Hi everyone,
I had 2 surgeries to treat endometriosis which both didn't help with the pain at all. In fact, they gave me more symptoms such as longer heavier period and severe constipation. (As I have stage 4 endo that attached to the bowel and I guess it may affect my nerve to pass the bowel)
After reading stories of other sufferers, I found my case is a little bit different that I do not have everyday pain like others but my pain will be before, during and after having period only but a… read more
Have you looked into the meraina?
It was a God send after my 3rd operation had it fitted. Life changed 5 years no period and no cramps - woo hoo
Well it will depend on your surgeon mostly whether it will help. They have to remove all your female parts. but also, an appendectom. Whe. I say all, i.mean...cervix removal, remove both fallopian tubes, both ovaries, uterus, nothing left behind. Then do not take prescribed hormone replacements. It will cause regrowth, very very fast, it just un does the surgery...i found amberen..OTC. menopausal symptoms, I will tell you, I have gotten many years of relief, the only reason I have regrowth, is because of prescribed hormone medications. I have found an Over the counter symptom relief, called Amberen. It has saved my life. I do get some cramping but absolutely nothing I cannot tolerate. And also being given Botox injections all over my walls, muscles, have helped sooo much, that now if I get any cramping. It's so minimal, and it just tells me It time for more injections. My specialist does 220cc I get 1 year. And with the amberen the regrowth was minimal, and mostly on my descending colon, I know when that happens, because that has always caused me chronic nausea and vomiting, gets worse weekly till its removed. But it does not cause me pain. Endometriosis so far cannot be stopped, but it can be slowed down. But removal of everything has to be done during the full hysterectomy, i thought my first GYN surgeon knew what a full was....nope....not even when he went in a second time 10 months later...due to more severe cramping ..sooo much regrowth.. he had put me on a very very low dose...lowest possible back in 2007, hormone gel. Was in a pump, you put it on any part of your body 1x a day...yeahh...bad idea...then went without hormones by choice till I found estrogen, but that made me cramp, then by fluke chance. My dad found me Amberen..this has been a blessing from God. It doesn't happen anymore. Now I just have so many other things to handle in-between clean up and botox surgeries. Which I'm trying to prove, Endometriosis is what's going on all over my body, not just female area. But brain, stomach, back, hips, spine, as well. Hope some of this atleast helps.
I would consider the Mirena IUD oppose to the hysterectomy it has been a game changer for me. It has its fair amounts of side effects but knowing a hysterectomy does not remove endo made me dismiss the thought instantly.
I realize this post is years old but my Dr said he had never seen the endometriosis attached to a bowel like he saw with mine. I didn't realize how common this was till I started looking into it. Hope you found relief since this post was written.
I would advise against a hysterectomy. It will solve some of your problems but create new ones for you.