After 18 years of undiagnosed endometriosis - 24/7 acute pain (often resulting in the use of an open appointment system at my local hospital for morphine injections)
I used daily Volterol suppositories, and Zoladex injections to stop my periods to try to control the pain…….,
I am now pain free!!!
The only solution was a radical hysterectomy!!!
My Uterus, fallopian tubes, ovaries and cervix were all removed.
My uterus was retroverted and attached to my anus, my bowels were full of adhesions, my bladder was attached to my pelvic wall and flaking - it was also discovered during the operation that I had adenomyosis as well as endometriosis- I would never have been able to conceive. I tried 3 rounds of IVF, but the pain inbetween each attempt was unbearable- I eventually decided on radical surgery - I woke up after the operation and the pain was gone!!!! Just like magic.
Despite the sadness of knowing I would never conceive - the pure relief of a pain free life was incredible.
The removal of the ovaries was by far the most important factor - reducing the production of hormones which encouraged growth of endometriosis. I have never regretted the operation and by trying IVF I also have no regrets at trying my best.

Like most, mine too depends on the day. Today is not a good day as I have very bad ovulation pain which is crippling but a heated pad helps soothe it. Other symptoms include, Bloating, Discomfort in abdomen, Brain fog, Fatigue/ exhaustion, Poor sleep quality, Pelvic / hip pain (especially during a period), Heavy periods, Nausea, Headaches, Constipation/ diarrhoea, Muscle and joint pain, Night sweats, Bladder pressure / Frequent urination.
Hot baths, heat pads, relaxation, good diet all help but don’t make the symptoms go away. I also take some Endo complex and Tumeric supplements from Wild Nutrition which I find very good. Wish there was a magic wand for us all ❤️

Depends on the day?. I am rubbish first thing on a morning and need pain meds to get out of bed. On my worse days I feel like I have flu!. Every inch of my body aches. It hurts when I pass urine or a bowel movement. But that’s every day. I am dizzy and feel nauseous. I feel numb!. I started on anti depressants as people were I use to work didn’t understand and treated terrible!. Saying I was negative all the time and always complaining. So I stopped talking to people and isolated myself from lost of things I would previously enjoy. Now since my diagnosis in 2011. I am older and wiser well I hope?. And I roll with the punches!!. I take no crap off anyone. And if people complain or say mean things and cut them out of my life. Those people I don’t need in my life no1 does. They’re ignorant and lack awareness that just because they don’t see other people’s struggles doesn’t mean it’s not true. I take my meds well I take my pain meds everyday often forget the others. But once but my anxiety and low mood creep up and then I remember. But I am a strong person. And believe what doesn’t kill me only makes me stronger. I am kind to myself and I know I am not alone.

Depends on the day, but on my bad days, it burns when I pee. I get severe headaches, nauseousness, stabbing pains in the abdomen, bloating, constipation/diarreah and extreme tiredness.

Some days are good other days I really struggle to do everything,extreme fatigue and bloating sometimes insomnia, it's really a good feeling when am not having flare ups,I get to do so much.