Endometriosis

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Pain after surgery

Pain after surgery

I had laparoscopic surgery about a week and a half ago, and I still cannot pee without being in terrible pain. It doesn’t feel like a UTI to me; it’s a pain that starts around my bellybutton and then kind of fans outward from there and lasts a few minutes. But it’s bad enough that I can’t stand or breathe very well. I did call my surgeon, but he wasn’t available and the nurse I talked to told me not to worry about it. But I’m worrying anyway. Have any of you ever experienced anything like… read more

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A MyEndometriosisTeam Member said:

I had pain, but only for 2-3 days after at the most. I would call again if you don't feel like it is improving.

posted 4 days ago
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How to get pain meds?

How to get pain meds?

So I had larascopic ablation and cyst removal done about two weeks ago. The dr prescribed tramadol for the pain. Unfortunately I left the script for the meds in my friends care who i cant get ahold of. I had a few pills left from a previous prescription but I'm down to 3 pills. Problem is that suddenly my pain has come back full force and now that I'm back at work I need the meds to get through my shift. I heard some people where able to get meds prescribed through pain clinics. How do I… read more

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A MyEndometriosisTeam Member said:

I can usually call my doctor and he'll send over the script electronically but tramadol is not something that you would want to keep taking the side… read more

posted 5 days ago
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Taking 1/2 of orilissa pill?

Taking 1/2 of orilissa pill?

I skipped a day of medication and today I tried taking half of the pill. I didn’t need to take a nap today. This medication makes me so exhausted. Has anyone else done this on the lower dose 150?

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A MyEndometriosisTeam Member said:

I did that once when i was on my conception pill then when i did that it made me tired and upset my period cycle. Now i am on HRT patches and pills i… read more

posted 6 days ago
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What do you suggest to try about chronic pelvic pain?

What do you suggest to try about chronic pelvic pain?

It’s like my pelvic pain is starting to become unbearable and no anti-inflammatory drug is helping. I’ve tried ketorolac, Diflunisal, tramadol, orilissa, I’ve now got the iud but I feel like it’s just getting worse. .

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A MyEndometriosisTeam Member said:

Thanks

posted 5 days ago
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Has anyone took visane and keep bleeding I've been bleeding for 3 weeks so far ?

Has anyone took visane and keep bleeding I've been bleeding for 3 weeks so far ?

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A MyEndometriosisTeam Member said:

Also if you can't take high amount s long term how does it help endometriosis then since it's not curable

posted 6 days ago
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Partial hysterectomy scheduled

Partial hysterectomy scheduled

Hello! I’m new here and I have a partial hysterectomy scheduled for next month has anyone done this to help with the endo and the pain? She said she may have to take my ovaries but is hoping for a partial. Any advice helps!
Thanks!

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Endo and soda/ lemonade?

Endo and soda/ lemonade?

So had a great day..then had a lemonade and now im in excruciating pain, real low terrible stomach pains..this has ALWAYS been the case with drinking soda and I havent had a soda since i was 11, I'm now 28, but I havent had a lemonade in years. Does anybody experience this and or know why it may cause so much pain. Also ive not been on here much bc I'm still waiting for my apt to discuss a possible laparoscopic surgery on August 22nd.

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A MyEndometriosisTeam Member said:

Oh, and I am having technical difficulties, but a friend of mine with interstitial cystitis says she can't have anything acidic. You may have said this… read more

posted 5 days ago
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Side effects of lupron and orlisa

Side effects of lupron and orlisa

I hear allot about these drugs and have heard that the side effects are horrible. I recently had larascopy and the next step is likely going to bc e one of these meds. Why are the side effects so bad? I looked at the side effects listed and most of them seem to consider eith menopause pause due to the way the meds work but are there other effects to be weary of?

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A MyEndometriosisTeam Member said:

thx guys, i can't believe this medication is still approved for use in the us or anywhere else

edited, originally posted 7 days ago
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How to stop Orilissa?

How to stop Orilissa?

I’m on my second month of Orilissa and it has been quite a short ride. I have lost ten pounds since starting Orillissa because my anxiety has been so bad that I have trouble eating.
Do I just start taking my bc in place or Orillissa dose?

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A MyEndometriosisTeam Member said:

My doctor just stopped me because of the side effects was horrible for me . . And put me on a different type of birth control

posted 6 days ago
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Does anyone else with endo have other chronic pain diagnosesis?

Does anyone else with endo have other chronic pain diagnosesis?

I have endo but also have degenerative lumbar disease, interstitial cystitis, fibromyalgia, TMJ disorder, both herpes and hashimotos thyroiditis.

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A MyEndometriosisTeam Member said:

You're definitely not alone. It's actually not uncommon for women with endo to have additional health issues.

posted 7 days ago
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