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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
7702 questions

Has Anyone Had A Vaginal Cuff Open Post Op Hysterectomy?

A MyEndometriosisTeam Member asked a question 💭

Let’s Talk Poo 💩 And Intestinal Endo. What Are The Signs/symptoms? I’m 99% Sure I’ve Got It.

A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

My appetite is gone—not even getting hunger cues. I’m alternating between diarrhea and constipation. I was in so much pain last week it brought me to my knees. I’ve already had a partial hysterectomyread more

posted July 11

Any Good Pelvic Floor Therapist In New Jersey Whose Focus Is On Endometriosis And Post-op Surgery? Any Recommendations? Thanks In Advance.

A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

Ugh!! Hate autocorrect. Her name is Niva!

posted July 9

How Common Is Free Flowing Fluid In Endometriosis?

A MyEndometriosisTeam Member asked a question 💭

Has Anyone Else Gotten Relief From Endo Pain/flare Ups By Changing Their Diet?

A MyEndometriosisTeam Member asked a question 💭

When I came off Orilissa (I was on it for 2 years) I was SO afraid to go through the pain of having another endo flare up that I completely changed my diet. I haven’t had a flare up since stopping the medication. I keep waiting for it to happen…I still have bad cramps and pain, but not a full blown FLARE UP. Has this happened to anyone else?

A MyEndometriosisTeam Member

The main changes I’ve made is cutting out all processed (inflammation inducing) foods the week prior to my period and during my period. I only eat whole, unprocessed, inflammation reducing, foods… read more

posted July 8 (edited)

Quick Question Has Anyone Ever Had A Situation Where They Stopped Bleeding For Over Two Years And Then She's Back I Can't Understand This

A MyEndometriosisTeam Member asked a question 💭

10 years with endometriosis fibroid tumors two and a half years no bleeding then wake up and she's back all over again you're sick as can be in pain even worse than when you started now it's over 50 it's worse it seems is this something serious or is this just gone back to the old drawing board has anybody experiences can give me any advice geez I hate this

A MyEndometriosisTeam Member

Thank you for the advice 😊 I will definitely be putting this into my daily diet. And still currently looking for doctors out where I live at we really care about their patient so far hasn't been great… read more

posted July 6

Does Anyone Have Any Experience Using Bio-identical Progesterone Cream?

A MyEndometriosisTeam Member asked a question 💭

Recently, I've been getting extreme hot flashes and night sweats. All day and night, I am sweating. Going through countless outfits, I reverted to using 100% cotton for clothing and bedding. It does help and keeps you more relaxed. 🙏
Anyway, I learned about bio-identical progesterone cream by doing some research due to the suffering of my symptoms. I used it for six months and noticed a significant difference. My hot flushes got less severe, and my mood improved. I felt good. I didn't do much… read more

A MyEndometriosisTeam Member

No experience with the cream but my heart goes out to you. Sorry that we women end up with so much mess than any one can ever imagine! Please do take care of yourself and I hope you find some help… read more

posted July 4

Curious If Anyone Has Taken Orlissa? My Doctor Is Considering Putting Me On It.

A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

Prayers

posted July 7

Does Anyone Know Of Any Support Groups For Spouses Or Caregivers?

A MyEndometriosisTeam Member asked a question 💭

My partner does the bulk of the caregiving, especially recently given my surgeries. I know he could benefit from a safe space to talk with other partners in similar situations.

Do Any Of You Have Hip Pain With Endometriosis? I Am Having The Most Pain When Trying To Sleep On My Side. Can Endo Affect The Hip Tissue?

A MyEndometriosisTeam Member asked a question 💭
A MyEndometriosisTeam Member

I had extreme hip pain. It slowly went away about 6 months after my excision surgery. I still have some flare ups. TENS machine helps, as well as making sure I have proper vitamins like B complex… read more

posted 6 days ago
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