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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Anyone Have Endo Symtoms All Month?
A MyEndometriosisTeam Member asked a question 💭

My doctor says its impossible to have endometriosis symptoms everyday. He says the pain should only be on my period. Guaranteed its worse on my period but I'm in pain and exhausted everyday :( does anyone else suffer everyday of the month and if so how are you managing things? I'm really struggling to get up on a morning and carry out my daily routine, I feel like if I don't at least sort out my fatigue some how I will lose my career any advice would be great. Thanks in advance XX

posted February 22, 2016
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A MyEndometriosisTeam Member

You’re doctor is full of shit and has no clue what endometriosis is!!! It’s pain all day very damn day with maybe a smattering of good days throughout. Seek another provider and fast!

posted May 18
The UNSPOKEN Truth Behind ENDO.. Opiates.
A MyEndometriosisTeam Member asked a question 💭

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made anyone feel uncomfortable… read more

posted May 31, 2015 (edited)
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A MyEndometriosisTeam Member

Yes! I get told to take Tylenol and that I'm exaggerating all the time. It brings me to tears if I even talk about it much because I know I am a strong person. I hate being seen as weak. I know so… read more

posted April 4, 2021
Visanne - Symptoms After Stopping Visanne?
A MyEndometriosisTeam Member asked a question 💭

Hi all,

I've been taking Visanne for a year now and doctor has said I can stop it. How long did it take for your period to return after stopping it? And have you experienced any other symptoms? I've been off it for 2 weeks now. No period yet, but I've had breast sensitivity, increased appetite and increased libido. I would love to hear your experiences!

posted March 4, 2017
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A MyEndometriosisTeam Member

Hello,

I hope you are well.

I have also stopped it for about a month but im letting the tablet just work itself out of my system im still experiencing side effects from taking this tablet such as… read more

posted May 2
Can We Get A Rant Button Along With The Questions Haha.
A MyEndometriosisTeam Member asked a question 💭

Some of us have to rant

posted June 7, 2017
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A MyEndometriosisTeam Member

I just joined the site, but I think thats a GREAT idea!

posted October 30, 2018
Bowel Endometriosis
A MyEndometriosisTeam Member asked a question 💭

Reading about everyone's experiences I see that many people have been diagnosed with bowel endometriosos. I was just wondering how this was diagnosed? I have been having GI symptoms ever since I was diagnosed with endometriosis and my doctor recommended seeing a surgeon for a colonoscopy.I'm a bit apprehensive because she mentioned things like ulcerative colitis. Any feedback about any of your experiences would be appreciated:)

posted August 27, 2015
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A MyEndometriosisTeam Member

I had a colon resection 2yrs ago do to endo attaching to my colon

posted October 2, 2022
Does Anyone Use Marijuana/CBD Oil/edibles For Pain Relief And If So, How Significant A Help Is It?
A MyEndometriosisTeam Member asked a question 💭

I have a vaporizer that I use on extremely bad days and a family member who is a chef has begun working with edibles. So far I've found vaporized CBD oil most effective without the red eyes and "stoned" feeling, but am new to it's medicinal uses and would love to hear others experiences with various medicinal marijuana products. Thank you in advance as I know this particular topic can be "taboo"

posted July 16, 2015
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A MyEndometriosisTeam Member

I use medical marijuana right now too and it def is the only thing that I feel like actually helps me… Not sure where you are from or the laws but hopefully you can get some and it helps… I like… read more

posted December 6, 2022
Coping Childless Not By Choice This Weekend
A MyEndometriosisTeam Member asked a question 💭

I just wanted to share for anyone who is childless not by choice this weekend, it's okay to take a break from social media and to distance yourself from others if needed this weekend. I've already seen a few posts popping up about posting photos of 'you' pregnant, your newborn, and what your child looks like today. And while it seems cute on the surface, it's a terrible painful reminder for many others. Endometriosis is a cruel, ironic disease that can often lead to difficulty getting pregnant… read more

posted May 6, 2022
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A MyEndometriosisTeam Member

I know, it is also a sore subject with husband, says he's fine, but doesn't act it, and all your friends and family are having babies and they say stupid things like , you should have a baby so they… read more

posted June 4, 2022
Surgery And IUD
A MyEndometriosisTeam Member asked a question 💭

I am having surgery to remove the scar tissue and while I am asleep, they want to put an IUD in as well. I am super nervous about the IUD and want to know if there are side effects, and if the IUD is a good route to go.

posted February 16, 2016
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A MyEndometriosisTeam Member

I had mirena put in when I had my laparoscopy and I had no side effects. Once I had the mirena removed 7yrs later I experienced the mirena crash until I started the Nuvaring.

posted 5 days ago
Anyone Get Pregnant After Using Visanne?
A MyEndometriosisTeam Member asked a question 💭

I've been on it for just over two months. It has completely stopped my period. I'm getting my Endo under control in hopes to have a baby. I'm worried that without a period I maybe going backwards 😞

posted October 1, 2017
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A MyEndometriosisTeam Member

Results of my HSG ended up showing an infected and blocked left Fallopian tube. Just had surgery to remove it and also removed endo scar tissue at the same time. Stopped Visanne one week after… read more

posted September 8, 2018
Husband Letter
A MyEndometriosisTeam Member asked a question 💭

A few days ago someone posted a letter that was too a husband describing what us women wanted them to know about our pain. I should have booked marked it. Does anyone know the letter/article I am referring too and if so could you please respond with it. I am feeling so neglectful of my my best friend lately. He is so supportive and understanding but I a would love for him to see that letter/article. Thanks ladies.

posted February 21, 2017
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A MyEndometriosisTeam Member

Do you mean this one? The men who stick around through this horrible stuff are truly amazing. I'm lucky enough to have one like that too.

https://guce.huffingtonpost.co.uk/copyConsent?s...

posted July 19, 2019
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