Hey! I’m trying to decide if at-home hormone testing is worth the price and reliable. I was recently diagnosed with stage 2 endometriosis after having a laparoscopic excision surgery which ended up making my symptoms a lot worse. I’ve asked my doctors about hormone testing because of my endometriosis as well as having moderate acne since I was 16 and no one will agree to order the bloodwork. I’m curious to see if I have a hormonal imbalance worsening my endo and causing acne and possibly PCOS… read more
Oh wow! Damn that's expensive! I guess I shouldn't be surprised if insurance doesn't cover it cause it's "unnecessary". I have Medicare personally and should probably be grateful they cover as much as… read more
Any tips on how to keep your spirits up with endo? I was diagnosed September this year by excision surgery but my symptoms have not improved at all and only have became worse. I’m assuming I’ll need another surgery with the Da Vinci to see if any more endo can be found. I was referred to a specialist downstate but the earliest they could get me in was July 2024. My current doctors office can’t get me in for a consultation with the only doctor that uses the Da Vinci until the end of December. I’m… read more
@A MyEndometriosisTeam Member I can totally help with keeping your spirits high with Endo! I am offering a Virtual Endo Retreat which helps give you the tools to create an empowered, uplifting and… read more
I had excision surgery on Friday and also had a hysterectomy and fallopian tubes removed (ovaries intact). It was successful and I was so excited. I am post 4 days and for some reason my anxiety has come out of now where!? Anyone experienced something similar. I feel guilty, I got good news, but my mental state is in the toilet right now.
Being in pain and not feeling well causes me anxiety every time I’m sick. Be kind to yourself and know that this is temporary. You’re still recovering and you will feel better.
Hey guys anyone ever experience an Ectopic Pregnancy ?
Yes, I had one in February 2023.. hope your okay🫶
Undergone 2 laparoscopic surgeries for endometriosis in 2010 and in 2012. Have been with Mirena since 2012 don't know if night sweats are from the IUD or from the condition. No infections, no thyroid and no prolactin level problems. Wake up drench in sweat,has been goin on for about a week.
I have had the IUD for 5 or 6 months and I have hot flashes AND night sweats, along with a bunch of other symptoms. I wake up drenched, too. I try to make sure my window is open before I go to bed… read more
Does anyone else have more "old blood" than red blood? Before I had my Mirena placed I would have 3 or 4 days of old blood before my period and also 3 or 4 days at the end of my period, with heavy bleeding in between those times. Since having the Mirena placed I have been dealing with the old blood as well, but without the heavy days. I feel like I have more old blood days than anything else, along with thicker brown discharge. It makes me wonder why it is that the blood cant just seem to make… read more
Does anyone have stiff legs. Swelling and hurt if you touch? Water retaintion?
My legs are always sore. I also weigh over 200lbs though. And I had no idea I was retaining water until I mentioned to my doctor that I can gain or lose 5+ lbs overnight. She laughed and told me it… read more
I have stage 4 with cysts on my ovaries. I tried Lupron and had a number of side effects including horrific clinical depression. I want to just go forward with the hysterectomy even though I'm 32. I just fear the depression coming back due to not having my ovaries and I don't want to keep my own ovaries. Any one have these issues? How did you manage depression. I was taking medication and seeing a therapist so I did my part but I'm worried the hormones overriding the medication and I worry about… read more
@A MyEndometriosisTeam Member shall check out dbt as well! Thank you for your suggestion. I was reading up on it and it looks like a very useful therapy
I live in NY where Chronic Pain will be added to the list of qualifying conditions to receive medical cannabis treatments.
There is a product that combines the non-psychoactive CBD cannabinoids with the THC cannabinoids (the kind that makes you feel good) and together they synergistically combat chronic pain by naturally disrupting the pain receptors in your body. I've found using medical cannabis to be beneficial, in particular, to help me take less harmful narcotics, which I need in order to… read more
There is a suppository (not available in NY that I know of) that has provided me with the most targeted relief I've ever experienced, right at the epicenter of where the pain is generated. Using the… read more
Does anyone have a specialist in the Denver area that they would recommended?
Or honestly, I'm willing to go anywhere in the US at this point for help!
Thanks!!
Thanks Resa! I'll look at these later today. I really appreciate it!!