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About MyEndometriosisTeam
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Rare Endometriosis?

Rare Endometriosis?

Anyone has scar endometriosis from c sections?
If so did you get the lap surgery and is it even worth getting?

A MyEndometriosisTeam Member said:

I experienced exactly what @A MyEndometriosisTeam Member said, although I did have heavy periods as a teenager. So I'm also "very possibly but only maybe". When I had my Lap, I had about a year symptom free (-2 months for recovery) and symptoms are only slowly returning, so I think it was worth it. That 10 months was nice to have.

posted 8 days ago
A MyEndometriosisTeam Member said:

Oh sorry, to answer your other questions:
Yes, my bladder and uterus were fused, and my bowel/small intestine were attached to my abdominal wall. I can feel it happening in the same spots again, some months it grows faster and some it's really slow... So, slowly, slowly, month by month, I'm getting back to that point again where I may need to have surgery. It was so nice being able to walk and not having to have my organs being dragged around haha.
If they are suggesting you have the surgery because it is spreading, I think that means they think it's best to slow it down before it gets worse. Especially if they can excise (remove) all of it. If they are "waiting to see", they are trying to work out what the best plan is for you without making you have the surgery. It's important you also have a say in what you think is best for your quality of life, everyone is different.

posted 7 days ago
A MyEndometriosisTeam Member said:

Well I'm not sure if it's more than before but it feels less. Right now (that's 1 year 2 months after Lap to remove tissue) it feels better than after my son was born. I only feel it sometimes (but when I do it sucks) and I can progressively feel it getting worse, but it's so much slower than before. I absolutely would consider another one because my diagnosis wasn't 100%, it gave me the ability to walk without feeling my organs being pinched (a priceless and freeing feeling to me) and because I know that at this rate, it will either be next year or a few years from now to try another surgery. I don't want to do it too much though, if there's a way to avoid endless repeat surgeries that would be better. So I will have to discuss the next step (whatever that is) with my doctor though at my next visit, because it seems like I've determined the rate of having surgeries would be "every few years".

I would like to say though that everyone who experiences Endometriosis, however they get it, will experience the pains differently and it will grow in different places per person, different speeds, etc. It's really important you have a thorough and compassionate OBGYN who will take the time to explain what your unique situation looks like and give you the options to make the decisions you want and need.
Love you all, glad to know it wasn't just me who was confused after my child was born! Stay strong. πŸ’–

posted 7 days ago
A MyEndometriosisTeam Member said:

@A MyEndometriosisTeam Member I possibly may, due for my Lap in Sept....I say I may because prior to having my last kid which I had to have a c-section I had never heard of Endo and afterwards is when I started experiencing symptoms 😳

posted 14 days ago
A MyEndometriosisTeam Member said:

Yea and did you get more scar tissue then before? Did you have any organ stuck together? Or did it spread to other organ? Because that what they are telling me when going on but I don’t feel it all the time just random pain here and there but when I got a mri they were saying it have spread to other organs and I’m scared 😳

posted 7 days ago
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