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Endometriosis

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The UNSPOKEN Truth Behind ENDO.. Opiates.

The UNSPOKEN Truth Behind ENDO.. Opiates.

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made anyone feel uncomfortable… read more

A MyEndometriosisTeam Member said:

Yes! I get told to take Tylenol and that I'm exaggerating all the time. It brings me to tears if I even talk about it much because I know I am a strong person. I hate being seen as weak. I know so… read more

posted 6 months ago

Does Anyone Have Endo Symtoms All Month?

Does Anyone Have Endo Symtoms All Month?

My doctor says its impossible to have endometriosis symptoms everyday. He says the pain should only be on my period. Guaranteed its worse on my period but I'm in pain and exhausted everyday :( does anyone else suffer everyday of the month and if so how are you managing things? I'm really struggling to get up on a morning and carry out my daily routine, I feel like if I don't at least sort out my fatigue some how I will lose my career any advice would be great. Thanks in advance XX

A MyEndometriosisTeam Member said:

ALL MONTH LONG!

I see lots of people posting about flair ups, and I have those. But, the in between is just hurt. I am also scared about not being able to continue in my work and in my normal… read more

posted 6 months ago

Visanne - Symptoms After Stopping Visanne?

Visanne - Symptoms After Stopping Visanne?

Hi all,

I've been taking Visanne for a year now and doctor has said I can stop it. How long did it take for your period to return after stopping it? And have you experienced any other symptoms? I've been off it for 2 weeks now. No period yet, but I've had breast sensitivity, increased appetite and increased libido. I would love to hear your experiences!

A MyEndometriosisTeam Member said:

Hey

Did you stop taking the visanne immediately or did you wean off it ?

posted 4 months ago

Can We Get A Rant Button Along With The Questions Haha.

Can We Get A Rant Button Along With The Questions Haha.

Some of us have to rant

A MyEndometriosisTeam Member said:

I just joined the site, but I think thats a GREAT idea!

posted almost 3 years ago

Bowel Endometriosis

Bowel Endometriosis

Reading about everyone's experiences I see that many people have been diagnosed with bowel endometriosos. I was just wondering how this was diagnosed? I have been having GI symptoms ever since I was diagnosed with endometriosis and my doctor recommended seeing a surgeon for a colonoscopy.I'm a bit apprehensive because she mentioned things like ulcerative colitis. Any feedback about any of your experiences would be appreciated:)

A MyEndometriosisTeam Member said:

Sounds like you might have a lot of the same problems I have. May I ask what you are doing for pain and what do your doctors say?

posted almost 3 years ago

Surgery And IUD

Surgery And IUD

I am having surgery to remove the scar tissue and while I am asleep, they want to put an IUD in as well. I am super nervous about the IUD and want to know if there are side effects, and if the IUD is a good route to go.

A MyEndometriosisTeam Member said:

I also have a Mirena IUD and get horrible endo flare ups from it. I feel it is making flare ups worse. I am going to be getting mirena taken out soon and trying a different method for birth control.

posted over 1 year ago

Does Anyone Use Marijuana/CBD Oil/edibles For Pain Relief And If So, How Significant A Help Is It?

Does Anyone Use Marijuana/CBD Oil/edibles For Pain Relief And If So, How Significant A Help Is It?

I have a vaporizer that I use on extremely bad days and a family member who is a chef has begun working with edibles. So far I've found vaporized CBD oil most effective without the red eyes and "stoned" feeling, but am new to it's medicinal uses and would love to hear others experiences with various medicinal marijuana products. Thank you in advance as I know this particular topic can be "taboo"

A MyEndometriosisTeam Member said:

I have never tried anything like this but would love a suggestion to help with the pain, that doesn't make me too drowsy or anything and that I could possibly buy online? otherwise I think I would… read more

posted 10 months ago

Anyone Get Pregnant After Using Visanne?

Anyone Get Pregnant After Using Visanne?

I've been on it for just over two months. It has completely stopped my period. I'm getting my Endo under control in hopes to have a baby. I'm worried that without a period I maybe going backwards 😞

A MyEndometriosisTeam Member said:

Results of my HSG ended up showing an infected and blocked left Fallopian tube. Just had surgery to remove it and also removed endo scar tissue at the same time. Stopped Visanne one week after… read more

posted about 3 years ago

Do Any Of You Have Depression?

Do Any Of You Have Depression?

Hey Ladies
So as you all know the pain and so much more we go through w/ Endometriosis can take a huge toll on us. Physically and emotionally it's a lot to deal w/ and for others to understand let alone sympathize. So my question is how many of you also deal w/ Depression? I was diagnosed at 17 w/ Clinical Depression due to everything I had been dealing w/ from 13 on w/ my Endo. and people's opinions and influences on me. Lately I've had a pretty bad setback and have fallen into a bad… read more

A MyEndometriosisTeam Member said:

I was diagnosed with PMDD, MDD and GAD years after my 1st laparoscopy, and diagnosis of endometriosis. I see a psychologist and psychiatrist. I have been various antidepressants for several years… read more

posted over 1 year ago

Pain When Sexually Aroused BEFORE Sex

Pain When Sexually Aroused BEFORE Sex

I get pain when I'm sexually aroused I've never talked about it but my pain is a dull ache in my cervix and vagina. I guess I want to know if I'm the only one.

A MyEndometriosisTeam Member said:

literally thinking too much about sex makes me have cramps

posted over 1 year ago
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