Hi I'm new here and really need some help

I have painful periods, heavy and irregular. Bloating, constipation, diarrhoea, pain with bowel movements sometimes, frequent need to wee, nausea, headaches all the time. Constant dull ache in my lower stomach and back. But sometimes get shooting pains in my right side.

My ultrasound scan came back negative but I'm still in pain and feel tired all the time too. I'm seeing a gynae soon but I'm scared I might need a laparoscopy.

Please any help and… read more

New here but sadly not to endometriosis. Obviously I live with the burden of this disease running my life and marriage so after a year of being told I need a hysterectomy I have scheduled it. The Dr is saying 6 weeks for healing. We are doing laparoscopic with the possibility of abdominal removal as I have Stage 4 and it is covering my bowels and possibly reached my bladder. Any of you who have had a hysterectomy please tell me how long did it take until you could move around at least for an… read more

I find sitting for long periods of time makes my lower back pain worse. Does anyone else have this problem?

Being 20 weeks and 3 days pregnant
I am concerned about the risks during the birthing process
Sadly, it's a fact that women die while giving birth all the time and women of color like myself die at even higher rates.
Taking this into consideration while having stage IV Endo... I am concerned about risks while giving birth and if there is a percentage/statistic that maybe known of how often do women with Endo die during child birth or within the year of giving birth? As well as having… read more

Hello. Anyone menopausal and still having pain? My doctor is convinced that at 51 my endo pain will decline soon and took me off my Norethindrone daily maintenance and Mirena IUD. Crashed and had severe cramps for 3 days. Still having pain in my right side. Hoping the doctor is right, but after 30 years of dealing with pain (post a confirming laparascopy surgery in my 20s), I still feel dismissed and unheard. Thank you.

Im on them now and just want to know what poeple experienced after they stopped the injections. Xx

*these are montly stomach injections for 6 months or 2x over six months. They bring on temporary menopause**

So coping with comments that feel like they couldn't care when you say something

I've been struggling with endometriosis and an ovarian cyst for the last nine months (officially diagnosed, symptoms for 3 years previous), and I've been in pelvic floor PT for the last 8 weeks. My OBGYN has insisted my cyst will shrink naturally and keeps prescribing me different kinds of birth control and nothing has had any affect on my symptoms (most aren't even able to stop my periods). I'm still in high levels of pain on a daily basis and kind of feel like I'm losing my mind because… read more

I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more like… read more

Hi, I am having a laparoscopy on the 15th of this month. How long did it take for you to be able to move around and do things etc? My sister is going in on the 19th to have her waters popped will I be ok to go? I had one November 2021 but can’t Remember how long it took for me to start moving around and feeling better.