I have stage 4 and I am absolutely desperate for a Hysterectomy after suffering for almost 13 years and I'm only 28, the last doctor I saw outright refused based on my age and that I may want more children, My friend is 29 with no children and she has just had one, i am DESPERATE, anyone had any luck with getting one or any tips that might help me to make them see that its what i need I understand that they're being cautious because i may want more children but i can't look after the ones i have… read more
Have you had excision yet? Even though I have suspected adenomyosis, my surgeon is recommending I try endometriosis excision first before removing my uterus.
Pay for a consultation,you could been seen literally next week and have a plan. Ask for your scan report from your gp too to take with you/look at xx
I was having an internal so I presume it was in my womb, it's just very frustrating because they know I have these problems and really don't listen to me because I'm so "young" paying privately for a consultation may be my only option, I was genuinely considering paying for the whole thing privately and just trying to raise the money somehow.x
where was the thick endo do you know? IF you have fibroids and womb thickening you could have this adenomyosis, which would be cured by hysterctomy. You could pay to see someone privately for a consultation, usually about £150 then they would refer you for any treatment on the NHS but you get a good half an hour with them and they really listen and will look at your scans properly etc x
i definitley do not want anymore, I only have one remaining ovary, i have fibroids and the last scan i had was showing up some quote " pretty severe and thick endo" i just feel like im bashing my head against a brick wall, they wanted to give me one at 18, at which point i spent most of my time in hospital begging for decent pain relief. x