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A MyEndometriosisTeam Member asked a question πŸ’­
London, UK
April 18, 2023
 · 
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Answer Summary

Members honestly discussed whether repeat laparoscopy surgeries are worthwhile given that endometriosis inevitably returns, with many sharing... Read more

Members honestly discussed whether repeat laparoscopy surgeries are worthwhile given that endometriosis inevitably returns, with many sharing that while surgery provided relief ranging from months to several years, the tissue does grow back and multiple procedures become necessary over time. Several members raised concerns about fertility, explaining that endometriosis and surgical scar tissue can block fallopian tubes, but IVF remains a hopeful option even when natural conception becomes difficult. A recurring theme was the emotional weight of choosing surgery when there is no cure, the financial strain of finding skilled specialists, and the shared determination to keep fighting for relief and a better quality of life despite the uncertainty.

A MyEndometriosisTeam Member

God damn
I feel so bad for you
I hope you can find a doc how will help you sort things out
Honestly I would travel anywhere but everyone wants the money these days for any service

May 6, 2023
A MyEndometriosisTeam Member

No lie it's a quick fix yes everything returns. 😌 it's a web πŸ•Έ that just keeps growing and coming back.

April 18, 2023
A MyEndometriosisTeam Member

I hope things get better for you soon sis and for all of us xx

May 12, 2023
A MyEndometriosisTeam Member

Thank you! Yeah, that's exactly the problem. I've been unemployed the past few months. We're scraping by, but can't exactly cover treatment if Medicare doesn't. Even 1 video appt with the doc I'm interested in from NY (I'm from PA) is $250.

May 11, 2023
A MyEndometriosisTeam Member

Yeah, that's exactly where I'm at with surgery and pretty much every doc at this point refuses to touch me. They're legit afraid they'll fuck it up and the pain will be worse than it is. It's been 8 years since my hysterectomy, so should (theoritically) need excision surgery anytime now. I have a rectal prolapse now too, though, that every surgeon I've seen is scared to fix cause I'm in so much pain as it is. There's one doc I really want to see, but he's in NY and I'm in PA. A video visit costs about $250 if insurance decides not to cover it and I don't have the $ upfront to just hope insurance will reimburse me eventually. Surgery or no surgery is such a bitch of a choice! It seems like either way will screw me. 🀣😭

May 6, 2023

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