I had surgery last Aug and I swear my endo is a million times worse! The gyno who did the surgery said to go to the ER and won’t see me anymore and I’m in constant pain lower back, hips, abdominal pain, and of course painful sexual intercourse. I am also tired all the time and don’t feel like doing a thing!

Does anyone get sharp nerve pain in the clitoris and labia sorry if thats tmi but its really bad today just wondering if its endo related.

I feel like I have been losing my mind the past month. In February I started having what looked like dried up black/brown blood with clots appear on my liner. Then it went to just brown and brown with clots. Then I started cramping bad a week ago and had red/darker brown blood with clots and appeared to have started my period. But it has been 7 days now and I am still bleeding red/dark and seeing clots. Before the "period" thought blood was coming from urethra but never saw any in urine. Did… read more

I think I have a messed up nerve on the left lower abdomen running to the genital area. I have a single spot that randomly itches, stings, or feels numb.. but lately those feelings are shooting up toward my csection scar, which also happens to be the area where I had endo on a nerve that was excised during hysterectomy in 2017. I'm wondering if there is nerve damage or new endo maybe?? Anyone experience anything similar?

this suddenly started happening to me today when my cramps are HORRIBLY painful

What do you make sure you have in your diet? What do you make sure to avoid? What are some triggers for you? Seeing if I can further help my body and get some encouragement.

I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more like… read more

Not endo related but sort of: does anyone know of online support groups for infertility?

My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I can’t take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. It’s not just a matter of missing out on work or school, it’s the money too. I can’t afford to be off more than a day, and I’ve been… read more

Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more