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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Was it helpful to see an endo specialist after being diagnosed? What resources did they have that you didn’t get elsewhere?

A MyEndometriosisTeam Member asked a question 💭
Providence, RI

I was diagnosed over the summer through my regular obgyn (who is great and has supported me a lot). I had a laparoscopy to diagnose but they didn’t treat or remove anything and the lesions were mild. I haven’t been able to see a specialist yet but I’ve been feeling stuck and running out of things to try with my obgyn having limited resources. I’m also overwhelmed with trying to research and navigate all the information and suggestions on my own but it seems so hard to find a specialist. I think… read more

April 27
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MyEndometriosisTeam

Seeing an endo specialist is absolutely worth pursuing, and that feeling of being "stuck" is something so many people with endometriosis can relate to. Your instinct to want a real management plan is a good one to trust.

Specialists bring a deeper, more focused knowledge of endometriosis that general OBGYNs — even great Show Full Answer

Seeing an endo specialist is absolutely worth pursuing, and that feeling of being "stuck" is something so many people with endometriosis can relate to. Your instinct to want a real management plan is a good one to trust.

Specialists bring a deeper, more focused knowledge of endometriosis that general OBGYNs — even great, supportive ones — simply may not have. Some key differences people have found include:

- More thorough review of imaging and surgical findings
- A clearer staging and treatment plan tailored specifically to endo
- Familiarity with a wider range of treatment options
- More experience recognizing how endo symptoms present and progress A MyEndometriosisTeam member shared that after seeing nine doctors who never mentioned endo, they finally saw a specialist who scheduled a laparoscopy at the very first visit. Another member was told by a specialist they had stage 4 endo — after a previous gynecologist had dismissed them entirely.

It won't always be a dead end. It can genuinely be the turning point. A few tips to help navigate the process:

- Keep a detailed symptom and pain diary to bring to appointments
- Don't be afraid to ask for referrals or seek a second opinion
- Look beyond general health websites for endo-specific resources
- Be honest with any new doctor about what has and hasn't worked so far

Advocating for yourself can feel exhausting, but having the right specialist in your corner can make a real difference in getting a plan that actually works for you.

April 27

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