Sharing my experience because it is somewhat similar. I had an hysterectomy in 2022 and I'm the same age as you. I have one ovary left. After still experiencing monthly light bleeding from my remaining cervix, the gynaecologist advised me to take the minipill so remaining endometriosis does not grow inside, so that's what I take. Unfortunately, I still have belly pain, which I think is in my bowels. Gynaecological examinations show no visible growths, so I'll leave it at that. I try to eat generally healthy, but no special diet. I hardly use pain killers. It's just very uncomfortable sometimes, but I can live with it. Sometimes it feels strange that I don't know what's exactly goin on in my belly, but I'm not as worried as you are, it seems. Perhaps regular ultrasounds can give some reassurance (it helped for me), and you could consider the minipill. So, more or less what the Team says :)

Same situation. I had endo on my rectum and 3 years later after having hysterectomy and leaving ovaries intact I suspect it has grown back. Going in for surgery October 2026. Scared to have ovaries removed. Only 41

I appreciate your reply. Teresamiddleton

I too, look like im leaning towards ovary removal in January. As of right now, it looks like my insurance wont cover orlissa or myfembree. I dont have an extra $250 to $1500 a month medication. Especially if side effects are too extreme and I cant take it. The mental health side effects and bone loss are both super scary. Even my pharmacist mentioned the hair loss to me and stated I've only seen mostly cancer patients take these drugs.

I really thought she'd ease my nerves but has not. So hard worrying about the financial aspect while trying to recover. All the time knowing, the battle isn't over and the fight is life long.

Many blessings to all!

Arac1013, I was on Orlissa for about a year and suffered with extreme migraines while on it. I also had so much hair fall I thought I was going to go bald. I couldn't deal with the migraines...I was having them every single day to the point it was affecting my ability to work.

I feel like I'm able to handle the hot flashes and night sweats so much better than what I went through on Orlissa. I was worried about going into surgical menopause but honestly, this is much better than the pain and everything else I've been going through. I you find this information helpful. I know the surgical route isn't for everyone...it just seemed like the only way for me.

Thank you for your kind words and I hope you find relief from your pain! ♥️