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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Doctor saw bowel endometriosis during robotic surgery!

A MyEndometriosisTeam Member asked a question 💭
Hunlock Creek, PA

How scared should i be!? What does this mean going forward? Said we'll talk at 2 week followup.

March 17
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Reactions
A MyEndometriosisTeam Member

Hernia was fixed. The belly button incision looks large. Said mostly everything was on right side.

March 17
A MyEndometriosisTeam Member
March 17
A MyEndometriosisTeam Member

Hey! I'd ask how you're feeling but am pretty sure I know 😣🫩😑. I have bowel Endo. I also have a rare twisty condition that I was born with that already makes movements unpleasant to painful. Since being on the mini pill, Endo symptoms aren't debilitating. I also take a supplement to help balance hormone irregularity & recently ran out while waiting for the next shipment to come; the bloating was much worse. Hopefully they were able to mend hernia & leave you in a better condition; I know it'll take time to heal before you can assess. May you be blessed with the luck of the Irish 🍀 Slaintè

March 17
MyEndometriosisTeam

How should you approach a diagnosis of bowel endometriosis discovered during surgery?

First, take a breath. While finding bowel endometriosis can feel overwhelming, it's actually treatable and many people find relief with proper management. Bowel endometriosis occurs in about 5-12% of people with endometriosis, so you're Show Full Answer

How should you approach a diagnosis of bowel endometriosis discovered during surgery?

First, take a breath. While finding bowel endometriosis can feel overwhelming, it's actually treatable and many people find relief with proper management. Bowel endometriosis occurs in about 5-12% of people with endometriosis, so you're not alone in this.

What bowel endometriosis means is that endometrial-like tissue has grown on or near your intestines, most commonly affecting the sigmoid colon and rectum. This can range from superficial (on the outer surface) to deeper invasion into the bowel wall.

Here's what you might experience going forward:

* Bowel symptoms like painful bowel movements, constipation, or diarrhea
* Continued pelvic pain
* Possible bloating or nausea
* Pain during your period that may affect bowel function

The good news is that treatment options exist. Your doctor may recommend:

* Hormonal medications to reduce lesion activity
* Pain management strategies
* In some cases, additional surgery if lesions need removal

Your 2-week follow-up is crucial. Your surgeon will explain exactly what they saw, where the endometriosis is located, what was done during surgery, and what your treatment plan should be moving forward.

Many members have shared that while bowel endometriosis requires careful management, they've found relief through treatment. The outlook is generally positive with proper care.

March 17

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Has anyone got relief from bowel endometriosis with ovary removal?

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How were you diagnosed with Endo? Surgery or other?

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