What changes or mental health issues have u had with endo?

I'm specifically asking women who still have their ovaries and are premonopause are not on any hormone inhibitors (like Lupron). It is so weird to me because it starting showing in my bloodwork after excision surgery and my hysterectomy (complete, not radical) that I have low estrogen levels. I figured it was my body adjusting to the excising of the endometriomas as well as maybe the removal of my tubes, but the low estrogen has continued to stay abnormally low and I am definitely experiencing… read more

So I have a consult this Thursday for a laparoscopy the surgeon is not an endo expert surgeon but he is a gyno/MD/FACOG
He isn’t my first pick but my first pick who is an endo master surgeon can’t get me in just for a consult till October 19th. I don’t think I can’t wait that long with the constant pain I’m experiencing, if he offers surgery should I do it or wait for the best in my area???
Please help I need any advice, info, opinions?

Looking to see who's used orilissa and pros and cons! Debating getting on it. Was in menopause thru using Lupron when I was a teen and it's the same company but hated the side effects. Wanna know how it affects your weight? Your mental health and how well it works?

Hello all! I hope you are doing well. Please forgive me for the lengthy post but I need some help.

About 2 weeks I went to the doctor for leg pain and . Turns out there is a lump the size of a lime in my far right groin area. Not necessarily in my leg or my lady bits, but kind of in between. They did an ultrasound and said it was an inclusive cyst. Today I went to follow up with my gyno and she went in through my lady bit and cut it open to drain. It was not a cyst at all or not a normal… read more

Hello, I wanted to speak to people that have been diagnosed and how they knew it was endo. I've been going to the doctor due to lower left abdomen pain that has been going on for a year. Some days it's worse than others but when on my period the pain in my entire uterus and rectum is really extremely bad (for about 5 years now) It doesn't feel like cramps and sometimes I feel like I'm going to faint or like something is trying to come out of my because of the shooting pains but now my lower left… read more

I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more like… read more

New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more

And how do you cope with it?

As things have progressed, I find myself wondering what is “normal.” This might be TMI but does anyone else get vaginal bleeding/spotting outside of their period when trying for a bowel movement? I know it’s vaginal. I had it earlier on but it seems to just be worse and worse. Thanks ladies.