What's One Thing About Endometriosis You Feel Isn't Talked About Enough? | MyEndometriosisTeam

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What's One Thing About Endometriosis You Feel Isn't Talked About Enough?
A MyEndometriosisTeam Member asked a question 💭
posted February 21
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A MyEndometriosisTeam Member

I don’t know if anybody else has it or if anybody talks about it but when I have an endo flareup, I get a pain in my boob

posted August 2
The UNSPOKEN Truth Behind ENDO.. Opiates.
A MyEndometriosisTeam Member asked a question 💭

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made anyone feel uncomfortable… read more

posted May 31, 2015 (edited)
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A MyEndometriosisTeam Member

A tens machine has helped my back pain related to Endo, I've also just tried doing a modified FODMAP diet from my gastroenterologist as I was getting bad flare-ups on my right side near where my ovary… read more

posted August 31
Does Anyone Have Endo Symtoms All Month?
A MyEndometriosisTeam Member asked a question 💭

My doctor says its impossible to have endometriosis symptoms everyday. He says the pain should only be on my period. Guaranteed its worse on my period but I'm in pain and exhausted everyday :( does anyone else suffer everyday of the month and if so how are you managing things? I'm really struggling to get up on a morning and carry out my daily routine, I feel like if I don't at least sort out my fatigue some how I will lose my career any advice would be great. Thanks in advance XX

posted February 22, 2016
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A MyEndometriosisTeam Member

I do have pain everyday! I have an endometrial cyst on my left ovary attached to my bowel. I started taking dinogest from last august and thankfully my symptoms ( mainly pelvic pain) was down by 90%… read more

posted June 28
Surgery And IUD
A MyEndometriosisTeam Member asked a question 💭

I am having surgery to remove the scar tissue and while I am asleep, they want to put an IUD in as well. I am super nervous about the IUD and want to know if there are side effects, and if the IUD is a good route to go.

posted February 16, 2016
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A MyEndometriosisTeam Member

I had mirena put in when I had my laparoscopy and I had no side effects. Once I had the mirena removed 7yrs later I experienced the mirena crash until I started the Nuvaring.

posted May 23
Visanne - Symptoms After Stopping Visanne?
A MyEndometriosisTeam Member asked a question 💭

Hi all,

I've been taking Visanne for a year now and doctor has said I can stop it. How long did it take for your period to return after stopping it? And have you experienced any other symptoms? I've been off it for 2 weeks now. No period yet, but I've had breast sensitivity, increased appetite and increased libido. I would love to hear your experiences!

posted March 4, 2017
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A MyEndometriosisTeam Member

Do not take EPO and colagen if you have cyst. They contain a lot of oestrogen.

posted June 1
Endometriosis Pain Vs. Pregnancy Pain
A MyEndometriosisTeam Member asked a question 💭

I have always been very curious to know the difference between endometriosis pain and pregnancy pain. After I heal from my surgery on Thursday I will be trying to get pregnant. I would like to know what to expect when it comes to labor pain. It may sound weird but I feel like once I go though labor I can more accurately describe my pain level to people. I can say that it feels like someone is stabbing my right ovary with a dull red hot icepick but I have never actually been stabbed so, I do not… read more

posted August 8, 2016
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A MyEndometriosisTeam Member

Well I found it similar to the intense pain they we do get or when I have a cyst burst pcos as well as endo. But labour is full on pain but we have this.. We are woman after all. 👍😘
P.s yes it sucks… read more

posted July 9, 2019
Which Supplements Or Vitamins Do You Take?
A MyEndometriosisTeam Member asked a question 💭
posted April 25
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A MyEndometriosisTeam Member

Multivitamin

posted 14 hours ago
In What Ways, If Any, Has Your Endometriosis Affected How You Consume Alcohol?
A MyEndometriosisTeam Member asked a question 💭
posted April 18
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A MyEndometriosisTeam Member

No change with alcohol.

posted 14 hours ago
Does Anyone Use Marijuana/CBD Oil/edibles For Pain Relief And If So, How Significant A Help Is It?
A MyEndometriosisTeam Member asked a question 💭

I have a vaporizer that I use on extremely bad days and a family member who is a chef has begun working with edibles. So far I've found vaporized CBD oil most effective without the red eyes and "stoned" feeling, but am new to it's medicinal uses and would love to hear others experiences with various medicinal marijuana products. Thank you in advance as I know this particular topic can be "taboo"

posted July 16, 2015
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A MyEndometriosisTeam Member

I use medical marijuana right now too and it def is the only thing that I feel like actually helps me… Not sure where you are from or the laws but hopefully you can get some and it helps… I like… read more

posted December 6, 2022
How Did Endometriosis Diagnosis And Treatment Affect Your Relationships?
A MyEndometriosisTeam Member asked a question 💭
posted July 25
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A MyEndometriosisTeam Member

If I'm in too much pain, I have to cancel any plans I have.

posted 14 hours ago
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