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The UNSPOKEN Truth Behind ENDO.. Opiates.

The UNSPOKEN Truth Behind ENDO.. Opiates.

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made anyone feel uncomfortable… read more

posted May 31, 2015 (edited)
A MyEndometriosisTeam Member

Yes! I get told to take Tylenol and that I'm exaggerating all the time. It brings me to tears if I even talk about it much because I know I am a strong person. I hate being seen as weak. I know so… read more

posted April 4, 2021

Visanne - Symptoms After Stopping Visanne?

Visanne - Symptoms After Stopping Visanne?

Hi all,

I've been taking Visanne for a year now and doctor has said I can stop it. How long did it take for your period to return after stopping it? And have you experienced any other symptoms? I've been off it for 2 weeks now. No period yet, but I've had breast sensitivity, increased appetite and increased libido. I would love to hear your experiences!

posted March 4, 2017
A MyEndometriosisTeam Member

Hani your period will start 1 month after you stopped taking Visanne. I stopped it last month and my period came back. Decided to go back on Visanne as it helped with the pains and stop the estrogen… read more

posted November 19

Does Anyone Have Endo Symtoms All Month?

Does Anyone Have Endo Symtoms All Month?

My doctor says its impossible to have endometriosis symptoms everyday. He says the pain should only be on my period. Guaranteed its worse on my period but I'm in pain and exhausted everyday :( does anyone else suffer everyday of the month and if so how are you managing things? I'm really struggling to get up on a morning and carry out my daily routine, I feel like if I don't at least sort out my fatigue some how I will lose my career any advice would be great. Thanks in advance XX

posted February 22, 2016
A MyEndometriosisTeam Member

I find that Doctors usually dismiss what you are saying and think they know better
We are the survivors of this nasty condition and living it everyday of our lives
They have no idea about the… read more

posted November 5

Can We Get A Rant Button Along With The Questions Haha.

Can We Get A Rant Button Along With The Questions Haha.

Some of us have to rant

posted June 7, 2017
A MyEndometriosisTeam Member

I just joined the site, but I think thats a GREAT idea!

posted October 30, 2018

Bowel Endometriosis

Bowel Endometriosis

Reading about everyone's experiences I see that many people have been diagnosed with bowel endometriosos. I was just wondering how this was diagnosed? I have been having GI symptoms ever since I was diagnosed with endometriosis and my doctor recommended seeing a surgeon for a colonoscopy.I'm a bit apprehensive because she mentioned things like ulcerative colitis. Any feedback about any of your experiences would be appreciated:)

posted August 27, 2015
A MyEndometriosisTeam Member

I had a colon resection 2yrs ago do to endo attaching to my colon

posted October 2

Does Anyone Use Marijuana/CBD Oil/edibles For Pain Relief And If So, How Significant A Help Is It?

Does Anyone Use Marijuana/CBD Oil/edibles For Pain Relief And If So, How Significant A Help Is It?

I have a vaporizer that I use on extremely bad days and a family member who is a chef has begun working with edibles. So far I've found vaporized CBD oil most effective without the red eyes and "stoned" feeling, but am new to it's medicinal uses and would love to hear others experiences with various medicinal marijuana products. Thank you in advance as I know this particular topic can be "taboo"

posted July 16, 2015
A MyEndometriosisTeam Member

I use medical marijuana right now too and it def is the only thing that I feel like actually helps me… Not sure where you are from or the laws but hopefully you can get some and it helps… I like… read more

posted 1 day ago

Surgery And IUD

Surgery And IUD

I am having surgery to remove the scar tissue and while I am asleep, they want to put an IUD in as well. I am super nervous about the IUD and want to know if there are side effects, and if the IUD is a good route to go.

posted February 16, 2016
A MyEndometriosisTeam Member

While many of my friends have had a positive experience with IUDs, I had to get it removed 3 months after insertion. It gave me horrible pain during my periods and even during the test of the cycle y… read more

posted November 5

Anyone Get Pregnant After Using Visanne?

Anyone Get Pregnant After Using Visanne?

I've been on it for just over two months. It has completely stopped my period. I'm getting my Endo under control in hopes to have a baby. I'm worried that without a period I maybe going backwards 😞

posted October 1, 2017
A MyEndometriosisTeam Member

Results of my HSG ended up showing an infected and blocked left Fallopian tube. Just had surgery to remove it and also removed endo scar tissue at the same time. Stopped Visanne one week after… read more

posted September 8, 2018

Husband Letter

Husband Letter

A few days ago someone posted a letter that was too a husband describing what us women wanted them to know about our pain. I should have booked marked it. Does anyone know the letter/article I am referring too and if so could you please respond with it. I am feeling so neglectful of my my best friend lately. He is so supportive and understanding but I a would love for him to see that letter/article. Thanks ladies.

posted February 21, 2017
A MyEndometriosisTeam Member

Do you mean this one? The men who stick around through this horrible stuff are truly amazing. I'm lucky enough to have one like that too.

https://guce.huffingtonpost.co.uk/copyConsent?s...

posted July 19, 2019

Do Any Of You Have Depression?

Do Any Of You Have Depression?

Hey Ladies
So as you all know the pain and so much more we go through w/ Endometriosis can take a huge toll on us. Physically and emotionally it's a lot to deal w/ and for others to understand let alone sympathize. So my question is how many of you also deal w/ Depression? I was diagnosed at 17 w/ Clinical Depression due to everything I had been dealing w/ from 13 on w/ my Endo. and people's opinions and influences on me. Lately I've had a pretty bad setback and have fallen into a bad… read more

posted November 17, 2015
A MyEndometriosisTeam Member

I was diagnosed with PMDD, MDD and GAD years after my 1st laparoscopy, and diagnosis of endometriosis. I see a psychologist and psychiatrist. I have been various antidepressants for several years… read more

posted February 9, 2020
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