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Good afternoon, I recently had a laparoscopy as I had an ovarian cyst. The Doctor said I have a dense adhesion between the uterus, bowel and ovary. He was not able to free the dense adhesion due to the risk of bowel injury so he left it!! I have heavy, clotty periods. I also experience painful pain during and after sex. I have had a cycle of IVF and that didn't work. I get lower back pain and pelvic pain if I exercise, housework! I am constantly constipated and never look forward to opening my… read more
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Members rallied around someone facing dense adhesions between the uterus, bowel, and ovary, sharing their own difficult experiences with bowel... Read more
You NEED surgery NOW!!! The longer you wait results in more damage and even more excruciating pain! Speaking from experience. Almost killed me. I had an intestinal lesion, cul de sac of Douglas completely obliterated, endo on appendix etc. Endo ate through my intestines. I had to get a temporary ileostomy for 3 months. PLEASE get help asap! I also had several surgeons. It began laparoscopic but surgical team had to result to laprotomy. I was DYING PAINFULLY & SLOWLY. I'm so sorry endo sis. Please get help now!!! @A MyEndometriosisTeam Member
That is crazy it is hard for me cause i had a slipped disc in my back when i was like 23
@A MyEndometriosisTeam Member This is more recent. Displays effects later. One of our endo sis on this site shared similar encounter years later.
https://www.google.com/amp/s/www.pbs.org/newsho...
@A MyEndometriosisTeam Member This is more recent. Displays effects later. One of our endo sis on this site shared similar encounter years later.
https://www.google.com/amp/s/www.pbs.org/newsho...
@A MyEndometriosisTeam Member Ok. How do you feel on Lupron? How long have you been on Lupron? Dr.s receive kickbacks for getting patients to take Lupron. We have a family friend who is a Dr. in pharmacology (a Pharmacist) Physically & emotionally? My Dr.s told me they didn't want to go back in my pelvis but eventually they had to. Endo attacked more organs & fused my right ureter, bowel,right ovary & an artery & also was pulling my rectum to the right. Also my left ovary was encased in adhesions. Per one of the surgeons, my left ovary & fallopian tube wasn't visible & she had to palpate the area to locate it which took 2 hrs. (all this was discovered on surgery #4 ). This surgery took 7 hours. I have a high pain tolerance & when pain returned that was making me almost pass out, elevating my bp & causing me horrid pain that makes me gag & at times regurgitate etc. I knew it was time to return. MRI displayed growing endometriomas in my presacral region (I was told as long as I remained asymtomatic, it's not a good idea to go back in that space). However now I suffer from pudendal neuralgia, extreme sciatica & anterior foot pain (on the left) & unstable gait, chronic nausea, pain & episodes of urine retention. I declined Lupron bc I'm so sensitive to medications. I can't even be scrubbed prior to surgery w/ betadine (it eats through my flesh). Seems like I've become more & more sensitive & allergic to medications & certain substances & even foods! I pray you don't end up w/ an ileostomy sis. Why won't Dr.s let you have a hysterectomy? Is it your age & no children? My surgeon was denying me one. I burst in tears begging her to do so bc I couldn't take bleeding constantly on top of the uterus contractions with stabbing pains & other issues this disease caused etc. She initially took uterus only (on surgery #2; my 1st surgery was an endometrial ablation in hopes to stop the constant bleeding that I had for months prior to my big surgery involving the colorectal surgeon) which I asked about taking my ovaries also being removed bc from thorough research, leaving the ovaries is not a good idea w/ Stage IV endo. She didn't want me to go into menopause. But later bc of problems she wished to put me into chemical menopause 😐😒🤔. But why chemical menopause since we the goal was to not have me go into menopause? Chemical menopause has nasty lasting side effects!!! I did try megace (megestrol) to no avail & suffered serious problems (i.e blurry vision, severe fatigue, feeling horribly ill & thirsty bc it sky rocketed my blood sugars & made me severely dizzy & horribly depressed & caused GI issues-all adverse side effects). The hot flashes were the most tolerable side effect & megace did NOT help w/ my pain. Wishing you the best💛💛💛 When you get a chance view these news airings.
I was wondering if anyone else was suffering from Endometriosis AND a fibroid tumor on there uterus?
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