See those images from Stage IV? That's what I looked like inside. I have horrible STAGE IV endo. There is a scoring system to assess and stage endo. Anything above a 40 is Stage IV. My score was a 72.

PLEASE have excision and not ablation. My score is so high because of previous surgeries causing so many adhesions.

posted June 8, 2020

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