You need to go back to the doctor that diagnosed you. Never be afraid to ask questions or to tell them about all your concerns and all possible symptoms. Don't worry about feeling stupid or embarrassed. Its the docs responsibility to know how to answer your questions and if they don't have the experience they should refer you to someone who can. They should also know that somethings are hard to talk about and they should do everything they can try to put you at ease. Your condition is only going to get worse without continual care. And learn everything you can the more you know the better you can help yourself and the the doc can help you better.