Endometriosis

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The UNSPOKEN truth behind ENDO.. Opiates.

The UNSPOKEN truth behind ENDO.. Opiates.

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made… read more

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A MyEndometriosisTeam Member said:

I just really wished I could be able to take tramdol or ibpropin

posted 3 months ago
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Surgery and IUD

Surgery and IUD

I am having surgery to remove the scar tissue and while I am asleep, they want to put an IUD in as well. I am super nervous about the IUD and want to know if there are side effects, and if the IUD is a good route to go.

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A MyEndometriosisTeam Member said:

I have the marina and it's amazing for periods I hardly bleed at all now. But I still get a fair bit of pain tho I seem to go around 6 weeks with just… read more

posted 15 days ago
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Does anyone have endo symtoms all month?

Does anyone have endo symtoms all month?

My doctor says its impossible to have endometriosis symptoms everyday. He says the pain should only be on my period. Guaranteed its worse on my period but I'm in pain and exhausted everyday :( does anyone else suffer everyday of the month and if so how are you managing things? I'm really struggling to get up on a morning and carry out my daily routine, I feel like if I don't at least sort out my fatigue some how I will lose my career any advice would be great. Thanks in… read more

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A MyEndometriosisTeam Member said:

This is everythibg I do as well, excersing does help and most of the time you have to force yourself to do it, I also have pcos and have been able to… read more

posted about 2 months ago
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endometriosis pain vs. pregnancy pain

endometriosis pain vs. pregnancy pain

I have always been very curious to know the difference between endometriosis pain and pregnancy pain. After I heal from my surgery on Thursday I will be trying to get pregnant. I would like to know what to expect when it comes to labor pain. It may sound weird but I feel like once I go though labor I can more accurately describe my pain level to people. I can say that it feels like someone is stabbing my right ovary with a dull red hot icepick but I have never actually been… read more

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A MyEndometriosisTeam Member said:

Well I found it similar to the intense pain they we do get or when I have a cyst burst pcos as well as endo. But labour is full on pain but we have… read more

posted about 2 months ago
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Does anyone use marijuana/CBD oil/edibles for pain relief and if so, how significant a help is it?

Does anyone use marijuana/CBD oil/edibles for pain relief and if so, how significant a help is it?

I have a vaporizer that I use on extremely bad days and a family member who is a chef has begun working with edibles. So far I've found vaporized CBD oil most effective without the red eyes and "stoned" feeling, but am new to it's medicinal uses and would love to hear others experiences with various medicinal marijuana products. Thank you in advance as I know this particular topic can be "taboo"

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A MyEndometriosisTeam Member said:

Hi did you have a question you wanted to ask? Im not a guru or a professional but i can offer any support you may need :)

posted 6 months ago
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Has anyone else had endometriosis removed and still suffered the same amount of pain and heavy bleeding as before the surgery?

Has anyone else had endometriosis removed and still suffered the same amount of pain and heavy bleeding as before the surgery?

Endometriosis was removed 1 year ago, there has been no change in my pain or bleeding. Please read 'My Story' for more detail. Please help.

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A MyEndometriosisTeam Member said:

I had the surgery for endometriosis and I had surgery and had to get a hysterectomy.. Another girl had in next bed but didn’t get the hysterectomy and… read more

posted 7 months ago
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Pain management

Pain management

What are your thoughts on medical marijuana for pain management? I live in NY and they are opening 3 dispensaries in the works just looking at different options.

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A MyEndometriosisTeam Member said:

What do u take?

posted 2 months ago
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Has anyone had pain come back very shortly after a Laparoscopy?

Has anyone had pain come back very shortly after a Laparoscopy?

I had Laparoscopy surgery 6 weeks ago. They lysed a lot of adhesions that were on the bowel. I was feeling fine but the last week I am experiencing pain again. I have been told that they will come back but I was wondering if anyone has experienced this?

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A MyEndometriosisTeam Member said:

That's so true for me also I had the hysterectomy salpingo oophorectomy and still in pain. I have a endo belly now presently on Lupron 11.25 don't think… read more

posted 5 months ago
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bowel endometriosis

bowel endometriosis

Reading about everyone's experiences I see that many people have been diagnosed with bowel endometriosos. I was just wondering how this was diagnosed? I have been having GI symptoms ever since I was diagnosed with endometriosis and my doctor recommended seeing a surgeon for a colonoscopy.I'm a bit apprehensive because she mentioned things like ulcerative colitis. Any feedback about any of your experiences would be appreciated:)

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A MyEndometriosisTeam Member said:

Sounds like you might have a lot of the same problems I have. May I ask what you are doing for pain and what do your doctors say?

posted 10 months ago
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When were you diagnosed and what age? any misdiagnoses or comments from your doctors?

When were you diagnosed and what age? any misdiagnoses or comments from your doctors?

Hi there, i was just wondering how long it took for some of you ladies to be diagnosed for me it was 6 years and am currently sueing my old womans health doctor for negligence. She kept saying it was normal period pains and irregular period and i was normal. I just want to hear some of my endosisters stories so can get an idea on what is normal and what isnt for waiting. Also what ages were you diagnosed.

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A MyEndometriosisTeam Member said:

i'm still fighting to get a diagnosis, it may not be endometriosis but there definitely isn't something quite right and the symptoms match up. All the… read more

posted 9 months ago
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