Many members on MyEndometriosisTeam experience unwanted weight gain. Weight gain is a common side effect of endometriosis treatments, many of which influence estrogen and progesterone levels. Changing hormone levels can lead to weight gain.
Treatments that may impact weight include:
Medications, such as oral contraceptives and hormone blockers
Intrauterine devices (IUDs)
Surgical procedures, such as a hysterectomy.
Members reported 10-pound gains from the estrogen-reducing drug Orlissa (Elagolix). “Bust, hips, and thighs are bigger after less than three weeks,” shared one. “I think that’s what threw my hormones completely out of whack,” wrote another.
One member on a 15 mg dose of the oral contraceptive Norethindrone (Norethisterone) said she experienced “a ton of weight gain, worsening pain, and menopausal symptoms.”
Endo belly or bloating—a common symptom of endometriosis —can also feel like weight gain. “No matter how much I diet, my tummy looks so round. I’m not losing weight and I’m really frustrated,” wrote one member.
Traditional weight-loss techniques, such as diet and exercise, have not been successful for some members undergoing treatment. “I’m working out and eating less with no luck,” said one. “I’ve been trying to diet literally all year and it hasn’t helped,” said another.
The good news: Weight gained during treatment is often temporary. Members report losing weight once they’re off drug therapies. “I gained about 10 pounds in a month (then the weight gain tapered off),” wrote one.
Some said they actually lost weight during such treatments as Mirena (Levonorgestrel), laparoscopic surgery, or a change in prescription. “When I had an IUD, it really helped. Most recently, I was on the pill and IUD, and had a consistent low weight even with bad endo. I usually put on weight then lose it post op,” one member said.
Always report treatment side effects, such as sudden weight gain or weight loss, to your physician. And speak with your endometriosis care team before starting any new weight-loss diets, remedies or exercise programs.
On MyEndometriosisTeam.com, the social network and online support group for women living with endometriosis, members discuss a wide range of topics including weight gain.
Here are some question-and-answer threads about weight gain:
Here are some conversations about weight gain:
Have another topic you'd like to discuss or explore? Go to MyEndometriosisTeam today and start the conversation. You'll be surprised how many others may share similar stories.