Hi fellow endo warrior here. I came searching for answers cus i had my 2nd endo surgery almost a year ago and ive been experiencing pain in my legs again and 2 days ago i felt like i was going to pass out and then bam my right arm started tremoring so uncontrollably and i also felt it on my face. I was rushed to the hospital and had so many tests done after being there for two days and everything came back normal. Im desperate to see if this also is linked to my endo!!!

Hey girls, exactly same symptoms for over 2 years already…went through all checks including neurology and no answer- the tingling/fast tremor/weird pain onthe front side of my leg is so annoying. Seriously very interested if this can have something similar with endo.. thinking of some alternative medicine already..

I am literally going through this exact same thing… everything you mentioned is identical to me

Sending hugs and loves for your surgery! Keep pushing for answers on your endo pain! I know, it’s literally, a pain lol Unfortunately we have to go through all the wrong drs to find the right ones. I feel this is a never ending battle but you’ve got to refuse to let it win! I do know I have eased some of my symptoms with diet change, no gluten or dairy namely. Red meats are also a trigger for me :(

update:
i had an EMG done- and nothing was suspicious for a lesion or delay from the spine. I have carpal tunnel (i've known that since i was in my 20's)
I am trying to get into neuro.
even though my ANA was neg (60% of SLE patients have negative ANA).
Tingling in my nose, mouth, now to my cheek. (toes and fingers)
i was put on B12 and folate. but had to take myself back off of b12 due to the urinary symptoms
i do see a neurologist thru a headache center- i am seeing her in march- but will need to get into neurology too (for non headache issues).
My fingers and toes get EXTREMELY cold and red (makes me think Raynauds). But also have red cheeks/nose (reminds me of butterfly rash) - but due to masks, no one sees it.
i'm also preparing for a foot/ankle surgery (yay me). when it rains it pours.
Did i mention my labs were off? (WBC high) for no reason- which makes me think its partially endo.