I have the marker for lupus and was told to see a rheumologist, but I have endometriosis confirmed by Dr. Seckin OR pathology report 2016. Who can help me now?
Hi KarenWade,
I discussed this with my PCP who is also my cardiologist. When I asked him he didn't deny that women my age found out they have Lupus after having surgery. I have had 2 major surgeries in time. If PCP test for that because it's standard how many people would be saved. If I knew I had lupus I would have done anything in my power to avoid a C/S. I then find out after years I have endo and or report confirmed it. I don't just have one ANA test. Ibe had many doctors test me and aftee 5 to 6 years but it's the same. I haven't gone to a rheumatologist because I have abdominal pain on left side since I had surgery. I have a MRI that says my left ovary is attached to my colon which I told my surgeon I feel pulling but no one believed me. My surgery was in 2016.
I don't know what you were told about Lupus, but my mother in law had it as well as endometriosis. I should have went to my doctor after I couldn't get pregnant and maybe things would have been different for me. I believe I would have been told I have lupus because I had good doctors growing up. I was told that lupus showed up in a lot of women after they were diagnosed with endometriosis and for me was my post operaticw report which tissue was send out for biopsy and it was confirmed it's endometriosis. It also stated....something else..I tested for celiac disease because I would blow up after having any with grain. It is definitely an inflammatory thing. I will look into my studies further. I wasn't saying it incorrectly. There are even types of lupus. I'm not hung on the diagnosis, buy what I eat has made it worse. I am treating myself and I allowed doctors to help, but they couldn't connect all my issues. They treated it separately. I truly believe endometriosis supercedes lupus. The lupus will get better if the endometriosis is removed. I do not want another surgery because I don't heal fast with having lupus. This explains everything that is happening. I don't know what you were told and do not want you to think differently. I now have a more challenging matter my heart and an working with a great doctor to heal. Im so glad I have him in my life. I thank you for your knowledge and welcome any facts about endometriosis and lupus. Endo when removed properly is a treatment that lasts for years. I may have it in other areas. I have done a lot of research based on my conditions and lack of taking medication. I left doctors offices with presciption filled out and never took it because I would also ask would this medication affect my endometriosis. If I knew about lupus I would have asked does this medication affect my lupus. I wish you great strength for this new year and great hope for doctors that will answer our questions
Hi KarenWade,
Yes, I was given a rheumatologist to see about my blood results. I read that people get Lupus after they have surgery to remove endometriosis. I thank you for answering my question, but I want to know is my endo going to get better if I treat my lupus or the opposite if I treat the lupus would the endo stay at bay. I need answers.