My doc recommends Mirena but I'm nervous because I've dealt with cystic acne entire adult life. Has anyone else with cystic acne in the past been on Mirena? If so, how has your experience with Mirena been? I don't know what's worse...the pain of endo or the emotional toll of acne (and I'm 40 and just figured out how to clear my acne and what the triggers are in the last few years...so we're talking a 25 year battle with acne. 🥴)

Does anyone suffer from hormonal cystic acne? Breakout twice a month. 1@ ovulation 2@ period. Would love some feedback on anyone who found a "cure"

I've had it 4 months. I have an appt on Thursday. My doc wanted me to wait 3-6 months to give it a chance. I'm getting more new symptoms. I'm in pain every day. I feel like my insides and expanding and stretching apart. I currently don't get prescribed any pain meds. I can get through work and that's about it.

This is kind of my last stop. I can't have estrogen based BC due to risk of stroke. I've tried every progesterone based option except the implant, which seems pointless to me since all… read more

Hey everyone
I was diagnosed with endo in Sep of 2018 after I had laparoscopic surgery due to years of pain. I have been on so many different combination birth control pills because my gyno's first instinct each time I came back due to pain, was to switch my BC rather than looking further into the problem.

So after the laparoscopy he immediately took me off combination pills and I am now on a progesterone only pill (Norethindrone) and it has caused me to break out like crazy.Before this new… read more

Any advice on what to do to control it?

I have been on Visanne 2mg for 6 weeks. The spotting/light bleeding started 10 days after I was on the pill, and until today, the bleeding never stopped. It got a bit heavier starting at week 5: bright red blood with some small clots, but much less bleeding than a regular period. From time to time, I got cramps and I took an Advil, then I can carry on without any problem. But for the last 3-4 days, my pain is getting much much worse. At 2AM I woke up by some very sharp spasms in my tail bone… read more

So I have a few days left on my pill and had surgery a week and a half ago. Yesterday I started bleeding heavier and having some pretty intense cramps, which could also be being a bit off about taking my birth control since I’m not having the best time recovering from surgery. I decided to just let myself have my period, I’m on seasonique so it’s been a while anyway and I figured my body could use it. I’m still in a good amount of pain and I have a pretty high pain tolerance so it’s been rough… read more

Just had my laparoscopy done 2 days ago and the doctor wants me to start to take progesterone only pill for 8 weeks continuously until I see him. I had spotting after I started the 1st pill last night. I don't really know the bleeding is from the laparoscopy or the pill....anyone has similar experience to share?

New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more

5 months post diagnostic and excision surgery, 2 months on combined pill and I can feel little niggles returning. I thought it was in my head at first but the pain is coming back slowly but surely. Has anyone else experienced endo coming back so quickly?
I’m feeling pretty deflated because after the surgery the difference in my symptoms was utterly life changing!