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Following. This is part of my surgical plan as well.
@A MyEndometriosisTeam Member. My work place is terrible. There is no consideration regarding my conditions. Most of time I get comments about how much I miss work from co workers. Work is unpleasant… read more
I am 33 years old and was diagnosed with stage 4 endo of the bowels in 2015. I have had one laparoscopy in 2015 and have been on Visanne since and thus haven't had my periods or been in any pain. I want to try and get pregnant this year, but I am very scared about the pain coming back and not being able to fall pregnant.
Your diagnosis is very similar to mine, except I've just started Visanne and have 6 months to go... Would love to hear any updates once you have them. Are assisted fertility treatments an option for… read more
I didn’t spend years complaining to doctors and not being heard. I found out about my endo in the search for what caused hypertension which ended up being severe hydronephrosis of my left kidney. By this time I had a bunch of other far reaching symptoms and anomalies on my blood work. It was quite the diagnostic dilemma but I was very lucky to have a doctor who really listened, sent me for tests and was just really engaged, leading to a diagnosis within about a year
I feel very fortunate to… read more
I’m sorry it’s gotten so bad. I hate that they refer to this as a benign disease. I hope you have all the love and support that you need to get through the surgeries and recovery. ♥️
I have endometriosis of the uterus
I had a total hysterectomy about two years ago, but still have both my ovaries. The pain relief was great, especially because I had adenomyosis as well. I’ve been having a lot of hormone issues again… read more
She has cramps and spotting. She feels so worried and overwhelmed. She has gained weight as well. Any suggestions on how to loose weight . And should she be concerned with the spotting?
Any experience or advise, please
I’ve never taken Norlutate, so I can’t say. But I would consult her doctor before worrying about anything.
Spotting could occur for several reasons, having endometriosis is one.
For me regular… read more
You SHOULD doubt her expertise as she has none.
I recently had surgery for endometriosis and an drainage of ovarian cyst I had low interior bowel resection as my endometriosis bowel nodule was huge 11-12cms the surgeon thought the size was impressive I was just glad the thing was out as it was also pulling my uterus down
So is it normal that your first period after surgery should be heavy with large blood clots i didnt have that experience with a previous gynecological surgery of ovarian cyst removal
I'm just monitoring the bleeding and… read more
I didn’t have the same surgery, but did experience clots after mine.
I suggest checking in with your doctor to ease your mind if nothing else and keep monitoring :)
Hope your recovery goes well 💛
I've been reading about different types of hysterectomy. If you had a hysterectomy, what type did you have? What was your experience?
I'd like to keep my cervix if possible. Was anyone else able to keep theirs?
I had a partial Hysterectomy removable of the uterus and cervix at that time he explains that I would not be able to cancer.
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