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A MyEndometriosisTeam Member asked a question 💭
Wakefield, UK

I have had endo return 12 years after a full hyster. Apparently this is unheard of in the uk. I have been passed from department to department in healthcare with nobody taking ownership. Gynae say it's not their problem because I have no gynae equipment. Colorectal say it's not their problem as it's a gynae condition. 2 years later I am still left untreated. I can't go much longer with this level of pain before it affects my employment. Has anyone got any advice?

January 17, 2018
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A MyEndometriosisTeam Member

Well sorry u going through this endo pain u mean u had a hisyterectomy. Once u have endo my gayno/ endocrology dr said their no such sign of endo never returning after hisyterectomy but it is better to eat right exercise and stay off surgarly drinks foods. Also asked go on hormone threapy patches or pills or both i used to be on estralis patches but New Zealand not getting them delivered amymore to my chemist. So my endo dr put me on estrodot patches & pills i have trouble swallowing pills so i put up my vingina.

January 17, 2018
A MyEndometriosisTeam Member

So sorry you are going thru this too. I have now been seconded opinioned shd have a new gynae who thinks I am a medical mystery and is trying all sorts of options. Surgery is their least favourite as there is a large possibility that they will have to remove huge sections of bowels as the endo is so aggressive. Also I haepockets n all 4 quadrants so it would be a major surgery... pain management is the current option!

September 8, 2018
A MyEndometriosisTeam Member

Hey, I am not in the UK, but in to am going through the same thing, partial hysterectomy at 27, just had ovaries removed 2014, I am in agony now, off work since October 2016. On long term disability at the moment. But gone from gynecologist to general surgereon back to gyno, oh there were two general surgeons in there. Now I am seeing new gyno that seems to have some idea of what she is doing. But being told that it can't be my old friend Endo. But this one is willing to help so far, my day consists of sitting in my recliner watching tv, so much fun. Can't do much, so frustrating. Trying pelvic floor therapy at the moment and on some very strong pain meds, so driving a car is not even possible. I feel your pain all the way in Canada.

January 28, 2018
A MyEndometriosisTeam Member

I adopted a beautiful boy. There are different ways to be a mum, even when this horrid disease takes options from us. Xxx

January 19, 2018
A MyEndometriosisTeam Member

I had no signs endo coming bck since i been on patches & i had my ovaries removed to prevent my ovaries being distroyed by my endo.
My endo kept coming bck everytime i had endo removed four times. After i recovered it came bck after sereval months, so last /fourth surgery i had bck 2014 i had make decstion that not allow me to become a mum.

January 17, 2018

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