Does Anyone Have Endo Symtoms All Month? | MyEndometriosisTeam

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7256 questions
Does Anyone Have Endo Symtoms All Month?
A MyEndometriosisTeam Member asked a question 💭

My doctor says its impossible to have endometriosis symptoms everyday. He says the pain should only be on my period. Guaranteed its worse on my period but I'm in pain and exhausted everyday :( does anyone else suffer everyday of the month and if so how are you managing things? I'm really struggling to get up on a morning and carry out my daily routine, I feel like if I don't at least sort out my fatigue some how I will lose my career any advice would be great. Thanks in advance XX

A MyEndometriosisTeam Member

I do have pain everyday! I have an endometrial cyst on my left ovary attached to my bowel. I started taking dinogest from last august and thankfully my symptoms ( mainly pelvic pain) was down by 90%… read more

posted June 28
The UNSPOKEN Truth Behind ENDO.. Opiates.
A MyEndometriosisTeam Member asked a question 💭

So many of us deal with pain that would debilitate our lives, if we weren't able to sustain ourselves with some sort of medication to tackle the flair up. But what works the best?

Most of my doctors have put me on Tramadol first and Oxycodone when I explain how Tramadol doesn't do much for my pain. As well as nerve blockers and NSAIDS (Which I limit always to, when needed). HOWEVER, society has a different view on pain medication and I'm wondering if this has made anyone feel uncomfortable… read more

A MyEndometriosisTeam Member

A tens machine has helped my back pain related to Endo, I've also just tried doing a modified FODMAP diet from my gastroenterologist as I was getting bad flare-ups on my right side near where my ovary… read more

posted August 31
Visanne - Symptoms After Stopping Visanne?
A MyEndometriosisTeam Member asked a question 💭

Hi all,

I've been taking Visanne for a year now and doctor has said I can stop it. How long did it take for your period to return after stopping it? And have you experienced any other symptoms? I've been off it for 2 weeks now. No period yet, but I've had breast sensitivity, increased appetite and increased libido. I would love to hear your experiences!

A MyEndometriosisTeam Member

Do not take EPO and colagen if you have cyst. They contain a lot of oestrogen.

posted June 1
Can We Get A Rant Button Along With The Questions Haha.
A MyEndometriosisTeam Member asked a question 💭

Some of us have to rant

A MyEndometriosisTeam Member

I just joined the site, but I think thats a GREAT idea!

posted October 30, 2018
Bowel Endometriosis
A MyEndometriosisTeam Member asked a question 💭

Reading about everyone's experiences I see that many people have been diagnosed with bowel endometriosos. I was just wondering how this was diagnosed? I have been having GI symptoms ever since I was diagnosed with endometriosis and my doctor recommended seeing a surgeon for a colonoscopy.I'm a bit apprehensive because she mentioned things like ulcerative colitis. Any feedback about any of your experiences would be appreciated:)

A MyEndometriosisTeam Member

I had a colon resection 2yrs ago do to endo attaching to my colon

posted October 2, 2022
Does Anyone Use Marijuana/CBD Oil/edibles For Pain Relief And If So, How Significant A Help Is It?
A MyEndometriosisTeam Member asked a question 💭

I have a vaporizer that I use on extremely bad days and a family member who is a chef has begun working with edibles. So far I've found vaporized CBD oil most effective without the red eyes and "stoned" feeling, but am new to it's medicinal uses and would love to hear others experiences with various medicinal marijuana products. Thank you in advance as I know this particular topic can be "taboo"

A MyEndometriosisTeam Member

I use medical marijuana right now too and it def is the only thing that I feel like actually helps me… Not sure where you are from or the laws but hopefully you can get some and it helps… I like… read more

posted December 6, 2022
Coping Childless Not By Choice This Weekend
A MyEndometriosisTeam Member asked a question 💭

I just wanted to share for anyone who is childless not by choice this weekend, it's okay to take a break from social media and to distance yourself from others if needed this weekend. I've already seen a few posts popping up about posting photos of 'you' pregnant, your newborn, and what your child looks like today. And while it seems cute on the surface, it's a terrible painful reminder for many others. Endometriosis is a cruel, ironic disease that can often lead to difficulty getting pregnant… read more

A MyEndometriosisTeam Member

I know, it is also a sore subject with husband, says he's fine, but doesn't act it, and all your friends and family are having babies and they say stupid things like , you should have a baby so they… read more

posted June 4, 2022
Surgery And IUD
A MyEndometriosisTeam Member asked a question 💭

I am having surgery to remove the scar tissue and while I am asleep, they want to put an IUD in as well. I am super nervous about the IUD and want to know if there are side effects, and if the IUD is a good route to go.

A MyEndometriosisTeam Member

I had mirena put in when I had my laparoscopy and I had no side effects. Once I had the mirena removed 7yrs later I experienced the mirena crash until I started the Nuvaring.

posted May 23
Sex Life And Physical Relationship
A MyEndometriosisTeam Member asked a question 💭

I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more like… read more

A MyEndometriosisTeam Member

This is such a difficult part of endo to live with,I’m so sorry you’re having to deal with this. I went through something very similar where I would try to have sex and no matter what it just hurt… read more

posted September 25
Anyone Taking Visanne Have Prolonged Periods?
A MyEndometriosisTeam Member asked a question 💭

I started taking visanne 7-8 weeks ago and had a noticeable reduction in pain however my first cycle while on the medication hasnt stopped and I'm going on 4 weeks. My gyno is suggesting I tough it out since it's working to reduce pain but I'm inclined to stop if the bleeding continues. Everything I've read so far about visanne indicates your period should become lighter and maybe even disappear so I'm wondering if anyone else had this side effect and was there a way to stop the bleeding?

A MyEndometriosisTeam Member

i took Visanne for almost 3 years now. For the first 2 years my menses stopped completely except for few days of spotting. But come 3rd year, i started to have more bleeding and slight cramps even… read more

posted November 7
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