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Real members of MyEndometriosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEndometriosisTeam Member asked a question 💭
Concord, NH

Little back story first, I have been diagnosed with endometriosis for about 4 years after a laparoscopic surgery to remove a cyst. My OB says it's pretty severe endo and has had me try the pill and depo provera both of which I hated and stopped taking. It makes me very out of sorts and I feel like right now I finally feel myself even if there is painful days. Anyway about 8 months ago I started noticing blood in my urine when I was not on my period. I had a cystoscopy to look inside my bladder… read more

June 20, 2017
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A MyEndometriosisTeam Member

I ended up getting a CT scan which reveled an 8mm stone in my left kidney. I was given the option of surgically removing the stone and went that route because the chances of passing a stone that large were only about 30% and didn't sound fun anyway!
Thank you for this information because this is something I will watch out for in the future. I know my endo is severe and I often worry about it harming the organs that it attaches to. I have a feeling the reason I got a stone is because of chronic dehydration caused by the digestive issues I get from endometriosis.

August 7, 2017
A MyEndometriosisTeam Member

You should research endometriosis of the ureter and kidney. A symptom of that is blood in the urine. I know it's expensive but definitely worth it. Left untreated the endo can actually lead to renal failure. I hope that's not the case but probably a good thing to rule out. Let me know what happens. Best of luck and stay strong! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC35...

August 7, 2017

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