I'm just looking for stories about how it went for women under 30. I'm 28 and I'm having one done within the next five months (Dr said two but I'm being realistic). I have one child, been pregnant twice, and my husband and I are happy with one child.
How long was the hospital stay?
How long was the recovery time?
Did it help? My dr is talking 80% + reduction in pain levels. He is very sure I have adenomyosis on top of the endometriosis, so the hysterectomy should really help.
Hey there! I'm 28 and had my hysterectomy in September 2016! I have/had PCOS and Endo and I had everything removed (uterus, cervix, remaining ovary) and she also scraped out the endo that grew back on my bowels. I had lost my left ovary December of 2015 when she did my first surgery. She found that the endo was up under my stomach and was causing the IBS-D that I was previously diagnosed with. I did go right into menopause so I'm on Estradiol and my blood pressure also got a little crazy so I take Lisinopril for that now as well. I feel SO much better! She had me stay off of hormones until 6 weeks post op so the endo she couldn't get to would die, and I'm hopeful that it did. I stayed in the hospital one night and was discharged the next day. Very important for two weeks to stay on strict bed rest. Only get up to go to the bathroom and take a quick shower. After that go slow. Do what feels right to you! You have tons of support here though :)
Best decision I've ever made. I'm 28 and 15 weeks post-op. Feel better than I have in 14 years. Hard decision and don't any children but wonderful to have my life back. Keeping your ovaries is very important if you can for hormones. Do your research, read books on Adenomyosis, join the hystersister forum, be realistic about how big an op it is - I definitely had some unexpected wobbles and the first two weeks after the operation were hard. The worst bit for me was being on Zoladex - totally flattened me. Be kind to yourself and never underestimate how much hormones affect you. Best of luck xx
I had a really good scan with an Endo specialist which identified it on my bowel but they should also be able to see adhesions at laparoscopy. I will need a colorectal surgeon at my next laparoscopy and will likely have bowel resection.
While not under 30, I'm 35, a hysterectomy was recommended after years of struggling with severe endo, adenomyosis pain and infertility. I had my surgery in Nov and lost uterus, cervix, tubes, appendix and 1 ovary. I also had a bowel resection as my uterus was fused to my small bowel.
While it was a difficult decision, I am happy I had it done. Hospital stay was 5 nights, surgery was keyhole, recovery was approx 4 - 6 weeks till feeling fantastic but was feeling great after 3.
My remaining ovary isn't working though so I went straight into synthetic menopause so am now on Climara patches.
I recommend plenty of research to choose the right surgeon, a great GP and a psychologist.
3 months out I am totally pain free and haven't felt better. Good luck and don't feel as if you have to justify your decision to anyone x
@A MyEndometriosisTeam Member mine is also on my bowel. So miserable. Be careful with removing your ovary... the repercussions go beyond Endo and pain.