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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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The UNSPOKEN Truth Behind ENDO.. Opiates.
A MyEndometriosisTeam Member asked a question 💭

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made anyone feel uncomfortable… read more

posted May 31, 2015 (edited)
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A MyEndometriosisTeam Member

Yes! I get told to take Tylenol and that I'm exaggerating all the time. It brings me to tears if I even talk about it much because I know I am a strong person. I hate being seen as weak. I know so… read more

posted April 4, 2021
Surgery And IUD
A MyEndometriosisTeam Member asked a question 💭

I am having surgery to remove the scar tissue and while I am asleep, they want to put an IUD in as well. I am super nervous about the IUD and want to know if there are side effects, and if the IUD is a good route to go.

posted February 16, 2016
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A MyEndometriosisTeam Member

I had an awful experience. Had mirena fitted and I was in excruciating pain, the only way I could describe it was like being in early labour…but all of the time. I begged them to take it out. It… read more

posted January 17
Does Anyone Have Endo Symtoms All Month?
A MyEndometriosisTeam Member asked a question 💭

My doctor says its impossible to have endometriosis symptoms everyday. He says the pain should only be on my period. Guaranteed its worse on my period but I'm in pain and exhausted everyday :( does anyone else suffer everyday of the month and if so how are you managing things? I'm really struggling to get up on a morning and carry out my daily routine, I feel like if I don't at least sort out my fatigue some how I will lose my career any advice would be great. Thanks in advance XX

posted February 22, 2016
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A MyEndometriosisTeam Member

Definitely yes, my pain is EVERY day. And waaaay worse during parts of my period. With the chest pains, abdominal pains, Headaches, fatigue, etc. A lot of the time I feel so alone. The depression and… read more

posted February 27
What's One Thing About Endometriosis You Feel Isn't Talked About Enough?
A MyEndometriosisTeam Member asked a question 💭
posted February 21
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A MyEndometriosisTeam Member

How any symptom you have that the dr doesn’t want to investigate is put down to endometriosis and your told there’s nothing they can do.

posted 7 hours ago
Endometriosis Pain Vs. Pregnancy Pain
A MyEndometriosisTeam Member asked a question 💭

I have always been very curious to know the difference between endometriosis pain and pregnancy pain. After I heal from my surgery on Thursday I will be trying to get pregnant. I would like to know what to expect when it comes to labor pain. It may sound weird but I feel like once I go though labor I can more accurately describe my pain level to people. I can say that it feels like someone is stabbing my right ovary with a dull red hot icepick but I have never actually been stabbed so, I do not… read more

posted August 8, 2016
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A MyEndometriosisTeam Member

Well I found it similar to the intense pain they we do get or when I have a cyst burst pcos as well as endo. But labour is full on pain but we have this.. We are woman after all. 👍😘
P.s yes it sucks… read more

posted July 9, 2019
Does Anyone Use Marijuana/CBD Oil/edibles For Pain Relief And If So, How Significant A Help Is It?
A MyEndometriosisTeam Member asked a question 💭

I have a vaporizer that I use on extremely bad days and a family member who is a chef has begun working with edibles. So far I've found vaporized CBD oil most effective without the red eyes and "stoned" feeling, but am new to it's medicinal uses and would love to hear others experiences with various medicinal marijuana products. Thank you in advance as I know this particular topic can be "taboo"

posted July 16, 2015
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A MyEndometriosisTeam Member

I use medical marijuana right now too and it def is the only thing that I feel like actually helps me… Not sure where you are from or the laws but hopefully you can get some and it helps… I like… read more

posted December 6, 2022
Visanne - Symptoms After Stopping Visanne?
A MyEndometriosisTeam Member asked a question 💭

Hi all,

I've been taking Visanne for a year now and doctor has said I can stop it. How long did it take for your period to return after stopping it? And have you experienced any other symptoms? I've been off it for 2 weeks now. No period yet, but I've had breast sensitivity, increased appetite and increased libido. I would love to hear your experiences!

posted March 4, 2017
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A MyEndometriosisTeam Member

I have stopped visanne and period started after 4 days from stopping

posted January 31
When Were You Diagnosed And What Age? Any Misdiagnoses Or Comments From Your Doctors?
A MyEndometriosisTeam Member asked a question 💭

Hi there, i was just wondering how long it took for some of you ladies to be diagnosed for me it was 6 years and am currently sueing my old womans health doctor for negligence. She kept saying it was normal period pains and irregular period and i was normal. I just want to hear some of my endosisters stories so can get an idea on what is normal and what isnt for waiting. Also what ages were you diagnosed.

posted January 21, 2016
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A MyEndometriosisTeam Member

Same here, I had intense pain from first period at 13 and highly irregular bleeding. Doctors shrugged it off. After 3 gynaes and many GPS, I finally found a gynae who actually listened and told me… read more

posted April 3, 2022
Pain Management
A MyEndometriosisTeam Member asked a question 💭

What are your thoughts on medical marijuana for pain management? I live in NY and they are opening 3 dispensaries in the works just looking at different options.

posted August 17, 2015
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A MyEndometriosisTeam Member

What do u take?

posted June 12, 2019
Is It Endo? The Game Show Where We Try To Decide If It's Just Endo Screwing Up Our Day, Or If There's More Going On...
A MyEndometriosisTeam Member asked a question 💭

Headache, severe dizziness, pounding heart, drop in body temperature, large wave of fatigue. Also nausea and a bit of loopy-ness, if the heading wasn't any indication. Google says that I either have an arrhythmia or I'm having a heart attack...Any guesses? Your guesses are as good as, or better than, mine.

posted February 28, 2020
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A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member, the vaccines don't work. And now the Omicron vax is being released with NO trials.

I am sick and tired of being lied to!

posted September 2, 2022
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