Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEndometriosisTeam Member asked a question 💭
Salt Lake City, UT

So I am not sexually active but I am concerned by comments and other things I have been reading stating that painful intercourse is just part of the endo life. Are there any women out there who don't experience this problem? Or who experience pain in such a small amount that it is bearable and somewhat enjoyable? Have any of you found that a change in your diet or a laparoscopy has helped with this problem?

October 4, 2015 (edited)
 · 
Reactions

Answer Summary

Members responded to a question about painful intercourse with endometriosis, with many sharing that pain-free or mostly comfortable sex is... Read more

Members responded to a question about painful intercourse with endometriosis, with many sharing that pain-free or mostly comfortable sex is absolutely possible, even with severe disease, though experiences vary widely regardless of stage. Several members described how excision surgery significantly reduced or eliminated pain by removing lesions around the cervix, uterus, and rectum, while others found relief through dietary changes like going gluten-free and dairy-free, experimenting with different positions, or timing intimacy away from their cycle. A recurring theme was that this forum naturally highlights problems more than positive experiences, so members encouraged not to worry in advance and to take things one step at a time, knowing that many women with endometriosis do enjoy fulfilling intimate lives.

A MyEndometriosisTeam Member

After my first lap and getting a lot removed from around my cervix, uterus and rectum I do not have the pain I once had during intercourse! My husband has noticed that he can go deeper than what he could before. There are some good threads with tips on making sex less painful/more tolerable on here.
Everyone is different and someone with stage four may not have any pain, and someone with stage one can have severe pain. It is such a bizarre disease that everyone seems to have different experiences.

There are many women with this disease who enjoy pain-free sex! Keep in mind that this forum is mostly people talking about and looking for answers for what they are having problems with and those with the same experiences offering advice, so it is unlikely to see someone talking about great, pain-free sex, does that make sense?

Don't worry or fret unless it becomes an issue for you. I have found that if you worry or fret about each potential thing that can become problematic with endo that you may see on here, you can make yourself crazy. One step at a time. Hopefully intercourse won't be painful for you, but if it is, this is the place to ask about what you can do.

Good luck!

October 7, 2015
A MyEndometriosisTeam Member

I think it really depends whereabouts your endo or scarring is..I think if you relax and try different positions to see what is more comfortable for you,you will be fine xx

October 6, 2015
A MyEndometriosisTeam Member

I don't experience pain with intercourse and never did. I had a 6cm chocolate cyst on my ovary, endo on my cul-de-sac, as well as the peritoneum, and bladder. So yeah, my endo was pretty bad and I had no pain with intercourse. I hope this makes you feel better or gives you hope! :)

October 5, 2015
A MyEndometriosisTeam Member

I've never experienced pain with sex from my endo although if you try and have sex on the tail end of a flare up you could make the flare up worse

October 6, 2015
A MyEndometriosisTeam Member

I do experience pain, cramping, and nausea after sex. My doctor thinks I have Adenomyosis in addition to Endomitriosis. But I saw your question about diet and wanted to share my experience is my diet change so far. I have recently started a gluten-free and lactose-free diet: essentially a "anti-inflammatory" diet. I also switched to tea instead of coffee (this was big for me). It's been about a month and I do feel a bit of relief in my stomach. My nausea has lessened in the mornings.

October 4, 2015

Related Questions

View All
A MyEndometriosisTeam Member asked a question 💭
Edinboro, PA

A MyEndometriosisTeam Member asked a question 💭
Pittsburgh, PA