Hey guys. So I've been feeling kind of off the last few days and I thought it was endo related. I've just been super tired and just pretty blah. I was just talking to my fiancé about it and how I've been super moody lately. Then we both wondered if I could be preggo. We didn't have any extra pregnancy tests, so I used an ovulation test and it came back positive. I looked online to see if you could use an ovulation test as a pregnancy test and it said yes you can. So now I'm… read more
It's been 1 year since my (second) lap, and a few months ago I had an ultrasound that showed it came back all over my left side. This week has been brutal. Pain all up my left side, intense pain in my sides near my back (I'm assuming kidneys because during my surgery there was endo all over my ureters), reflux that is killing me, fatigue that is even worse than usual (and the usual fatigue is horrific), and my belly just keeps getting bigger. I want to go to… read more
Would anyone be interested in writing to local members in sydney / western sydney to try and raise awareness for us women with endometriosis? Starting small and wanting to make a difference. DM me or email me (Email address can only be seen by MyEndometriosisTeam users) any ideas and we can go from there. I’m doing this anyway, I thought the more names/ letters, the more likely they’ll listen. I had an idea where each person interested would write a paragraph about themselves and… read more
I had Laparoscopic surgery/hysteroscopy/D&C on Tuesday. Waiting for an apt to get my results and to be told what happened during surgery.
Just wondering how long everyone bled for and how long till you could resume to activities? (Work, exercise, sex, etc)
I was given a 6 month treatment of zoladex to try manage my symptoms on endo which had some improvements but since been on it I've had a 6kg sudden weight gain that I cannot budge and no sex Drive. I've been off the zoladex for 6 months, I'm a newly wed and used to have one very healthy libido. Getting very frustrated with being patient. On the side I am also seeing a women's health physiotherapist to help… read more
In the "My Team" area where you can add providers, it gives the suggestion to add an organization but it only give one organization as an option and it's an American one. There is an amazing one in Canada, http://endometriosisnetwork.com. I have been to a few of their events and they are a fantastic organization. Can they be added to the organization options?
My OBGYN sentsent me to an oncologsist who is going to perform a surgery to remove an entire layer of tissue on all of my organs becuase of my debilitating pain. Has anyone had this type of surgery?