Has Anybody Here Lost Their Jobs Through Chronic, Everyday Pain With Endo? | MyEndometriosisTeam

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Has Anybody Here Lost Their Jobs Through Chronic, Everyday Pain With Endo?
A MyEndometriosisTeam Member asked a question 💭

Hey everyone
I recently attended an appointment with PAMS to answer questions and give details to my employer through her, about my condition and when I'll be able to return to work
I have only recently been diagnosed with endo, but have been in pain with it for several months. The lady who I seen was lovely and fully understood what I'm going through. I've not been given an appointment with a specialist yet and have been waiting the past month or so to see him/her, during this I've been… read more

posted January 18, 2018
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A MyEndometriosisTeam Member

Hi,
If you have a disability that has a long term and substantial effect on your daily life then your employer has a duty to make reasonable adjustments, however this needs to be reasonable for both of you and depends on many factors. Off the top of my head you can normally take a witness with you to a meeting. I would go to your local citizens advice and get some idea of your rights beforehand so you can go prepared, they also have a helpline and can give you the starting blocks to do your own research. Also remember sick leave you have the right to about 26weeks (off the top of my head) might be 28, so make sure your getting sick notes. I don’t have enough info and have my own 1st lap next week but definitely go to citizens advice they can advise you more specially on your rights! Good luck 😊

posted January 19, 2018
A MyEndometriosisTeam Member

I think us girls with endo have to start coming together and forming some kind of non-profit that helps us get temporary and full time disability benefits. We are being put in an impossible situation. I can not get out from under this endometriosis. When I am not working I don't have the money for the healthier food and physical therapy and medical treatment.

Then when I am working I don't have the time and energy to work on my healthy. However I can never keep a job long because my illness gets in the way.

I feel like if I could have six months where we are not stuggling financially and I could work on my health I could probably get into pretty good condition.

posted January 18, 2019
A MyEndometriosisTeam Member

I am so confused with what I have. I have been going from doctors to doctors for two years. I had a laporoscopy and the gynaecologist found that I have endometriosis. I asked if he worked with endo before and he said he has with two other patients. My pain all started when I had an unprotected relationship with my partner. He didn’t go all the way in and he told me he didn’t cum. It was my first time. I took the morning after pill because my bf got scared. The next day I got a uti so I did all the tests required and they found nothing. The gyno said it was endo. Did a laparoscopy and found a tiny bit of endometriosis which he stated was focal. I didn’t believe this was the pain from what happened.Im scared it’s pelvic inflamation. I’m constantly feeling bloated, tight, hips are locked, lower back ache and a stinging pain upper and lower abdomen. The first pain was a pulling pain. I don’t want to take the pill because I’m scared it’s not that. I don’t know what to do :( I don’t know what gynaecologist to trust! Any recommendations please. Thank you!!

posted August 22, 2018
A MyEndometriosisTeam Member

Thank you so much! Didn't even think about citizens advice, I'll give them a ring first thing Monday. Think I'll feel a lot better having more of a perspective and knowing my rights. I can have someone from the union be a witness but I'm not in the union unfortunately. Thanks again and good luck with your lap :)

posted January 19, 2018

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