Not really a question just wanted to share this post with as many people as possible. Dr. Andrea Vidali in NYC is one of the top Endometriosis experts in the US. He posted on Facebook that he is waiving surgical fees for patients who have 5-7cm endometriomas & want to preserve their fertility. I don't know how many patients he will do this for so email him right away if you qualify & share his post on Facebook with anyone you know with large endometriomas! 💜
In the "My Team" area where you can add providers, it gives the suggestion to add an organization but it only give one organization as an option and it's an American one. There is an amazing one in Canada, http://endometriosisnetwork.com. I have been to a few of their events and they are a fantastic organization. Can they be added to the organization options?
Hi, I started tracking my pains more closely a few months ago and discovered that they happen every 90 minutes or so and last 15 minutes. I became increasingly amazed at how consistent it was, to the point where when pain started I new it would ease off in 15 minutes. My pain always consists of inflammation, cramping (ovaries), bloating, and nerve pain (lower back), and sometimes nausea/dry heaves.
With some research I found that there’s a digestive process called “migrating motor complex”… read more
Would anyone be interested in writing to local members in sydney / western sydney to try and raise awareness for us women with endometriosis? Starting small and wanting to make a difference. DM me or email me (Email address can only be seen by MyEndometriosisTeam users) any ideas and we can go from there. I’m doing this anyway, I thought the more names/ letters, the more likely they’ll listen. I had an idea where each person interested would write a paragraph about themselves and how endo… read more
I was given a 6 month treatment of zoladex to try manage my symptoms on endo which had some improvements but since been on it I've had a 6kg sudden weight gain that I cannot budge and no sex Drive. I've been off the zoladex for 6 months, I'm a newly wed and used to have one very healthy libido. Getting very frustrated with being patient. On the side I am also seeing a women's health physiotherapist to help manage vulvodynia, which I know has had a large impact on my desire due to pain but I… read more
Hey guys. So I've been feeling kind of off the last few days and I thought it was endo related. I've just been super tired and just pretty blah. I was just talking to my fiancé about it and how I've been super moody lately. Then we both wondered if I could be preggo. We didn't have any extra pregnancy tests, so I used an ovulation test and it came back positive. I looked online to see if you could use an ovulation test as a pregnancy test and it said yes you can. So now I'm wondering I'm… read more
Hello everyone. I'm about to have Robotic Assisted Laparascopic Excision Surgery that includes a Hysterectomy in about a month. I am feeling a bit nervous. I think that if I had a better understanding of how I would feel post op from the moment I wake up to about 2 or so weeks in to recovery then I might feel less axious. Has anyone else had this surgery? How did it feel waking up post op? What levels of pain did you experience during recovery and what helped to relieve them? I'd like to know… read more
It's been 1 year since my (second) lap, and a few months ago I had an ultrasound that showed it came back all over my left side. This week has been brutal. Pain all up my left side, intense pain in my sides near my back (I'm assuming kidneys because during my surgery there was endo all over my ureters), reflux that is killing me, fatigue that is even worse than usual (and the usual fatigue is horrific), and my belly just keeps getting bigger. I want to go to the ER because I KNOW that something… read more
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