Is It Endo? The Game Show Where We Try To Decide If It's Just Endo Screwing Up Our Day, Or If There's More Going On... | MyEndometriosisTeam

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Is It Endo? The Game Show Where We Try To Decide If It's Just Endo Screwing Up Our Day, Or If There's More Going On...
A MyEndometriosisTeam Member asked a question 💭

Headache, severe dizziness, pounding heart, drop in body temperature, large wave of fatigue. Also nausea and a bit of loopy-ness, if the heading wasn't any indication. Google says that I either have an arrhythmia or I'm having a heart attack...Any guesses? Your guesses are as good as, or better than, mine.

A MyEndometriosisTeam Member

@A MyEndometriosisTeam Member, the vaccines don't work. And now the Omicron vax is being released with NO trials.

I am sick and tired of being lied to!

posted September 2, 2022
Has Anyone Had Pain Come Back Very Shortly After A Laparoscopy?
A MyEndometriosisTeam Member asked a question 💭

I had Laparoscopy surgery 6 weeks ago. They lysed a lot of adhesions that were on the bowel. I was feeling fine but the last week I am experiencing pain again. I have been told that they will come back but I was wondering if anyone has experienced this?

A MyEndometriosisTeam Member

That's so true for me also I had the hysterectomy salpingo oophorectomy and still in pain. I have a endo belly now presently on Lupron 11.25 don't think it's working, seriously thinking about… read more

posted March 30, 2019
Visanne And Periods?
A MyEndometriosisTeam Member asked a question 💭

For those of you who have been on Visanne did you notice a change in your periods? My first one on it came late and lasted for about two weeks and this one is even later or possibly non-existent I had some cramps around the time I should have gotten it and maybe a drop. Can it stop your period altogether? My doctor never mentioned it when she prescribed it to me and it slipped my mind to ask. Any input would be greatly appreciated! Thank you!

A MyEndometriosisTeam Member

Im on my 5th month and have just spotting monthly until 12 days ago been bleeding continuously moderate with cramps. Im taking celebrex to stop the cramps and lighten the flow. I have been told to… read more

posted February 12
Bowel Endometriosis
A MyEndometriosisTeam Member asked a question 💭

Reading about everyone's experiences I see that many people have been diagnosed with bowel endometriosos. I was just wondering how this was diagnosed? I have been having GI symptoms ever since I was diagnosed with endometriosis and my doctor recommended seeing a surgeon for a colonoscopy.I'm a bit apprehensive because she mentioned things like ulcerative colitis. Any feedback about any of your experiences would be appreciated:)

A MyEndometriosisTeam Member

I had a colon resection 2yrs ago do to endo attaching to my colon

posted October 2, 2022
What’s The One Thing That's Helped You Most With Fatigue?
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

Being kinder to myself and sleeping when I’m tired. Realizing I’m not lazy, I’m sick!

posted November 15, 2023
Has Anyone Else Had Endometriosis Removed And Still Suffered The Same Amount Of Pain And Heavy Bleeding As Before The Surgery?
A MyEndometriosisTeam Member asked a question 💭

Endometriosis was removed 1 year ago, there has been no change in my pain or bleeding. Please read 'My Story' for more detail. Please help.

A MyEndometriosisTeam Member

I feel the same this will be my 3surgery I have been in pain for 10 years some supplements do help allso medication for nerve dammage but it allso helps to have a good team I have 2 doctors one… read more

posted April 10, 2020
What Triggers Make Endometriosis Symptoms Worse? How Do You Manage These Triggers?
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

Gluten Free and low residue works for me.

posted August 2, 2023
Hysterectomy Option
A MyEndometriosisTeam Member asked a question 💭

For those who have had a hysterectomy could you share your experience
I have had excision, been on Lupron, Depo and every pill under the sun. My options are slim and I’m miserable
Yes I had my surgery with a Nook excision specialist.
Yes I know a hysterectomy is not a cure.
Yes I know I’m young.
Yes I am aware that takes away my option to bear children.
It’s a difficult decision- hence my research and advice seeking.
But I am out of options and I do not want to be miserable the rest of my… read more

A MyEndometriosisTeam Member

I had a complete hysterectomy in 2013 after having my daughter and exhausting all other avenues looking for relief and getting none.

It’s been 10 years and I suffer with pain daily and use a cane to… read more

posted June 19, 2023
What Does A Typical Day Look Like For You Living With Endometriosis?
A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

Will I wake up with pain how long am I going to lie in bed and what type of painkiller light or strong I'm going to take and what I'm going to eat.

posted October 17, 2023
Did Lupron And Add Back Therapy Cause You To Be Exhausted All The Time?
A MyEndometriosisTeam Member asked a question 💭

I am on my 2nd month of Lupron. I am taking norethindrone as my add back. I had the most disgusting night sweats, like changing the sheets every day, changing clothes in the middle of the night every night, my husband couldn't sleep in the bed it was so wet. The docfor put me on Prozac because some antidepressants are also good for night sweats and not flashes. The Prozac made me act very strange, so we switched to Zoloft. Mg question is, ever since I started this, I have been completely… read more

A MyEndometriosisTeam Member

I had a hysterotomy and most of the pain is gone. However nothing helps the fatigue. I sleep till noon on the weekends and then have some energy. Too bad work won't let me coming at noon every day… read more

posted August 30, 2021
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