So at my 1 year post op appt I told my surgeon/OBGYN I was having some pain in my kidney area and blood in my stool and urine once a month around the time I would have my period if I hadn’t had a hysterectomy. She said she was limited to only being able to look at the pelvic area so when she did the diagnostic laparoscopy she didn’t go anywhere near those areas. Who do you see to get diagnosed with bowel endo??
Ok so update incase anyone else has this question, I got a 3D vaginal ultrasound done today. They were able to see my ovary is stuck to my bowels. They also said it’s a great way to see what organs may be fused together and you can actually see endo growth on the ultrasound (info on the internet says you can’t see endo with an ultrasound so this was news to me).
That’s where I’m frustrated, I have no endo specialists in my area 😅
I would also recommend googling to research endometriosis specialists in your area. Just so you have an idea of who is out there and what your options are. For me, my obgyn referred me to a terrible specialist, so I had to look on my own and I wasted time in pain waiting for appointments/calls back. Just try to be your own advocate. Good luck! :-)
Thanks for the detailed response!! I have an appt with my family dr in a few weeks, hopefully she can refer me to someone
I originally had gone to a gastro specialist who had me get an MRI with contrast and that's how they knew how bad the scarring was. I had severe endo scarring where my small intestine and large intestine met. I had searched for a surgeon that specialized in endo and he took out the scar tissue everywhere else and had a colo-rectal surgeon come in to take out the part of my intestines the were affected (including my appendix). This was all done while I was under a few hours.