Connect with others who understand.

sign up log in
About MyEndometriosisTeam

Endometriosis

Questions + Answers

Don't see your question? ask question
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

The UNSPOKEN Truth Behind ENDO.. Opiates.

The UNSPOKEN Truth Behind ENDO.. Opiates.

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made anyone feel uncomfortable… read more

A MyEndometriosisTeam Member said:

Yes! I get told to take Tylenol and that I'm exaggerating all the time. It brings me to tears if I even talk about it much because I know I am a strong person. I hate being seen as weak. I know so… read more

posted 6 months ago

Surgery And IUD

Surgery And IUD

I am having surgery to remove the scar tissue and while I am asleep, they want to put an IUD in as well. I am super nervous about the IUD and want to know if there are side effects, and if the IUD is a good route to go.

A MyEndometriosisTeam Member said:

I also have a Mirena IUD and get horrible endo flare ups from it. I feel it is making flare ups worse. I am going to be getting mirena taken out soon and trying a different method for birth control.

posted over 1 year ago

Does Anyone Have Endo Symtoms All Month?

Does Anyone Have Endo Symtoms All Month?

My doctor says its impossible to have endometriosis symptoms everyday. He says the pain should only be on my period. Guaranteed its worse on my period but I'm in pain and exhausted everyday :( does anyone else suffer everyday of the month and if so how are you managing things? I'm really struggling to get up on a morning and carry out my daily routine, I feel like if I don't at least sort out my fatigue some how I will lose my career any advice would be great. Thanks in advance XX

A MyEndometriosisTeam Member said:

ALL MONTH LONG!

I see lots of people posting about flair ups, and I have those. But, the in between is just hurt. I am also scared about not being able to continue in my work and in my normal… read more

posted 6 months ago

Endometriosis Pain Vs. Pregnancy Pain

Endometriosis Pain Vs. Pregnancy Pain

I have always been very curious to know the difference between endometriosis pain and pregnancy pain. After I heal from my surgery on Thursday I will be trying to get pregnant. I would like to know what to expect when it comes to labor pain. It may sound weird but I feel like once I go though labor I can more accurately describe my pain level to people. I can say that it feels like someone is stabbing my right ovary with a dull red hot icepick but I have never actually been stabbed so, I do not… read more

A MyEndometriosisTeam Member said:

Well I found it similar to the intense pain they we do get or when I have a cyst burst pcos as well as endo. But labour is full on pain but we have this.. We are woman after all. 👍😘
P.s yes it sucks… read more

posted about 2 years ago

Does Anyone Use Marijuana/CBD Oil/edibles For Pain Relief And If So, How Significant A Help Is It?

Does Anyone Use Marijuana/CBD Oil/edibles For Pain Relief And If So, How Significant A Help Is It?

I have a vaporizer that I use on extremely bad days and a family member who is a chef has begun working with edibles. So far I've found vaporized CBD oil most effective without the red eyes and "stoned" feeling, but am new to it's medicinal uses and would love to hear others experiences with various medicinal marijuana products. Thank you in advance as I know this particular topic can be "taboo"

A MyEndometriosisTeam Member said:

I have never tried anything like this but would love a suggestion to help with the pain, that doesn't make me too drowsy or anything and that I could possibly buy online? otherwise I think I would… read more

posted 10 months ago

When Were You Diagnosed And What Age? Any Misdiagnoses Or Comments From Your Doctors?

When Were You Diagnosed And What Age? Any Misdiagnoses Or Comments From Your Doctors?

Hi there, i was just wondering how long it took for some of you ladies to be diagnosed for me it was 6 years and am currently sueing my old womans health doctor for negligence. She kept saying it was normal period pains and irregular period and i was normal. I just want to hear some of my endosisters stories so can get an idea on what is normal and what isnt for waiting. Also what ages were you diagnosed.

A MyEndometriosisTeam Member said:

I had the same thing I finally got my real medical records that banner kept from me for 10 years

posted about 1 year ago

Pain Management

Pain Management

What are your thoughts on medical marijuana for pain management? I live in NY and they are opening 3 dispensaries in the works just looking at different options.

A MyEndometriosisTeam Member said:

What do u take?

posted over 2 years ago

Hi Everyone, I'm About To Ask A Very Personal Question And I Don't Expect Anyone To Answer.

Hi Everyone, I'm About To Ask A Very Personal Question And I Don't Expect Anyone To Answer.

If you aren't embarrassed by my question I'd appreciate knowing if anyone else has the same experience. I have issues with having sex, the majority of the time it makes me feel sick in my stomach, I luckily have a very understanding bf. Sometimes when I feel that internal sex will be to much we go for the external pleasure (clitoris). But even this causes pain sometimes. Does this happen to anyone else? My doctors are very coy with giving me answers to anything.

A MyEndometriosisTeam Member said:

Unfortunately, laparoscopy it`s not the answer. Everyone is different. You are very lucky that it helped you, there are some women that had it done and they are still in pain :(

posted 3 months ago

Has Anyone Had Pain Come Back Very Shortly After A Laparoscopy?

Has Anyone Had Pain Come Back Very Shortly After A Laparoscopy?

I had Laparoscopy surgery 6 weeks ago. They lysed a lot of adhesions that were on the bowel. I was feeling fine but the last week I am experiencing pain again. I have been told that they will come back but I was wondering if anyone has experienced this?

A MyEndometriosisTeam Member said:

That's so true for me also I had the hysterectomy salpingo oophorectomy and still in pain. I have a endo belly now presently on Lupron 11.25 don't think it's working, seriously thinking about… read more

posted over 2 years ago

Bowel Endometriosis

Bowel Endometriosis

Reading about everyone's experiences I see that many people have been diagnosed with bowel endometriosos. I was just wondering how this was diagnosed? I have been having GI symptoms ever since I was diagnosed with endometriosis and my doctor recommended seeing a surgeon for a colonoscopy.I'm a bit apprehensive because she mentioned things like ulcerative colitis. Any feedback about any of your experiences would be appreciated:)

A MyEndometriosisTeam Member said:

Sounds like you might have a lot of the same problems I have. May I ask what you are doing for pain and what do your doctors say?

posted almost 3 years ago
Already a Member? Log in
MyEndometriosisTeam My endometriosis Team

Thank you for signing up.

close