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Having trouble deciding to have a 2nd endo removal surgery. First surgery was 3 small spots on peritoneum. Then 6 months later I have hysterectomy. I had 9 fibroids and multiple cervical cysts. I had 3 blissful pain free year. I was severely sick for a month with debilitating bloat, feeling like I ate glass, nausea, fatigue and ovarian area pain. The symptoms are still there but mild. Does this warrant a 2nd surgery? Is that how endo works? You get breaks in between severely flares? I had… read more
When is a second surgery warranted for endometriosis after hysterectomy?
Unfortunately, endometriosis can return even after hysterectomy. A MyEndometriosisTeam member shared they were "four years post-radical hysterectomy" and "just had endometriosis excision surgery with a specialist, and it was found in three areas."
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Get as many second opinions as possible. There are colorectal surgeons out there that can do resections and just remove the diseased areas.
I had a second surgery to fix umbilical hernia and remove appendix. They removed multiple endo lesions all over the place and now they've seen lesions on the bowel. I was told its not operable because it is touching the rectum. I was told this would be a guaranteed colostomy bag because of the location. Ovary removal is still recommended. Any thoughts?
Endometriosis is a systemic chronic full-body inflammatory disease that's incurable. Do NOT remove your ovaries!
Endometriosis creates its own estrogen, blood supply, metastasizes through lymph nodes, isfoumd in every organ. It uses the same 8 genetic mutations as cancer.
Magee's I Pittsburgh has vetted endometriosis excision specialists. Please go!
Surgery was warranted because the found it on bowel, ovaries, appendix, etc.
Bowel endometriosis is near rectum and isn't removalable without needing a colostomy bag, so now they want to remove ovaries. Surgical menopause seems my only option now since I cant afford the hormone suppression meds.
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