Does anyone know of any good resources for significant others? I just wish there was some kind of abbreviated 'how to' guide for my spouse. Every time something else weird happens to my body, his normal reaction is that I'm being melodramatic and i need to get over it. I think he has read some very small tidbits about endo, but it's such a vastly complex disease that seems to affect every part of your body in some way, and he still does not seem to understand that. Ideally, the guide would be… read more
Okay, I've been in research mode, and I have yet to find any s/o resources for endo patients, but I found these and thoughtthey might be a good start. I think my husband will respond better to podcasts, so I'll be on the lookout for more endo specific podcasts.
- Listen to: One Bad Mother, Episode 316: Parenting with Chronic Pain, Plus NYTimes Parenting Editor Je... - https://one.npr.org/i/751542523:751542527
- Listen to: Sickness & Health: Season 2, Episode 9 - https://one.npr.org/i/510548403:510548405
I havent found anything very helpful yet, but am also looking for some sort of resource to help my partner understand endo and how to be supportive. Its frustrating that there isnt more out there for significant others or loved ones - I feel like it increases the sense of isolation i feel with endo and having to deal with it alone. If i find anything worthwhile, i will share here! Best wishes to you ❤️
I haven’t heard of any but maybe let him read through some others stories on here? I think there’s a symptom tracker app that he could look at to keep up with symptoms? I know that the book EndoMEtriosis has a section for how to support, and a chapter specifically for significant others. The book is written by a doctor but each chapter has a relevant story with it.
Following as I have a very similar husband lacking emotion and feel unsupported (though as you said, I know that’s not the intention).
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