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A MyEndometriosisTeam Member asked a question 💭
Auckland, NZ

Hi I have the most severe endometriosis cases and have been recommended to get the zoladex injection to put me in temporary menapause until I can loose more weight before I can have a @hysterectomy.
Can anyone with the experience advise the pro's & con's of the injection.
I have to make my mind up with in a few weeks but I'm concerned about the side effects.
Thanks

September 24, 2017 (edited)
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A MyEndometriosisTeam Member

Hi there, I'm currently on zoladex - almost two months into what will be a six month course (2 x 3 monthly injections). I'm being treated for what is assumed to be an endo-related mass on my right ovary, along with a recurrence of endo on nerves (yeouch!) on my left side. I started to develop arthritis-like pain in the second week after the injection along with pins and needles down my right side. The hot flushes and night sweats came shortly after that. The pain and pins and needles went away after a little while and I feel pretty good to be honest. I don't really care about the night sweats and hot flushes - I find the 'power surges' really funny so I usually just giggle like a crazy person when it happens... which is often!

The list of warnings is long and daunting - I was so concerned that I got a second opinion and did heaps of research but I'm glad I went ahead. I see this time as an opportunity to figure out what to do next, but without pressure - I may not need to do anything else for a really long time :-) I fully agree with Katebug2's advice though - six months tops.

September 24, 2017
A MyEndometriosisTeam Member

Hello! I was put on Lupron (same drug, different brand) over the past year to put me in menopause while getting through 3 spine surgeries while endometriomas are on both ovaries. These types of injections have a black box warning that you can develop osteoporosis so doctors will typically only put you on it 6 months max. Since my doctor put me on it for a year I developed osteopenia and osteoarthritis (I'm only 31). It was great not having pain or a period for a year, but my endo continued to worsen (cysts got larger and developed frozen pelvis) and now I have widespread bone issues. If you're going to do it, make sure it isn't for longer than 6 months and see if you can get the add-back therapy as well.

September 24, 2017
A MyEndometriosisTeam Member

I feel I should update my response regarding zoladex. I'm almost finished my first 3 month jab and was hopeful that I wouldn't need another one. I had a scan last week and was disappointed that my mass was still there, although considerably smaller. Another 3 month (at least) course is recommended to completely nuke it. The last month has been tricky though - hot flushes were great when it was cold but it's mid spring now - not funny anymore! Nerve pain has returned and I have constant joint/bone pain. I have trouble sleeping, even if I'm exhausted, and my dreams are incredibly vivid when I do sleep. (Not good if you're prone to bad dreams.) I know zoladex is much better than other possible treatments and I don't regret having it, but I've had a reality check - it's going to be a hard road for a while yet.

October 25, 2017
A MyEndometriosisTeam Member

Thanks ladies I really appreciate your advice.
I want to show them I'll do anything to help while I keep trying to loose weight but Google was scaring me away.
Appreciate it ☺

September 27, 2017

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