Hi, I recently found out i have bilateral endometriomas (chocolate cysts) and im looking for a good endo specialist in nyc that can help me take them out. Thanks in advance !
Thank you so much! I just found out about nancy nook here. I will definitely check them out!
Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiencesā¦ read more
I've been on visanne for 6months. Almost 4months having this spot/slight bleeding. The next day right after finishing 6months taking visanne i got slight period. I dont know if it is normal. My endoā¦ read more
My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I canāt take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. Itās not just a matter of missing out on work or school, itās the money too. I canāt afford to be off more than a day, and Iāve beenā¦ read more
I can't answer why but I agree that it is ridiculous and unfair. I had the discovery surgery just to get told "yes you have it" and had to have the excision surgery 3 weeks later. Such a waste.
New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for anā¦ read more
I had a hysterectomy in June of 2022 and honestly I donāt recall the specifics of when exactly I was able to move around, but I do remember I used my momās walker the first month and then as I wasā¦ read more
I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more likeā¦ read more
Sorry to hear about your situation with your partner. My ex-husband is understanding of my condition and he is still supportive even though we didn't have sex. I believe education for men and eveyoneā¦ read more
After going to an MRI my doctor confirmed the presence of a chocolate cyst around 5.5cm (left ovary) and one of 2cm (right ovary). He decided to give me the combined pills (Levonorgestrel/ethinylestradiol; 0.10mg/0.02mg) and he said to me that I should come back in a month to see if the cyst shrank or not, if not then he would recommend a surgery for removing only the big cyst.
I started taking the pills on the first day of my period and 29 days after I was still bleeding (non stop), on theā¦ read more
@A MyEndometriosisTeam Member - YAAAY!! I hope you're able to see one soon! And glad to help!
I would suggest you start reading up on the immune system and the inflammatory response.
Enjoy.
I did and still do.āŗļø
Has anyone had excision surgery done by Robert Furr? I have a phone consult with him on Wednesday. He was listed on Nancy Nook's page. Thanks.
I am told he is fantastic. I know he is vetted and follows the footsteps of Dr. CY Liu whose daughter is also an excision specialist.
He left Chattanooga. I will be finding out where he is now.
I have not had the surgery to have endo confirmed, but it is suspected by my new doc. She has put me on Yaz as I don't tolerate other types of bc. I am wondering what to expect from being back on bc? Will it supress the growth, symptoms? I assume that it won't make it regress? She has also mentioned wanting to send me to a specialist for, what I am not sure. Possible surgery I think?
I think that's my birth control... I'm not at home to check. I did really well on it for a few years....
Does anyone else have problems with endo & urine leakage? I find myself leaking wee a lot. Currently waiting on next surgery for extensive endo
I have bladder issues and I have use bladder underwear and underpad on the bed