Endometriosis

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9 medium

I don’t have Facebook. Could anyone check for a specialist in the Tulsa, OK USA area? I would greatly appreciate it. Please and thank you!

posted 1 day ago
A MyEndometriosisTeam Member said:

I wish I could help you but I don't have F.b.

posted about 21 hours ago
3 medium

How hard was it to get pregnant?

Did your doctor say that you were high risk because of having this? and did he tell you that it was a bad idea to try?

posted 1 day ago
A MyEndometriosisTeam Member said:

My first gyno said I had a 1% chance of getting pregnant. Said if I did it would be more than likely a tubal or ectopic. 5 years later I had my second… read more

posted about 15 hours ago
2 medium

Mirena IUD and mood swings

I had a laparoscopy last May and had a Mirena IUD put in at the same time. Since then, I've had issues with anxiety, depression, fatigue, and mood swings that have been slowly getting worse (along with all the pain and then some that had sort of lessened after my laparoscopy). I'm not sure what to do, as it is getting harder and harder to get out of bed between the month long cramps and everything else. Does anyone else have this experience with Mirena, and if so what did you do? If it… read more

posted 1 day ago
A MyEndometriosisTeam Member said:

I had mirena for a year and bled that entire time. I would get it taken out.

posted 1 day ago
1 medium

Orlissa

How has this drug treated you?

posted 1 day ago
A MyEndometriosisTeam Member said:

Ladies, you confirmed my research that Orilissa is similar to and works like Lupron and Synarel.

posted about 4 hours ago
1 medium

Chronic UTIs

Does anyone else get chronic UTIs? I have tried everything to stop getting them, they are getting worse and more painful. I eat very clean, exercise, drink lots of water and have tried adding supplements in as well (d-mannosse, cranberry, etc.) and they will not stop coming back. Does anyone know if UTIs are related to Endo? I know some people got them chronically before surgery and what not. Thanks!

posted 2 days ago
A MyEndometriosisTeam Member said:

Hi there,

Sorry i am just getting back to you..first chance I have been able to sit down and respond.... Love the sarcasm...I am the same way...some… read more

posted about 14 hours ago
9 medium

Has anyone gotten pregnant while on visanne?

Hi guys,
Could someone please tell me if it's possible to get pregnant while on Visanne, been on Visanne for the past year, I just got into a serious relationship. My gynaecologist mentioned that chances of getting pregnant while on the drug are very low so I shouldn't worry but I am. I would like to know if someone has gotten pregnant while taking the visanne pills.

posted 2 days ago
A MyEndometriosisTeam Member said:

I would definitely double up on the birth control just in case. A diaphragm and or sponges and spermacidal foam. My friend did that.

posted about 18 hours ago
2 medium

Swollen face

For the past 2 days have woken up with really swollen face and eyes does anybody else suffer with this ..I’m a bit concerned xx

posted 2 days ago
A MyEndometriosisTeam Member said:

Please let us know how you're feeling.

posted about 19 hours ago
9 medium

Are these symptoms normal for Visanne or any other Endo Meds?

Hi!
I was recently prescribed Visanne and I'm having symptoms that are affecting my life quite a bit.

I have constant hunger, it always feels like I haven't eating in days.
I'm gaining weight. As in a few pounds a day, at this rate I will be severely overweight in a few weeks.
I have acne all over my face, my neck, and my back.
My breasts are so sore and they are growing. Which is awful for me because I don't even want breasts.
I am so exhausted I'm… read more

posted 2 days ago
A MyEndometriosisTeam Member said:

Ive also had weight gain since I started visanne last year August. I stopped gaining last month. I lost my appetite as well. I havent lost any of the… read more

posted 2 days ago
8 medium

Does historectomy stop the pain?

I am having my historectomy done in the next few weeks. I have people saying it will change my life but I read all these women saying that the struggle continues even after surgery. Is that just a certain percentage of people with additional complications or unique situations or is that all endometriosis patients who have a historectomy?

posted 3 days ago
A MyEndometriosisTeam Member said:

The extent of the surgery will depend on what he finds. He will try to leave an ovary to keep me from going into menopause but I have cysts so that… read more

posted 2 days ago
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