Endometriosis

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Laparoscopy recovery

Hi, I had a diagnosis laparoscopy on Tuesday 13th November but I’m fed up of being sore already, how long would you say it takes to recover. I’m so paranoid about blood clots etc so I have been moving about as much as I can and drinking plenty of fluids just wondered what everyone else’s recovery time was?

posted 5 days ago
A MyEndometriosisTeam Member said:

Unfortunately it took me about three months to fully recover but I had a hormonal imbalance and a uterine infection. I hope it goes better this time.… read more

posted 4 days ago
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How painful is getting your cervix cauterized??

I recently had my pap smear/pap test done. My doctor noticed that I had bleeding along my cervix and that skin seemed sensitive/irritaed. I also had her check the strings to my IUD (Mirena- my current treatment for endometriosis) and she said they were in the perfect position.

After completing the pap smear, she informed me that I may have to have my cervix cauterized?? I do experience bleeding after intercourse once in a while. I was wondering if any has ever had… read more

posted 5 days ago
6 medium

Endo regrowth post lap

Hello, ive had an excision surgery done on tuesday (November 13th, 2018) for stage III endo. Im wondering how long people were pain free from the disease afterwards. Idk why but sincr before the surgery i thought once its done it would be over forever but now the reality of it all is starting to settle. So please let me know how long after your surgery did endo come back and if not, what extra little things did you do to help your body stay relatively pain free? Thank you xox

posted 6 days ago
A MyEndometriosisTeam Member said:

Hi.
I have deep excision in 2016. The surgeon took biopsies and endo was confirmed. My recovering was difficult. I also had a hernia on abdominal wall.… read more

posted 4 days ago
6 medium

Abnormal uterine bleeding

Has anyone had abnormal uterine bleeding that varies in flow? I could be fine the whole day with just some spotting sometimes then at night I have a heavy flow soaking through my panties or sometimes it can be heavy the whole day or light the whole day. I also keep getting reoccurring BV infections . My doctor can’t seem to find a cause for my bleeding since I have no fibroids , cysts or endometriomas. I had a d&c a few months ago that helped me for a few weeks but then I was back… read more

edited, originally posted 6 days ago
A MyEndometriosisTeam Member said:

Did you have a laparoscopic surgery to rule out endo?

posted 5 days ago
3 medium

Please reply regarding pelvic floor PT

Curious to hear about other experiences with pelvic floor pt!

Did it help your pain, symptoms, even at all? and how so?

Did you find that after a session you are in pain for a day or 2?

- I expect the soreness that arrives post internal work, but if my uterus also aches more after is that a red flag it isn’t helping?

I have gone only 4 times so far but am still unsure how to tell if its doing something.

posted 6 days ago
A MyEndometriosisTeam Member said:

Ive been receiving P/t since the beginning of the year to address my overactive pelvic floor muscles and I most recently started using the therawand. My… read more

posted 2 days ago
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Has anyone had to quit their job due to endo?

I recently had to quit my job due to the heavy bleeding and pain I suffer from endo. It was becoming too hard to miss work every month. I feel terrible that people might get the impression that I’m lazy or I’m over reacting. My husband is very supportive... thank God. Am I alone? or has anyone gone or is going through this? Thank you ladies!

posted 6 days ago
A MyEndometriosisTeam Member said:

It feels so good to know that someone else is experiencing what I'm going through!

posted 4 days ago
6 medium

Gastritis and endometriosis?

Has anyone experienced Gastritis with Endometriosis. I have had 2 surgeries in the past for moderate-severe endo. My first surgery was done my a general surgeon (not a specialist) as I had so much pain and found walking hard. They cut out a rugby ball size cyst. Id always had a pot belly.
2nd surgery at 21, it was all over the show but no big growths that could be identified on any scan. I am now 34, Ive had 2 kids, yay. But before the kids I noticed I was having times of extreme… read more

posted 6 days ago
A MyEndometriosisTeam Member said:

i also would LOVE to go on the progestrone pill and kept trying at the breastfeeding, but the progestrone pill never worked for me. i just bled all the… read more

posted 6 days ago
1 medium

Advice on issues with birth control for period pain

Hi guys, just wondering if anyone has any advice on how to deal with the side effect of birth control. i have been place on several different types of pill ( both combine and progesterone only), to help with suspected endometriosis. None of the birth control pills i have tired seem to be helping improve the pain and other symptoms that come long with my period. my period have just become way more frequent to the point where i am having them every other week.… read more

edited, originally posted 7 days ago
A MyEndometriosisTeam Member said:

The only pill gave me pain relief is an almost natural progesterone - prometrim 100mg * 10 days /month to regulate the period ( I dont have regular… read more

posted about 9 hours ago
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Has my period changed because of endo?

I’ve had the contraceptive implant on and off for the last 6years so my periods have always been irregular. I can go months with not having a period and then have some light spotting lasting a few days. Last month I had my normal spotting but this month I started spotting again but after one day of spotting it’s changed to black and sometimes clots. This has been going on for 9days now. Could it be down to endo (was diagnosed in 2011) or just my body having a period clear… read more

posted 7 days ago
A MyEndometriosisTeam Member said:

Endo effects our hormones. So it definitely could be interfering.
The black is old blood. So where you are not having a period, it will be a lot of old… read more

posted 7 days ago
5 medium

How long did the pain/side effects last for anyone starting the lupron shot

posted 7 days ago
A MyEndometriosisTeam Member said:

Hi! I’m on my third Lupron shot. I get hot flashes, headaches, some dizziness and joint pain. Hot flashes happen everyday. Everything else happens once… read more

posted 6 days ago
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