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Having trouble deciding to have a 2nd endo removal surgery. First surgery was 3 small spots on peritoneum. Then 6 months later I have hysterectomy. I had 9 fibroids and multiple cervical cysts. I had 3 blissful pain free year. I was severely sick for a month with debilitating bloat, feeling like I ate glass, nausea, fatigue and ovarian area pain. The symptoms are still there but mild. Does this warrant a 2nd surgery? Is that how endo works? You get breaks in between severely flares? I had… read more
When is a second surgery warranted for endometriosis after hysterectomy?
Unfortunately, endometriosis can return even after hysterectomy. A MyEndometriosisTeam member shared they were "four years post-radical hysterectomy" and "just had endometriosis excision surgery with a specialist, and it was found in three areas."
Surgery was warranted because the found it on bowel, ovaries, appendix, etc.
Bowel endometriosis is near rectum and isn't removalable without needing a colostomy bag, so now they want to remove ovaries. Surgical menopause seems my only option now since I cant afford the hormone suppression meds.
Endometriosis is not a menstrual disease therefore a hysterectomy is no cure. Endometriosis is a systemic chronic full-body inflammatory disease that's incurable. We absolutely muat have excision with a vetted endometriosis excision specialist. No ablation!
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