Quick Links
Resources
About MyEndometriosisTeam
Powered By
Terminal meaning there is more endo in my pelvic and abdomen than anything else. If they removed it all I'd fall apart LOL. If I were a dog I would have been put down a long time ago. Seriously though, my surgeon refuses to take any more out, the risk of damaged organs and more scar tissue and adhesions means I just have to live like this. It is also growing through and into my abdominal muscle
My pain is severe everyday and I can't look forward more than a few days in the future as I can't… read more
That's awful, I'm sorry.
Yes, I have two children but wanted more.
I'm so sorry to hear that Nina. It is good to know you aren't alone though... My Dr seems to have written me off, I'm in the "too hard basket" I had everything removed uterus, tubes, cervix, both ovaries so I'm also in surgical menopause. I was lucky enough to have children, with the help of IVF. Do you have (or want) kids?
Hi! I believe mine is terminal too. I am 42 and I have been living with it for 16 years. I had a hysterectomy in 2014, everything was removed except 1 ovary and I have been on the same medication for almost 10 years and I am still suffering. I pray for your strength on this journey.
Continue with Facebook
Sign up with your email
Your privacy is our priority. By continuing, you accept our
Terms of use, and our
Health Data and
Privacy policies.
