I'm norethindrone for endo. Seems to be helping with the endo, but I'm swelling up so badly and my short term memory is horrible.

I'm norethindrone for endo. Seems to be helping with the endo, but I'm swelling up so badly and my short term memory is horrible.

Dr. Wants to try lupron. It's super expensive so why don't I just get a hysterectomy and get it all over with.

A MyEndometriosisTeam Member said:

@A MyEndometriosisTeam Member Will do sisπŸ’›πŸ’›πŸ’›. Thank you.

posted about 2 years ago
A MyEndometriosisTeam Member said:

@A MyEndometriosisTeam Member PLEASE thoroughly research Lupron prior to getting the injection. Ultimately YOU have to decide. It's very expensive & has some irreversible side effects and does NOT cure Endo. Dr.s also receive huge kickbacks when they get patients to take Lupron. I am yet to meet a physician who has taken Lupron.

posted about 2 years ago
A MyEndometriosisTeam Member said:

Do a lot of research on Lupron. It has helped some women but most have terrible side-effects. the worst one for me was memory loss - severe. I have very few memories of my youngest as a toddler due to it. I grieve that loss to this day. Hysterectomy is not always a cure either. New research says that exicision surgery is the best treatment but there is no one around me who is an expert at it. I guess I keep hoping when I am finally in menopause, some of the agony will be over - at least the horrible period pain will be gone.

posted about 2 years ago
A MyEndometriosisTeam Member said:

Tess, Please keep me posted how you are doing. I want to know how it all works for you. Fingers crossed for a successful surgery. -Susan

posted about 2 years ago
A MyEndometriosisTeam Member said:

Unfortunately no medication has helped. I was prescribed norethindrone (I was on several other bcp prior to this that did nothing & made me worse & ill). The last drug was megace or megestrol. Horrible experience! Oncologist gyn told me to cease meds if it wasn't helping me. I experienced almost every adverse reaction including blurry vision for over 2 wks! Waiting on surgery (less than 6wks away). Visiting surgeon on 10/2 to ask a few inquiries & decline presacral neurectomy.

posted about 2 years ago
Browse more questions and answers
Continue with Facebook
Sign up with your email
Already a Member? Log in