Endometriosis

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The UNSPOKEN truth behind ENDO.. Opiates.

The UNSPOKEN truth behind ENDO.. Opiates.

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made… read more

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A MyEndometriosisTeam Member said:

I just really wished I could be able to take tramdol or ibpropin

posted 3 months ago
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Can we get a rant button along with the questions haha.

Can we get a rant button along with the questions haha.

Some of us have to rant

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A MyEndometriosisTeam Member said:

I just joined the site, but I think thats a GREAT idea!

posted 10 months ago
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bowel endometriosis

bowel endometriosis

Reading about everyone's experiences I see that many people have been diagnosed with bowel endometriosos. I was just wondering how this was diagnosed? I have been having GI symptoms ever since I was diagnosed with endometriosis and my doctor recommended seeing a surgeon for a colonoscopy.I'm a bit apprehensive because she mentioned things like ulcerative colitis. Any feedback about any of your experiences would be appreciated:)

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A MyEndometriosisTeam Member said:

Sounds like you might have a lot of the same problems I have. May I ask what you are doing for pain and what do your doctors say?

posted 10 months ago
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Anyone get pregnant after using Visanne?

Anyone get pregnant after using Visanne?

I've been on it for just over two months. It has completely stopped my period. I'm getting my Endo under control in hopes to have a baby. I'm worried that without a period I maybe going backwards

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A MyEndometriosisTeam Member said:

Results of my HSG ended up showing an infected and blocked left Fallopian tube. Just had surgery to remove it and also removed endo scar tissue at the… read more

posted 12 months ago
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Visanne - symptoms after stopping Visanne?

Visanne - symptoms after stopping Visanne?

Hi all,

I've been taking Visanne for a year now and doctor has said I can stop it. How long did it take for your period to return after stopping it? And have you experienced any other symptoms? I've been off it for 2 weeks now. No period yet, but I've had breast sensitivity, increased appetite and increased libido. I would love to hear your experiences!

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A MyEndometriosisTeam Member said:

I quickly went back on it because I couldn't handle the pain.

posted about 2 months ago
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Surgery and IUD

Surgery and IUD

I am having surgery to remove the scar tissue and while I am asleep, they want to put an IUD in as well. I am super nervous about the IUD and want to know if there are side effects, and if the IUD is a good route to go.

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A MyEndometriosisTeam Member said:

I have the marina and it's amazing for periods I hardly bleed at all now. But I still get a fair bit of pain tho I seem to go around 6 weeks with just… read more

posted 15 days ago
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Husband Letter

Husband Letter

A few days ago someone posted a letter that was too a husband describing what us women wanted them to know about our pain. I should have booked marked it. Does anyone know the letter/article I am referring too and if so could you please respond with it. I am feeling so neglectful of my my best friend lately. He is so supportive and understanding but I a would love for him to see that letter/article. Thanks ladies.

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A MyEndometriosisTeam Member said:

Do you mean this one? The men who stick around through this horrible stuff are truly amazing. I'm lucky enough to have one like that too.

read more

posted about 1 month ago
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What can I expect from having ovaries removed and surgical menopause?

What can I expect from having ovaries removed and surgical menopause?

My doctor is wanting to take out my right ovary. (The only ovary I have left.) I had emergency surgery to remove my left one due to an 11 cm cyst 3 years ago. I continue to have large and very painful cysts on my right.

Should I say no to this? I'm 33. I know it's an automatic throwing myself into menopause if I agree, but I'm concerned if I don't have it taken out, it could eventually turn into something more. And not to mention I'm in pain… read more

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A MyEndometriosisTeam Member said:

Love the pic !

posted 7 months ago
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Does anyone use marijuana/CBD oil/edibles for pain relief and if so, how significant a help is it?

Does anyone use marijuana/CBD oil/edibles for pain relief and if so, how significant a help is it?

I have a vaporizer that I use on extremely bad days and a family member who is a chef has begun working with edibles. So far I've found vaporized CBD oil most effective without the red eyes and "stoned" feeling, but am new to it's medicinal uses and would love to hear others experiences with various medicinal marijuana products. Thank you in advance as I know this particular topic can be "taboo"

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A MyEndometriosisTeam Member said:

Hi did you have a question you wanted to ask? Im not a guru or a professional but i can offer any support you may need :)

posted 6 months ago
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Orgasm after hysterectomy

Orgasm after hysterectomy

Hi, not really a question more just information I would like to share for those thinking about having a hysterectomy- information I wish someone told me. I needed a hysterectomy as I have severe adenomyosis and my uterus was bonded to my bowel and causing all sorts of problems. My dr assured me sex and orgasms would be the same but it isn't. Sex no longer hurts which is great as it had been a few years since my husband and I had sex but I can no longer orgasm. Well I can but it is maybe… read more

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A MyEndometriosisTeam Member said:

My pelvic floor PT mentioned she refers her other Endo Warriors to a sex therapist when that happens.

posted 28 days ago
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