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The UNSPOKEN Truth Behind ENDO.. Opiates.

The UNSPOKEN Truth Behind ENDO.. Opiates.

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made anyone feel uncomfortable… read more

posted May 31, 2015 (edited)
A MyEndometriosisTeam Member

Yes! I get told to take Tylenol and that I'm exaggerating all the time. It brings me to tears if I even talk about it much because I know I am a strong person. I hate being seen as weak. I know so… read more

posted April 4, 2021

Surgery And IUD

Surgery And IUD

I am having surgery to remove the scar tissue and while I am asleep, they want to put an IUD in as well. I am super nervous about the IUD and want to know if there are side effects, and if the IUD is a good route to go.

posted February 16, 2016
A MyEndometriosisTeam Member

While many of my friends have had a positive experience with IUDs, I had to get it removed 3 months after insertion. It gave me horrible pain during my periods and even during the test of the cycle y… read more

posted November 5

Does Anyone Have Endo Symtoms All Month?

Does Anyone Have Endo Symtoms All Month?

My doctor says its impossible to have endometriosis symptoms everyday. He says the pain should only be on my period. Guaranteed its worse on my period but I'm in pain and exhausted everyday :( does anyone else suffer everyday of the month and if so how are you managing things? I'm really struggling to get up on a morning and carry out my daily routine, I feel like if I don't at least sort out my fatigue some how I will lose my career any advice would be great. Thanks in advance XX

posted February 22, 2016
A MyEndometriosisTeam Member

I find that Doctors usually dismiss what you are saying and think they know better
We are the survivors of this nasty condition and living it everyday of our lives
They have no idea about the… read more

posted November 5

Endometriosis Pain Vs. Pregnancy Pain

Endometriosis Pain Vs. Pregnancy Pain

I have always been very curious to know the difference between endometriosis pain and pregnancy pain. After I heal from my surgery on Thursday I will be trying to get pregnant. I would like to know what to expect when it comes to labor pain. It may sound weird but I feel like once I go though labor I can more accurately describe my pain level to people. I can say that it feels like someone is stabbing my right ovary with a dull red hot icepick but I have never actually been stabbed so, I do not… read more

posted August 8, 2016
A MyEndometriosisTeam Member

Well I found it similar to the intense pain they we do get or when I have a cyst burst pcos as well as endo. But labour is full on pain but we have this.. We are woman after all. 👍😘
P.s yes it sucks… read more

posted July 9, 2019

Does Anyone Use Marijuana/CBD Oil/edibles For Pain Relief And If So, How Significant A Help Is It?

Does Anyone Use Marijuana/CBD Oil/edibles For Pain Relief And If So, How Significant A Help Is It?

I have a vaporizer that I use on extremely bad days and a family member who is a chef has begun working with edibles. So far I've found vaporized CBD oil most effective without the red eyes and "stoned" feeling, but am new to it's medicinal uses and would love to hear others experiences with various medicinal marijuana products. Thank you in advance as I know this particular topic can be "taboo"

posted July 16, 2015
A MyEndometriosisTeam Member

I use medical marijuana right now too and it def is the only thing that I feel like actually helps me… Not sure where you are from or the laws but hopefully you can get some and it helps… I like… read more

posted 1 day ago

Visanne - Symptoms After Stopping Visanne?

Visanne - Symptoms After Stopping Visanne?

Hi all,

I've been taking Visanne for a year now and doctor has said I can stop it. How long did it take for your period to return after stopping it? And have you experienced any other symptoms? I've been off it for 2 weeks now. No period yet, but I've had breast sensitivity, increased appetite and increased libido. I would love to hear your experiences!

posted March 4, 2017
A MyEndometriosisTeam Member

Hani your period will start 1 month after you stopped taking Visanne. I stopped it last month and my period came back. Decided to go back on Visanne as it helped with the pains and stop the estrogen… read more

posted November 19

When Were You Diagnosed And What Age? Any Misdiagnoses Or Comments From Your Doctors?

When Were You Diagnosed And What Age? Any Misdiagnoses Or Comments From Your Doctors?

Hi there, i was just wondering how long it took for some of you ladies to be diagnosed for me it was 6 years and am currently sueing my old womans health doctor for negligence. She kept saying it was normal period pains and irregular period and i was normal. I just want to hear some of my endosisters stories so can get an idea on what is normal and what isnt for waiting. Also what ages were you diagnosed.

posted January 21, 2016
A MyEndometriosisTeam Member

Same here, I had intense pain from first period at 13 and highly irregular bleeding. Doctors shrugged it off. After 3 gynaes and many GPS, I finally found a gynae who actually listened and told me… read more

posted April 3

Pain Management

Pain Management

What are your thoughts on medical marijuana for pain management? I live in NY and they are opening 3 dispensaries in the works just looking at different options.

posted August 17, 2015
A MyEndometriosisTeam Member

What do u take?

posted June 12, 2019

Is It Endo? The Game Show Where We Try To Decide If It's Just Endo Screwing Up Our Day, Or If There's More Going On...

Is It Endo? The Game Show Where We Try To Decide If It's Just Endo Screwing Up Our Day, Or If There's More Going On...

Headache, severe dizziness, pounding heart, drop in body temperature, large wave of fatigue. Also nausea and a bit of loopy-ness, if the heading wasn't any indication. Google says that I either have an arrhythmia or I'm having a heart attack...Any guesses? Your guesses are as good as, or better than, mine.

posted February 28, 2020
A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member, the vaccines don't work. And now the Omicron vax is being released with NO trials.

I am sick and tired of being lied to!

posted September 2

Hi Everyone, I'm About To Ask A Very Personal Question And I Don't Expect Anyone To Answer.

Hi Everyone, I'm About To Ask A Very Personal Question And I Don't Expect Anyone To Answer.

If you aren't embarrassed by my question I'd appreciate knowing if anyone else has the same experience. I have issues with having sex, the majority of the time it makes me feel sick in my stomach, I luckily have a very understanding bf. Sometimes when I feel that internal sex will be to much we go for the external pleasure (clitoris). But even this causes pain sometimes. Does this happen to anyone else? My doctors are very coy with giving me answers to anything.

posted October 30, 2017
A MyEndometriosisTeam Member

Unfortunately, laparoscopy it`s not the answer. Everyone is different. You are very lucky that it helped you, there are some women that had it done and they are still in pain :(

posted June 21, 2021
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