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I have recently been diagnosed with endometriosis, and while it is not 100% I have it because I have not had a laparoscopy yet, after several doctors and my symptoms getting worse, my doctor now is convinced I have it. I was told by many doctors in the past that I have PCOS, and then told by many I do not have PCOS. I do have hypothyroidism and I am on Levo for that (thought I feel no different on or off of Levo, just my labwork changes). I am tired all of the time, intolerant to the cold… read more
That sounds extremely frustrating and I'm so sorry to hear it's taken a toll on how you feel about yourself :( I have lost about 24 pounds in the 11-12 months (I was diagnosed about 17 months ago); however, I don't have PCOS or hypothyroidism, so I can't speak to weight loss with those comorbidities. I know many of the ladies on here have mentioned struggling with their weight due to endo, so I wouldn't be surprised if there was a correlation.
I follow a women's fitness site called Girls Gone Strong, and they have some great resources for fitness in general, but several articles related to hormone stuff, including an article specifically on PCOS and thyroid issues. Here is a link to their hormone-related articles if you're interested: https://www.girlsgonestrong.com/blog/category/h...
Reading your post made me think about my sister's experience with PCOS. She gained a lot of weight in a short time (I want to say like 60 lbs in a year or something crazy like that) and was very sick, but doctors kept brushing her off and telling her to exercise (which she was doing, but she was also exhausted). It was finally a reproductive endocrinologist (vs a regular gyno or even endocrinologist) who made the diagnosis and helped her get the appropriate treatment to feel better, lose the weight she had gained, and eventually have her beautiful son. Since it sounds like your doctors are unsure about PCOS, I wonder if a reproductive endocrinologist could help if you haven't seen one already?
Good luck! <3
@A MyEndometriosisTeam Member
Oh my word. We have the same story. I've spent the last 3 years seeing alternative dr for my thyroid. Even on compounded natural desicated meds my levels were great (t3 t4 free t3 reverse r3 and tsh)....and a new eating regime every 3-4 months, my symptoms continue. I found a regular dr to give me a diet pill and a water pill...the only thing that's given me some relief. Not a long term solution though. I've lost 25/30 of the 60lbs I put on. But I'm still fatigued, overheat, my periods are getting worse...moved- new dr (shoot me now), why don't you try this diet? Why don't I kick you in the shins? My husband has done all these diets with me and he saw improvement and can vouch for how strict I've been. So, my best friend was just treated for endometriosis which has made me start pursuing information. I'm sorry I don't have answers for you, but you are definitely not alone. My only advice is to find a functional dr to treat your hypothyroidism with a natural dessicated t3/t4 thyroid med. and go from there.
@A MyEndometriosisTeam Member
Thanks for your reply. Congratulations on your weight loss! And I'm so glad you're sister got the right treatment! It makes me really happy when I see people overcome the issues with hormones because it is so hard! It gives me hope too that one day I will also. I don't know if I have PCOS to be honest because of how many doctors said yes, you have it, while others say, no you don't. I actually have seen a reproductive endocrinologist once, and he said I "possibly" have it, and that was kind of it. I take metformin for it but it doesn't seem to make a difference. It's very confusing getting so many different answers. I definitely have hypothyroidism though and since the symptoms of endometriosis are so similar, I don't know which one is causing this, if not maybe both!
Thanks for the website recommendation! I'm definitely going to check them out! I really appreciate it!
Sending you love on your journey to wellness <3
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