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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Did you know the surgeon you choose to remove your endo matters?

A MyEndometriosisTeam Member asked a question 💭
Seattle, WA

Endo needs to be removed deep and wide by the excision technique. Not every OBGYN knows how. When it's done correctly the Endo has a very small chance of returning. Call one of these Surgeons and take care of yourself. If it's not possible to see one of these surgeons, still call and they can recommend a quality surgeon near you , who can give you good care.

October 28, 2015 (edited)
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Answer Summary

Members discussed the critical importance of choosing a surgeon trained in excision techniques for endometriosis removal, as proper excision... Read more

Members discussed the critical importance of choosing a surgeon trained in excision techniques for endometriosis removal, as proper excision significantly reduces the chance of recurrence compared to standard removal methods. Several members offered practical guidance for finding specialists, including calling recommended surgeons to check insurance coverage, asking specific questions about excision techniques and whether the doctor works exclusively with endo patients, and for UK members, requesting a GP referral to a specialized endometriosis clinic such as UCLH in London. A recurring theme was advocating for oneself when facing barriers like NHS coverage limitations or inadequate pain management, with members sharing their own struggles with chronic pain and treatment options like Prostap, gabapentin, and mefenamic acid while encouraging each other to seek second opinions and specialized care.

A MyEndometriosisTeam Member

Hi, you need a referral from your GP to a Endo Clinic where they specialize in treating Endo. I live in London and was referred to a Endo Clinic at UCLH; absolutely amazing doctors and top excision surgeons there. There are several Endo clinics throughout the UK so your GP can refer you to one in your area.

November 3, 2015
A MyEndometriosisTeam Member

We dont have insurance over here, its covered by the NHS, he said he couldnt remove any due to where it is on my uterus and the blood vessles under neath been to close so cant remove it. :( xx

October 29, 2015
A MyEndometriosisTeam Member

Hiya,
Im waiting for a second opinon on having a hysto as prostap and add back aint working if anything its making the pain worse and im now having irreg bleeds :/ im currently on gabapentin it helps sometimes to take the edge off so instead of been 7/8 on the pain it takes it to 5/6 but still im pain almost everyday :( xx

December 6, 2015
A MyEndometriosisTeam Member

Hi I am in London and about to go to GP for a re referal to a specialist. Did they help you with pain relief?
I am on Mefanamic acid combined with paracetamol. This month it didnt touch the pain, legs were giving way underneath me and I was at the point of collapse on two of the days. Which Dr are you seeing? Were you waiting long for your first apnt? Thanks

December 6, 2015
A MyEndometriosisTeam Member

Not as far as im aware ive seen the pics and its sitting on the top of my whomb xx

November 1, 2015

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