Does anyone out there have both interstitial cystitis and endometriosis, have good information on both endometriosis and interstitial cystitis and how they relate and effect eachother. I have both and I'm not doing well I'm in pain ever day most of the day. And I don't feel like my gyn really understands my situation as he only addresses the endometriosis. He makes me feel like I'm making up my pain and symptoms. Very depressing as this only makes me feel more alone and hopeless.
I would recommend getting a 2nd opinion if you don't feel your current gyno is helping you the way you need/want them to. You have to do what's best for you and that might mean seeking help somewhere else. You also might want to see a specialist for the cystitis as well since that is a different area than the reproductive organs. Also, I've heard acupuncture is a great way to treat the pelvic pain. I haven't had to use it myself but I've heard of many others using it. Just a thought...
I see a gyno and a urologist. They work together and share info. I still am in constant pain but at least I am FINALLY getting consistent pain management thru meds and therapy.
Thanks for your help. I will look for a urogyncologist.
I have not been diagnosed w IC yet although I'm pretty sure they will find it. It appears so far to me from what research I have done that u will have to see 2 doctors.
I think most male doctors don't really care bc they don't really understand the pain !! There's no way they know how we feel !