Well hopefully they will refer you to her she is a great doc. Codeine and mefenamic acid was good for me for a while but they don't do much for me now days. Morphine is good but u can get hooked on that too but if u can get a low dose maybe just try it with sickness tablets for a few days see if it helps u. Amitriptyline is good for nerve pain but can make u sleepy so never good to take them in the day time. I'm taking codeine or morphine at the min but only if necessary morphine makes me dopey so try not to take to much of that. I really do hope u can find someone that will help u out its horrible to b left in pain all the time it makes u feel like your going nuts xxxx

Hi I can see why ur frustrated with him I would be too. I have Zoladex injections they put me through early menopause now they worked the first 8 months or more I was on them then a few years later I went on them again and they didn't work so well for me yet I was still told it was the endo playing up and maybe it had got so bad the injections wasn't working then I had a hysterectomy with right ovary and tube removed and left tube and uterus as after 12 years of all the treatments they could think of this was gonna b the last thing to maybe try and control the pain levels a little more. After having this the pain is driving me nuts more now than it did before. U no ur own body and if u feel u no what is going on then maybe try find a doctor that will come up with another plan to try help u. I no that's easier said than done a lot of people still don't know much. Their is a really good doctor at Oxford john Radcliffe hospital women's clinic called Jane Moore she might be able to help you more you will need to get your gp to refer you to her xx

Aw thanks girls. Yeh I am losing faith in my docs and surgeons that's for sure- they only seem to want to keep me quiet instead of helping me sort the root of it! I'm going to the docs to try and get them to refer me elsewhere hopefully to the lady in Oxford. I'm on codeine, mefenamic acid and paracetemol round the clock. I was on amitriptyline but messed with my head. Docs want to put me on morphine but Ive had 3 weeks of hell trying to come off codeine with withdrawals so I'm really reluctant to have morphine- I just sit in the bath for hours on the mess I'm on at the moment and sometimes I can't get out of bed, but I'd rather do that then be out of my mind on morphine. What are you girls on? I'm going to try herbalism and acupuncture for my pain too- maybe it could help! Lots of love xxxxxx

That's ok happy to try help out sounds like u have had s rough time with all the doctors u have had. To me I would say it's endo and u need to get another doctor hopefully they will help u to get a good gynaecologist that knows what they are talking about. What pain killers r u taking ?

I had the Lupron shot for 6 months, it did nothing for my pain and the hot flashes, might sweats and mood changes were awful. I've known I had the disease now for 16 years and I don't see new treatments, surgeries, answers so I understand how you feel. I feel the frustration also. I have lost faith that my doctors can help me.

To me everything you said sounded like endo and side effects of endo.

Keep fighting, we are all very strong women!!!