Questions & Answers

Turn 44 next week.
Have very low AML levels + low FSH/LH levels. Will hear back from doctor in a few days for next steps.

History:
Hysterectomy + excision surgery due to adenomyosis + endo in 2020.
subsequent OP in 2024 for cyst + chronically inflamed appendix in 2024, but endo op has worked, my intestines are endo free 🙏
Now, mood swings, weight gain, phantom periods, pool sleep…

I’d say I’m at a 3 most days when in pain not menstruating. And a 5 when menstruating. However, this is my 2nd period off BC now and the pain is not as present (other symptoms definitely are) and have me questioning some things. Would LOVE to hear from y’all!!

Having suffered with endo since I was fourteen years old, only to receive a diagnosis after nineteen years, I know how psychologically taxing living with this illness can be. Not to mention the constant medical gaslighting many of us endure.

With lived experience of struggling with Endo, I plan to specialize in chronic illness, chronic pain and women's health. If you are interested in receiving counselling, please get in touch with me. For my fellow endo warriors, I can provide a sliding-scale… read more

Gather
- A mini spray bottle or a cup
- 1 cup warm water
- 2 teaspoons distilled white vinegar (DO NOT use apple cider vinegar)

1. Shower, if in morning or night and you won't go pee again soon. Only use water down there
2. Go pee and wipe as normal. You could pee before the shower. Do not use a wet wipe. The idea is you won't need to pee again anytime soon (this way it can "sit and do it's thing".
3. Mix together in whichever container you have.
4. Apply to the OUTSIDE of all parts; around… read more

Stage 4 endo over here! I have had multiple surgeries, now just taking Visanne but I have gone from 65kgs to 80kgs!!! I loathhhh it, it is horrendous. Has anyone had success in using something else without the weight gain symptom?! I am very active I ride multiple horses a day for around 2 hours a day and I eat nothing bad for me and nothing will budge this weight. Have even tried starving myself, still nothing. Veryyyy concerned over here as I am an anorexia survivor and I feel myself swaying… read more

Hi all, it has been a while. I hope you’re all well! I’m not that great with posting a lot of the time, but will try to keep up with my post as I’m back to working full time in a more physically demanding job than the previous, but I’m enjoying the new job
To the question… I’ve been finding that when I’m having a particularly difficult flare, that the pain travels down my right leg (sometimes left, but mostly right) and towards my knee and it is excruciating & I struggle to sleep or do anything… read more