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Do You Track Your Endometriosis Symptoms For Your Doctor? If So, What Method Do You Use (e.g., App, Journal)?

MyEndometriosisTeam asked a question πŸ’­
San Francisco, CA
May 16, 2023
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A MyEndometriosisTeam Member

I’ve tried a few, but the one that I’ve stuck with the longest is called Phendo. It was created by endo researchers at Columbia university so hopefully the data they collect from it will lead to more understanding and maybe even some better treatments.

May 18, 2023 (edited)
A MyEndometriosisTeam Member

My sister bought me a physical journal for Endometriosis symptoms where I can track the date, pain level, symptoms, suspected triggers, relief/medication notes and a diagram called pain location with the image of a person so I can indicate where on my body I'm feeling the pain.

May 16, 2023
A MyEndometriosisTeam Member

I personally use the Flo app as my tracking device per se. I write down all my symptoms there and whenever I feel anything is wrong in the moment I email my gynaecologist.

May 16, 2023
A MyEndometriosisTeam Member

I also use Flo and a journal app but also I made a detailed pain reference document, detailing at first any pain when it comes up, it's location, a description as detailed as I can achieve and how long it's lasted if its prolonged. I do this because of the 'Endo-nesia', where after something passes or eases up,. your mind somehow wipes the memory of either how badnit was or that itnwas there at all until it popa up again, i.e. hot poker pains, as my wonderful gp has called then, in very intrusive areas if you catch my drift. Proctalgia fugax is the closest thing I've found that sounds similar. But once you've listed all the pains etc you feel just start tracking how often you feel them, is it getting progressively worse, better? I'd also add just a basic general female body/anatomy diagram to help plot where you at leat think the pains are occuring.
I really think this would be super helpful for seeing a gynae or even your GP, only in my case the consultant didn't even read the full 'epistle' as he called it before my surgery, and 7 months post op, I have a feeling that I'd be in a better place if he had.

Anyway hope this helps anyone at all πŸ’›

May 21, 2023
A MyEndometriosisTeam Member

I use my health app on my iPhone. I track and add notes.

May 16, 2023

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