Endometriosis

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Is it normal for your nerves to be affected when taking visanne

Is it normal for your nerves to be affected when taking visanne

Hi all,

I’ve been feeling really troubled as I’ve been feeling numbness in my limbs (sometimes even on my tongue and jaw). I’ve called up my gynae and he said that this numbness and tingling is a side effect of getting rid of the water retention. However, I’m concerned if it’s a symptom of something more severe such as blood clots. Has anyone been through this?

Endo belly problems.

Endo belly problems.

I have endometriosis stage 2. Im 5’7 & weigh 130 lbs. (I consider myself to be slim figured) When I wake up I’ll have a somewhat flat belly but as soon as I finish eating my endo bloated belly shows, it makes me feel so uncomfortable. I almost look 3-4 months pregnant. I have skinny legs so it’s so noticeable... Anybody else struggle with the same thing? Any advice for me to take some something that might help the bloating?!

A MyEndometriosisTeam Member said:

I think I will need to change my whole diet.. gluten & dairy free!

posted 1 day ago

Needing Advice

Needing Advice

I'm really still trying to understand Endometriosis. I had lap surgery Feb. 4, 2019 and started Depo. Apr. 8, 2019. So unsure of what's going on with, I recently had a trans vaginal/trans abdominal ultrasound on Oct. 7 2019 which came back normal however needed is a full bladder which I had and it sent me into abnormal levels of pain in my lower back. I was doubled over and crying uncontrollably until I was able to release some urine. My question is...could that pain in my back be an indicator of… read more

A MyEndometriosisTeam Member said:

Oh cool! I didn’t know that! Now I can get a laugh on all the socials!

posted 1 day ago

Help/ advice needed

Help/ advice needed

Need help/advice/suggestions
First got diagnosed in 2008 after years of being misdiagnosed, fobbed off again after suffering for 6 years prior, finally in 2015 they booked me in for a laparoscopy I was diagnosed as stage 4 and they had to rebook fo additional surgery and an endo specialist. 2016 8 hours of surgery with 2 surgeons couldn’t remove from my bowel or bladder and other areas organs fused etc. Later my partner and I decided to try for a baby, 2017 I was referred to a fertility… read more

A MyEndometriosisTeam Member said:

Follow Nancy’s Nook Facebook page. It has a list of excision specialist and where they are.

posted 2 days ago

Hi ladies

Hi ladies

I would like to know if the pains I have feeling lately if anyone has experience them and what i can take.
I have been experiencing pains such as severe headaches, back pains, painful nerves on my legs which causes me not to be able to walk for few minutes or so.
I would appreciate your response from you ladies. May you all have a lovely day further.
Remember we keep soldiering on till the end.

A MyEndometriosisTeam Member said:

Have the same symptoms. I went for physiotherapy helped a lot , and accupuncture

posted 5 days ago

Hi ladies

Hi ladies

I would like to know if the pains I have feeling lately if anyone has experience them and what i can take.
I have been experiencing pains such as severe headaches, back pains, painful nerves on my legs which causes me not to be able to walk for few minutes or so.

I would appreciate your response from you ladies. May you all have a lovely day further.

Remember we keep soldiering on till the end.

A MyEndometriosisTeam Member said:

I m tired about everything

posted 5 days ago

Period missing in action

Period missing in action

Hi team,

Haven’t posted on here in a long time but seriously need some advise. My period is 9 days late. Been having really bad moods for 2 weeks, stomach cramps, back ache. I had pain on one side the other day. I generally feel achy and have a low dull ache type cramp. I am using the bathroom a lot. Have had constipation. I have bad fatigue to the point where I could sleep at my desk. I’m so irritable it’s ridiculous. I had really sore boobs for about 4 days to the point where I could… read more

A MyEndometriosisTeam Member said:

Oh sorry! It sounded like a ttc post. Hope you find your answer soon.

posted 2 days ago

Does anyone else bleed only old blood when on your period?

Does anyone else bleed only old blood when on your period?

Everytime I have a period I have noticed that I dont bleed the red blood that I should. I only bleed this dark brown looking blood. Even the blood clots I pass aren't completely red but more brown. My obgyn said that I'm bleeding old blood only. Does anyone else experience this?

A MyEndometriosisTeam Member said:

Yes! I also experience this. I have been unclear as to why for so long now. Sorry I don't have any answers, but you're not alone in this.

posted 6 days ago

Undiagnosed — Do I have endometriosis?

Undiagnosed — Do I have endometriosis?

Hello, ladies!

I am new here and I want to know if I have endometriosis based from the symptoms you get. I read about it and other symptoms, and I truly believe I have it, but doctors have not diagnosed me with it. I have gone to countless doctors in my city, have gotten scans after scans, yet there is no sign of cysts or anything they can see. So I haven’t been diagnosed with endometriosis.

My story:
Ever since I had my period at age 14, i’ve had really bad cramps and it gets… read more

A MyEndometriosisTeam Member said:

Thank you! Yes, I am looking for another gynecologist who will listen to me and send me to a specialist so I can get a laparoscopy. I hope you feel… read more

posted 3 days ago

Burning/ tingling/ numbness

Burning/ tingling/ numbness

I have a lot of burning/ tingling/ numbness in parts of my body with my endo. I know having that pain is more popular in my legs but I also experience that pain in the upper part of my body in my scalp, face, and arms. Does anyone else ever experience that?

A MyEndometriosisTeam Member said:

Nope, i have not experienced that

posted 6 days ago
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