Endometriosis

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The UNSPOKEN truth behind ENDO.. Opiates.

The UNSPOKEN truth behind ENDO.. Opiates.

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made… read more

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A MyEndometriosisTeam Member said:

I just really wished I could be able to take tramdol or ibpropin

posted about 1 month ago
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Can we get a rant button along with the questions haha.

Can we get a rant button along with the questions haha.

Some of us have to rant

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A MyEndometriosisTeam Member said:

I just joined the site, but I think thats a GREAT idea!

posted 8 months ago
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bowel endometriosis

bowel endometriosis

Reading about everyone's experiences I see that many people have been diagnosed with bowel endometriosos. I was just wondering how this was diagnosed? I have been having GI symptoms ever since I was diagnosed with endometriosis and my doctor recommended seeing a surgeon for a colonoscopy.I'm a bit apprehensive because she mentioned things like ulcerative colitis. Any feedback about any of your experiences would be appreciated:)

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A MyEndometriosisTeam Member said:

Sounds like you might have a lot of the same problems I have. May I ask what you are doing for pain and what do your doctors say?

posted 8 months ago
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Anyone get pregnant after using Visanne?

Anyone get pregnant after using Visanne?

I've been on it for just over two months. It has completely stopped my period. I'm getting my Endo under control in hopes to have a baby. I'm worried that without a period I maybe going backwards

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A MyEndometriosisTeam Member said:

Results of my HSG ended up showing an infected and blocked left Fallopian tube. Just had surgery to remove it and also removed endo scar tissue at the… read more

posted 9 months ago
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Husband Letter

Husband Letter

A few days ago someone posted a letter that was too a husband describing what us women wanted them to know about our pain. I should have booked marked it. Does anyone know the letter/article I am referring too and if so could you please respond with it. I am feeling so neglectful of my my best friend lately. He is so supportive and understanding but I a would love for him to see that letter/article. Thanks ladies.

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What can I expect from having ovaries removed and surgical menopause?

What can I expect from having ovaries removed and surgical menopause?

My doctor is wanting to take out my right ovary. (The only ovary I have left.) I had emergency surgery to remove my left one due to an 11 cm cyst 3 years ago. I continue to have large and very painful cysts on my right.

Should I say no to this? I'm 33. I know it's an automatic throwing myself into menopause if I agree, but I'm concerned if I don't have it taken out, it could eventually turn into something more. And not to mention I'm in pain… read more

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A MyEndometriosisTeam Member said:

Love the pic !

posted 5 months ago
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Surgery and IUD

Surgery and IUD

I am having surgery to remove the scar tissue and while I am asleep, they want to put an IUD in as well. I am super nervous about the IUD and want to know if there are side effects, and if the IUD is a good route to go.

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A MyEndometriosisTeam Member said:

I’ve had Mirena for 2 years and for me it’s been a miracle but I’m 45 and done with having any more children

posted 10 days ago
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Does anyone use marijuana/CBD oil/edibles for pain relief and if so, how significant a help is it?

Does anyone use marijuana/CBD oil/edibles for pain relief and if so, how significant a help is it?

I have a vaporizer that I use on extremely bad days and a family member who is a chef has begun working with edibles. So far I've found vaporized CBD oil most effective without the red eyes and "stoned" feeling, but am new to it's medicinal uses and would love to hear others experiences with various medicinal marijuana products. Thank you in advance as I know this particular topic can be "taboo"

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A MyEndometriosisTeam Member said:

Hi did you have a question you wanted to ask? Im not a guru or a professional but i can offer any support you may need :)

posted 3 months ago
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Orgasm after hysterectomy

Orgasm after hysterectomy

Hi, not really a question more just information I would like to share for those thinking about having a hysterectomy- information I wish someone told me. I needed a hysterectomy as I have severe adenomyosis and my uterus was bonded to my bowel and causing all sorts of problems. My dr assured me sex and orgasms would be the same but it isn't. Sex no longer hurts which is great as it had been a few years since my husband and I had sex but I can no longer orgasm. Well I can but it is maybe… read more

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A MyEndometriosisTeam Member said:

Thank you for your honesty. I've been experiencing a lot of pain when I am intimate with my husband for a few years now. I've talked to my Gyno and… read more

posted 10 months ago
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What is your biggest question about endometriosis?

What is your biggest question about endometriosis?

Hi all - I'm going to be attending the World Congress on Endometriosis this week. If you could be in a room with some of the world's top medical practitioners and researchers in endometriosis, what would you want to ask them?

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A MyEndometriosisTeam Member said:

Too late to reply but my question would be who is talking about working on the next imaging invention that can see scar tissue and adhesions? We need to… read more

posted 9 months ago
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