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I'm 23 and have had almost every test in the book to try and figure out why I'm always so exhausted, have bladder/pelvic/bladder/intestinal pain. I've been told it's an overactive bladder and food in tolerances because all of my tests come back normal . I'm so discouraged that im afraid to go for diagnostics because I don't want to feel like I went for nothing. I'm supposed to go Monday for a second opinion but I'm so nervou . Any similar experiences?

February 19, 2016
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A MyEndometriosisTeam Member

Unless you have Endometrioma's (or known as Chocolate cysts) they cant pick up Endometriosis unless you have a Laporoscopy. Not all Endo sufferers have Endometrioma's.... So find a doctor willing to do a Laporoscopy! I was only diagnosed when much older (33), I always thought my "issues" were normal, unfortunately, it was so advanced - Stage 4 already! A friend was diagnosed at 14. So get diagnosed sooner rather than later.

February 28, 2016
A MyEndometriosisTeam Member

I was diagnosed at age 21. Two days after my big birthday to be exact. My advice for you is to keep looking for a better doctor. I had one that kept telling me my cysts were normal until I had one under his care. I switched to a doctor referred to me by a friend and his first words upon meeting him was only I can tell him what's going on in my body. I filled him in on everything and he said we will start at point A and go from there. That was in Oct of 03. By Feb 04 he scheduled my lap surgery. Trust that there are doctors who truly know more about endo

February 23, 2016
A MyEndometriosisTeam Member

I'm 29 and was just diagnosed a month ago ... I've been misdiagnosed for about 8 yes with the same symptoms you had ,.. I kept being sent to gastro specialists when finally, I went to emergency with a kidney infection and they did an ultrasound and referred me to my gyno

February 20, 2016
A MyEndometriosisTeam Member

I am 34 and was only diagnosed last year. I suffered with terrible periods from the beginning. I suspected it for several years, but didn't get very far. After having an appendectomy that showed cysts covering the appendix, my gynecologist was finally convinced iced. She did a laparoscopy that showed severe endometriosis, and I ended up having a hysterectomy and 4 hour long excision surgery. I pray you get answers soon.

February 19, 2016

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