Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEndometriosisTeam Member asked a question 💭
West Covina, CA
November 11, 2021
 · 
Reactions
A MyEndometriosisTeam Member

No. Birth control does not stop disease progression.

November 11, 2021
A MyEndometriosisTeam Member

I was on bc for 10 years and it helped manage my pain to the point I only had a couple days of bad pain that could usually be managed by otc pain relief and a hot pad. But then my body rejected bc. Don't know how common that is. I'm guessing the disease progressed to a certain level where it just doesn't work for me anymore. BC is definitely not for everyone. It will treat symptoms of endometriosis, but not always, and it comes with a host of long-term side effects that doctors don't typically tell you about (for estrogenic bc - high blood pressure, high cholesterol, stomach issues and more)

November 13, 2021 (edited)
A MyEndometriosisTeam Member

I suspect thoracic endo so my gyno advised a bc. Since I can't have estrogen, and which is also detrimental for endo I started with cerazette (desogestrel) a month ago. He wanted me to start Lupron, since my endo is so severe and I still want to try I've afterwards. But I didn't want to. My lap is on Nov 30th. So I thought gyno was talking bs about symptom reduction whilst using bc for my (suspected) thoracic endo. But it does help my shortness of breath. I've been severe short of breath for 2 years now. Which gets worse during periods and which isn't my asthma. He says thoracic endo is rare. But I bet its not. I live in Europe in a small country. So it might be rare to him. But idk it is in general. Ive been in my period for 4 weeks starting desogestrel. Which sucks. But it has finally stopped and my shortness of breath has improved. I don't understand how that is even possible. But I guess he was right.

November 15, 2021
A MyEndometriosisTeam Member

I noticed no change in pain except not having period pain.

As my disease progressed, I became sicker and sicker with more and more pain.

November 13, 2021
A MyEndometriosisTeam Member

Did you notice any pain reduction from taking it or was it the same or worse?

November 11, 2021 (edited)

Related Questions

View All
A MyEndometriosisTeam Member asked a question 💭
Los Angeles, CA

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In