Endometriosis

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The UNSPOKEN truth behind ENDO.. Opiates.

The UNSPOKEN truth behind ENDO.. Opiates.

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made… read more

A MyEndometriosisTeam Member said:

I have tramadol for the pain it's not helping.

posted about 2 months ago

Can we get a rant button along with the questions haha.

Can we get a rant button along with the questions haha.

Some of us have to rant

A MyEndometriosisTeam Member said:

I just joined the site, but I think thats a GREAT idea!

posted 12 months ago

Bowel endometriosis

Bowel endometriosis

Reading about everyone's experiences I see that many people have been diagnosed with bowel endometriosos. I was just wondering how this was diagnosed? I have been having GI symptoms ever since I was diagnosed with endometriosis and my doctor recommended seeing a surgeon for a colonoscopy.I'm a bit apprehensive because she mentioned things like ulcerative colitis. Any feedback about any of your experiences would be appreciated:)

A MyEndometriosisTeam Member said:

Sounds like you might have a lot of the same problems I have. May I ask what you are doing for pain and what do your doctors say?

posted 12 months ago

Anyone get pregnant after using Visanne?

Anyone get pregnant after using Visanne?

I've been on it for just over two months. It has completely stopped my period. I'm getting my Endo under control in hopes to have a baby. I'm worried that without a period I maybe going backwards

A MyEndometriosisTeam Member said:

Results of my HSG ended up showing an infected and blocked left Fallopian tube. Just had surgery to remove it and also removed endo scar tissue at the… read more

posted about 1 year ago

Visanne - symptoms after stopping Visanne?

Visanne - symptoms after stopping Visanne?

Hi all,

I've been taking Visanne for a year now and doctor has said I can stop it. How long did it take for your period to return after stopping it? And have you experienced any other symptoms? I've been off it for 2 weeks now. No period yet, but I've had breast sensitivity, increased appetite and increased libido. I would love to hear your experiences!

A MyEndometriosisTeam Member said:

I quickly went back on it because I couldn't handle the pain.

posted 3 months ago

Surgery and IUD

Surgery and IUD

I am having surgery to remove the scar tissue and while I am asleep, they want to put an IUD in as well. I am super nervous about the IUD and want to know if there are side effects, and if the IUD is a good route to go.

A MyEndometriosisTeam Member said:

I had the Mirena and it was terrible for me! I had constant migraines and was in constant pain with ovarian cysts. I had no periods, however once a… read more

posted 19 days ago

Husband Letter

Husband Letter

A few days ago someone posted a letter that was too a husband describing what us women wanted them to know about our pain. I should have booked marked it. Does anyone know the letter/article I am referring too and if so could you please respond with it. I am feeling so neglectful of my my best friend lately. He is so supportive and understanding but I a would love for him to see that letter/article. Thanks ladies.

A MyEndometriosisTeam Member said:

Do you mean this one? The men who stick around through this horrible stuff are truly amazing. I'm lucky enough to have one like that too.

read more

posted 3 months ago

What can I expect from having ovaries removed and surgical menopause?

What can I expect from having ovaries removed and surgical menopause?

My doctor is wanting to take out my right ovary. (The only ovary I have left.) I had emergency surgery to remove my left one due to an 11 cm cyst 3 years ago. I continue to have large and very painful cysts on my right.

Should I say no to this? I'm 33. I know it's an automatic throwing myself into menopause if I agree, but I'm concerned if I don't have it taken out, it could eventually turn into something more. And not to mention I'm in pain… read more

A MyEndometriosisTeam Member said:

Love the pic !

posted 9 months ago

Does anyone have endo symtoms all month?

Does anyone have endo symtoms all month?

My doctor says its impossible to have endometriosis symptoms everyday. He says the pain should only be on my period. Guaranteed its worse on my period but I'm in pain and exhausted everyday :( does anyone else suffer everyday of the month and if so how are you managing things? I'm really struggling to get up on a morning and carry out my daily routine, I feel like if I don't at least sort out my fatigue some how I will lose my career any advice would be great. Thanks in… read more

A MyEndometriosisTeam Member said:

This is everythibg I do as well, excersing does help and most of the time you have to force yourself to do it, I also have pcos and have been able to… read more

posted 3 months ago

Does anyone use marijuana/CBD oil/edibles for pain relief and if so, how significant a help is it?

Does anyone use marijuana/CBD oil/edibles for pain relief and if so, how significant a help is it?

I have a vaporizer that I use on extremely bad days and a family member who is a chef has begun working with edibles. So far I've found vaporized CBD oil most effective without the red eyes and "stoned" feeling, but am new to it's medicinal uses and would love to hear others experiences with various medicinal marijuana products. Thank you in advance as I know this particular topic can be "taboo"

A MyEndometriosisTeam Member said:

Hi did you have a question you wanted to ask? Im not a guru or a professional but i can offer any support you may need :)

posted 8 months ago
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