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Endometriosis

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Do You Think I Have Endometriosis?

Do You Think I Have Endometriosis?

Hello everyone, I’ve been back and forth from doctors and specialists for over a year now trying to find the cause of an ammonia smell that is only on my underwear near my BUTT, not the front. My black underwear has been bleached around that area and I’ve never smelled an ammonia smell like this before, it is like straight hair dye chemical smell. Sometimes there is a mucus leakage from my butt. I thought I had parasites or something so I went to the doctor for blood work and then directly to my… read more

A MyEndometriosisTeam Member said:

You might want to consult with an Endo specialist. There is a list on Nancy's Nook.

posted 13 days ago

Anyone Taking Duphaston ?

Anyone Taking Duphaston ?

I've been told by my gynae to take duphaston continuously for my stage 4 endometriosis and to shrink two cysts i have on each ovary 3 months ago. With changing my diet to palbt based and elimating coffee and alcohol my both cysts shrunk tp half its sizes in a month and a half. My period was 2 weeks later than usual upon my first month of duphaston. Now my period is 24 days later but I've been spotting a bit around the two times it was due. Has anyone had to take duphaston continuously and did… read more

A MyEndometriosisTeam Member said:

Endo makes its own estrogen so even if you continue this medication the Endo Lesions will still grow deeper. Please check out Nancy's Nook.

posted 15 days ago

Endometriosis And Lupus

Endometriosis And Lupus

Does anyone suffer from Lupus as well as endometriosis.

A MyEndometriosisTeam Member said:

I know
I just got back from the dr. & go my Stress Test results & says there is a little abnormality but not to worry about it right now
I have so many illnesses that I just live 1 day at a time.
I… read more

posted 10 days ago

Covid And Periods

Covid And Periods

Has anyone found that after having Covid, their periods have been messed up? My periods have been getting closer and closer together until I’ve ended up just bleeding constantly. I’m waiting for an ultrasound appointment but I am just wondering if anyone else has experienced anything like this?

A MyEndometriosisTeam Member said:

Thank you so much Jamie! I’m really hopeful it’s just post covid messing with me and nothing serious! x

posted 16 days ago

Pain Medication Tips??

Pain Medication Tips??

Anybody have any pain med recommendations. Torridol worked in ER and at home a couple of times, but this go round🤷🏽‍♀️

A MyEndometriosisTeam Member said:

Unfortunately I'm allergic to toradol bc it's technically an NSAID and those cause me to bleed internally. Maybe super high dose of ibuprofen? If u want something natural wheatgerm oil helps a little… read more

posted 9 days ago

After A Hysterectomy Os It Normal For Awhile To Have Pain When Urinating?

After A Hysterectomy Os It Normal For Awhile To Have Pain When Urinating?

A MyEndometriosisTeam Member said:

Yes sometimes bc of the catheter they put in and sometimes they will shoot dye up your bladder to take a look inside during the surgery and that could also cause burning but it should go away after a… read more

posted 9 days ago

Small Bowel Endo?

Small Bowel Endo?

Hi all, I trying to find someone who has had small bowel endo , or has the same symptoms as me? I had a bowel resection for endo in my sigmoid colon, but for the past 2 years (have had uterus removed,retained ovaries) I've had cyclical blood in stool, bloody mucus..which over the last few months has progressed to passing small blood clots with stool and actual pieces of bowel lining/mucosa. It's obv very painful still. My bowel consultant has checked large bowel but can't find it. He thinks it… read more

A MyEndometriosisTeam Member said:

I am so sorry
I have bowel isues too but to embarrassed to say how it is but everyone says I should tell the dr. but too scared
I think I might have cancer & just waiting .
No one really knows what… read more

posted 5 days ago

Period After Laparoscopy+hystroscopy D/c

Period After Laparoscopy+hystroscopy D/c

Hey everyone
So i had my laparoscopy surgery 3 weeks ago and they found i have endometriosis( win, lose situation🤷‍♀️), they removed the endometriosis from my bowl, pouch of Douglas and all over on my right uterosacral
Im due for my next period in 4 days i started getting pains (like i get on my period ) 9 days ago.. im tired im in pain(lower abdomen all down my legs) i struggle to go to the toliet. Im so stressed out and worried that because of this my period will be horrible more than… read more

A MyEndometriosisTeam Member said:

I agree with having someone give u a lower back rub. Definitely try suppositories! Also I found out through the 45 plus surgeries I've had there is this coffee called bullet proof and if u French… read more

posted 9 days ago

Orilissa

Orilissa

My doctor just lowered my dose of Orilissa from 200mg a day to 150mg a day. I’m in a lot of pain again. Anyone else have this same issue? It’s awful.

A MyEndometriosisTeam Member said:

No. Orlissa may help with the pain but the Lesions are still growing deeper because Endo makes its own Estrogen. Check out Nancy's Nook Or I care better to find a Dr. who is an Endo specialist and… read more

posted 18 days ago
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