I’ve had 2 previous laps, a hernia repair and full hysterectomy (ovaries kept in) within the last 4 years. My first surgeon botched the job and the second only ablated endo on my pelvic side walls. I’ve done PFT 2x a week, Botox shots, nerve injections, etc..since my last surgery 2 years ago but am still in debilitating pain. My PFT is recommending Ken Sinervo in Atlanta. Has anyone with “DIE” used anyone else and had long term success?

Im thinking about starting GnHR next month.that was some advice i got of a private specialist

An informative article that discusses resources to make endo care more affordable.

I had a laproacopy ablation 2 years ago because of my endometriosis. Now I am back to wear I was but even worse. I can barley eat. When I do eat I get in the worst massive pain in my lower abdomen in my back on my right side and in the middle of my back I don't know what to do anymore I have state insurance and no one not one of these doctors here in Washington State are good with endometrial care. I don't know what to do anymore I have lost so much weight and I am losing more because I don't… read more

Was Diagnosed with endo in April 2018 after a laparoscopy. Everything was going great until about the end of august when I got a flare up. Four months later I’m still in a flare up. Bleeding every single day. Heavily. I was put on a higher dose of continuous birth control in December but hasn’t worked. I am miserable. My doctor just retired so now I have to find a new one and am having trouble finding a new one. I am soooo depressed because of this. No one professionally has talked to me about… read more

Hi everyone! Two days ago I officially found out I have stage 4 endometriosis after getting laparoscopic surgery. Healing process has been okay, and I’m finally starting to eat/ drink again. As of last night- I believe it really started to hit me. You see, I’m someone who experienced no pain whatsoever. But when the doctors found a complex 6.5 cm cyst on my right ovary about 8 months ago and decided to monitor it (sure enough it got worse) that’s when the confusion for me started. They mentioned… read more

Currently 30+ wks pregnant and in agonizing pain with this pregnancy. Feels exactly like my endo flareups but far more intense and chronic. My OB refuses to accept that my pregnancy may have worsened my Endo and thinks my pain is all in my head. I am limited on what I can take/do for my pain since I am pregnant. Seeking recs for a caring, compassionate, well trained in all things Endo OBGYN to get a 2nd opinion from. I should note that prior to this current pregnancy I have had the prior… read more

i'm gluten free and when i eat gluten or have a flare up even without eating it, my fingers/hands will swell up and feel very tight when moving them. my joints will hurt, etc. was wondering if that could happen during an endo flare up?