I used to sleep great, but when I start getting endo pain I have a hard time staying asleep. If the tiniest thing wakes me up, that's it, I'm awake. If I take something before bed it wears off before it can help. And I don't always have an opportunity for a nap later in my day. Has anyone found a way to get restful, restorative sleep? Only getting 6 hours of sleep a night almost every night is really wearing me down.

I was curious if anyone else has ever noticed exercise helps symptoms? I was doing CrossFit regularly and I noticed my cramping, spot bleeding, pms symptoms subside. I noticed when I am heavily stressed they come full force. But doing intense exercise did the reverse.

My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I can’t take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. It’s not just a matter of missing out on work or school, it’s the money too. I can’t afford to be off more than a day, and I’ve been… read more

Endo needs to be removed deep and wide by the excision technique. Not every OBGYN knows how. When it's done correctly the Endo has a very small chance of returning. Call one of these Surgeons and take care of yourself. If it's not possible to see one of these surgeons, still call and they can recommend a quality surgeon near you , who can give you good care.

Hey! I've been on the depo injection for close to a year now, my reason for taking it is because my doctor said it will reduce growth and prevent future growth from happening.

I've recently been told by other women with endo that this is just not true, can anyone help advise? I feel SO let down and lied to by my doctor if that's the case, especially because it's making me bleed for months on end which has made me poorly.

Why's it so difficult to get help!! Infuriating to say the least

Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiences… read more

Im on them now and just want to know what poeple experienced after they stopped the injections. Xx

*these are montly stomach injections for 6 months or 2x over six months. They bring on temporary menopause**

Hi everyone, I’m struggling a lot right now. I have had all of the textbook symptoms of endometriosis for at least 6-7+ years now. Severe pelvic pain, mood swings, nausea, exhaustion, sometimes even vomiting and numbness in the legs. I have been on 8 birth controls in a year and a half. I had laproscopic surgery in April of this year to finally diagnose endometriosis..and he found nothing. I was devastated because I left the hospital with no answers and yet another birth control prescription… read more

New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more

Hi everyone,

I had 2 surgeries to treat endometriosis which both didn't help with the pain at all. In fact, they gave me more symptoms such as longer heavier period and severe constipation. (As I have stage 4 endo that attached to the bowel and I guess it may affect my nerve to pass the bowel)

After reading stories of other sufferers, I found my case is a little bit different that I do not have everyday pain like others but my pain will be before, during and after having period only but a… read more