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Visanne - Symptoms After Stopping Visanne?
A MyEndometriosisTeam Member asked a question šŸ’­

Hi all,

I've been taking Visanne for a year now and doctor has said I can stop it. How long did it take for your period to return after stopping it? And have you experienced any other symptoms? I've been off it for 2 weeks now. No period yet, but I've had breast sensitivity, increased appetite and increased libido. I would love to hear your experiences!

A MyEndometriosisTeam Member

Do not take EPO and colagen if you have cyst. They contain a lot of oestrogen.

posted June 1, 2023
Endometriosis Pain Vs. Pregnancy Pain
A MyEndometriosisTeam Member asked a question šŸ’­

I have always been very curious to know the difference between endometriosis pain and pregnancy pain. After I heal from my surgery on Thursday I will be trying to get pregnant. I would like to know what to expect when it comes to labor pain. It may sound weird but I feel like once I go though labor I can more accurately describe my pain level to people. I can say that it feels like someone is stabbing my right ovary with a dull red hot icepick but I have never actually been stabbed so, I do notā€¦ read more

A MyEndometriosisTeam Member

Well I found it similar to the intense pain they we do get or when I have a cyst burst pcos as well as endo. But labour is full on pain but we have this.. We are woman after all. šŸ‘šŸ˜˜
P.s yes it sucksā€¦ read more

posted July 9, 2019
Does Anyone Use Marijuana/CBD Oil/edibles For Pain Relief And If So, How Significant A Help Is It?
A MyEndometriosisTeam Member asked a question šŸ’­

I have a vaporizer that I use on extremely bad days and a family member who is a chef has begun working with edibles. So far I've found vaporized CBD oil most effective without the red eyes and "stoned" feeling, but am new to it's medicinal uses and would love to hear others experiences with various medicinal marijuana products. Thank you in advance as I know this particular topic can be "taboo"

A MyEndometriosisTeam Member

I use medical marijuana right now too and it def is the only thing that I feel like actually helps meā€¦ Not sure where you are from or the laws but hopefully you can get some and it helpsā€¦ I likeā€¦ read more

posted December 6, 2022
What Endometriosis Symptoms Keep You Up At Night?
A MyEndometriosisTeam Member asked a question šŸ’­
A MyEndometriosisTeam Member

For me itā€™s ALWAYS the abdominal pain. Like clockwork I will take a painkiller before bed on the first 2 days of my period or I know without fail I will wake up with excruciating pain and perhaps evenā€¦ read more

posted 6 hours ago
Pads Vs. Tampons?
A MyEndometriosisTeam Member asked a question šŸ’­

I know I might sound crazy, but I have never been able to get myself to use tampons ever since I have had a period. Because my cramps are so painful & I rarely go out or am active on my period, I have never felt the need to use them. Some people may find it odd. I know how to use a tampon and stuff but Iā€™ve only ever use a tampon once I think!? Is that crazy!? I feel like there is such pad shame sometimes, maybe thatā€™s just my experience. I mean honestly it doesnā€™t matter because we deal withā€¦ read more

A MyEndometriosisTeam Member

Yes I think pads and tampons both have nasty chemicals in them, in the Netherlands they had an episode on tv about pads, that they are actually invented by malešŸ˜… and they use some kind of chemicalā€¦ read more

posted December 25, 2023
What's One Natural Remedy That's Helped In Managing Your Endometriosis?
A MyEndometriosisTeam Member asked a question šŸ’­
A MyEndometriosisTeam Member

THC Edibles HEAT blanket.

posted January 4
Has Anyone Ever Had A Cyst In There Ovary? And What Was Done For Treatment For It?
A MyEndometriosisTeam Member asked a question šŸ’­

I had an internal ultrasound today for pain new pain had for 2 months theyā€™ve found quite a large cyst inside my ovary. I may just be panicking over nothing but I was meant to be trying for a baby about now. I only have 1 ovary and Iā€™m so concerned 1. It could burst and burst my ovary and 2. That the gyne may have the take my ovary out. Iā€™m quite frankly terrified, Iā€™ve always wanted kids, thereā€™s nothing I want more. Any advice or experiences people have had I would be so grateful to hear šŸ’›

A MyEndometriosisTeam Member

Thank u

posted February 21
When Were You Diagnosed And What Age? Any Misdiagnoses Or Comments From Your Doctors?
A MyEndometriosisTeam Member asked a question šŸ’­

Hi there, i was just wondering how long it took for some of you ladies to be diagnosed for me it was 6 years and am currently sueing my old womans health doctor for negligence. She kept saying it was normal period pains and irregular period and i was normal. I just want to hear some of my endosisters stories so can get an idea on what is normal and what isnt for waiting. Also what ages were you diagnosed.

A MyEndometriosisTeam Member

Same here, I had intense pain from first period at 13 and highly irregular bleeding. Doctors shrugged it off. After 3 gynaes and many GPS, I finally found a gynae who actually listened and told meā€¦ read more

posted April 3, 2022
Hi Everyone, I'm About To Ask A Very Personal Question And I Don't Expect Anyone To Answer.
A MyEndometriosisTeam Member asked a question šŸ’­

If you aren't embarrassed by my question I'd appreciate knowing if anyone else has the same experience. I have issues with having sex, the majority of the time it makes me feel sick in my stomach, I luckily have a very understanding bf. Sometimes when I feel that internal sex will be to much we go for the external pleasure (clitoris). But even this causes pain sometimes. Does this happen to anyone else? My doctors are very coy with giving me answers to anything.

A MyEndometriosisTeam Member

Laparoscopy is the answer if excision is used to remove Endo. Most who get a laparoscopy are getting ablation where the Endo is simply burned but not removed, causing more pain and scarring. Endoā€¦ read more

posted December 16, 2023
Pain Management
A MyEndometriosisTeam Member asked a question šŸ’­

What are your thoughts on medical marijuana for pain management? I live in NY and they are opening 3 dispensaries in the works just looking at different options.

A MyEndometriosisTeam Member

What do u take?

posted June 12, 2019
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