What's One Thing About Endometriosis You Feel Isn't Talked About Enough? | MyEndometriosisTeam

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7610 questions
What's One Thing About Endometriosis You Feel Isn't Talked About Enough?
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

I get what feels like serious anal cramps for the whole week during my period😑 I know now it’s my guts because of frozen pelvis and it kinda feels cramped the whole time lately but it was kind of… read more

posted December 23, 2023
The UNSPOKEN Truth Behind ENDO.. Opiates.
A MyEndometriosisTeam Member asked a question 💭

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made anyone feel uncomfortable… read more

A MyEndometriosisTeam Member

A tens machine has helped my back pain related to Endo, I've also just tried doing a modified FODMAP diet from my gastroenterologist as I was getting bad flare-ups on my right side near where my ovary… read more

posted August 31, 2023
Does Anyone Have Endo Symtoms All Month?
A MyEndometriosisTeam Member asked a question 💭

My doctor says its impossible to have endometriosis symptoms everyday. He says the pain should only be on my period. Guaranteed its worse on my period but I'm in pain and exhausted everyday :( does anyone else suffer everyday of the month and if so how are you managing things? I'm really struggling to get up on a morning and carry out my daily routine, I feel like if I don't at least sort out my fatigue some how I will lose my career any advice would be great. Thanks in advance XX

A MyEndometriosisTeam Member

I do have pain everyday! I have an endometrial cyst on my left ovary attached to my bowel. I started taking dinogest from last august and thankfully my symptoms ( mainly pelvic pain) was down by 90%… read more

posted June 28, 2023
Surgery And IUD
A MyEndometriosisTeam Member asked a question 💭

I am having surgery to remove the scar tissue and while I am asleep, they want to put an IUD in as well. I am super nervous about the IUD and want to know if there are side effects, and if the IUD is a good route to go.

A MyEndometriosisTeam Member

I have had the mirena but honestly I think it al made my Endo worse.. after the mirena I had a time without hormones and ovulation was less painful I think but menstruation pain got worse. After they… read more

posted December 23, 2023
What Endometriosis Symptoms Do You Have That You Didn’t Expect?
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

HORRIBLE IBS and constipation. Endo Belly...

posted April 11
Anyone Taking Visanne Have Prolonged Periods?
A MyEndometriosisTeam Member asked a question 💭

I started taking visanne 7-8 weeks ago and had a noticeable reduction in pain however my first cycle while on the medication hasnt stopped and I'm going on 4 weeks. My gyno is suggesting I tough it out since it's working to reduce pain but I'm inclined to stop if the bleeding continues. Everything I've read so far about visanne indicates your period should become lighter and maybe even disappear so I'm wondering if anyone else had this side effect and was there a way to stop the bleeding?

A MyEndometriosisTeam Member

Vasanne it has been good to me for such a long time, you must continue taking it , I’m on it for 1 year 5 months haven’t had periods only spotting once a month at time but no pain at all, im just… read more

posted May 19
How Did Endometriosis Diagnosis And Treatment Affect Your Relationships?
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

I need a lypscopy they won’t do it

posted November 11, 2023
In What Ways, If Any, Has Your Endometriosis Affected How You Consume Alcohol?
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

I used to enjoy a drink or two socially because I love trying different concoctions. I do not drink anymore. I can't even have one drink without my body going into inflammation overload! Super hot… read more

posted December 16, 2023
What Has Helped You Get A Restful Night's Sleep With Endometriosis?
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

I do the same thing

posted December 19, 2023
Which Supplements Or Vitamins Do You Take?
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

NAC
Serrapeptase
Magnesium oil on my skin if I can’t poop (works as a laxative)
Anti inflammatory diet
Trying to eliminate xeno estrogens from food and skin products.
Still have to try stinging… read more

posted December 23, 2023
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