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Feeling Misunderstood and Endo

Posted on March 26, 2018

"Endometriosis is more than just physical pain. Feeling misunderstood causes mental and emotional pain for many members of MyEndometriosisTeam. “No one believed I had endometriosis, they called me an attention seeker,” one member wrote. “People think I’m lazy because I’m always exhausted,” another member commented. And that’s not all. Members talk about not being taken seriously by their doctors, and that the condition altered or broke up intimate relationships. Being part of a supportive community that "gets it" helps MyEndometriosisTeam members cope with feeling misunderstood.

On MyEndometriosisTeam, the social network and online support group for those living with endometriosis, members talk about a range of personal experiences and struggles. Friends and family not understanding the impact endometriosis have on their loved ones is one of the most frequent topics that members discuss.


Here are a few question-and-answer threads about feeling misunderstood:

Have you ever had a partner break up with you due to a lack of intimacy?

How do you ladies deal with your partner's emotions towards endo?

What do you ladies do to manage the cyclical mood: depression symptoms?

Does anyone else feel protective almost controlling about their medical updates?

What do you do after a bad endo episode to mentally reset yourself?

How do you live a quality life with endo inflammation when you live alone and barely have support?

Have another topic you'd like to discuss or explore? Go to MyEndometriosisTeam today and start the conversation. You'll be surprised just how many others may share similar stories.

Feel free to ask a question here.

A MyEndometriosisTeam Member said:

Yes

posted 9 days ago

hug

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